Search found 1652 matches

by DebE13
Sun Nov 27, 2022 12:46 pm
Forum: Personal Experiences with Medications
Topic: Anyone have issues with beta blockers making MC worse
Replies: 5
Views: 1752

Re: Anyone have issues with beta blockers making MC worse

Thank you for the information. I will add that to what I request for labs. I've never had that tested before. I take a magnesium supplement- most likely not enough now that I look at the bottle. I get leg cramps at night and it seems to help. I just noticed the serving size is two tablets. I have on...
by DebE13
Fri Nov 25, 2022 8:11 am
Forum: Personal Experiences with Medications
Topic: Anyone have issues with beta blockers making MC worse
Replies: 5
Views: 1752

Re: Anyone have issues with beta blockers making MC worse

Thanks Tex, I do feel like I'm on my own with this one. My PCP has ghosted me and I may need to find another. Problem is- Armor still seems to be taboo. I haven't seen an endo in about seven years since synthroid is their only option. Sadly, my PCP is on the other end of the spectrum and tells me we...
by DebE13
Mon Nov 21, 2022 3:01 pm
Forum: Personal Experiences with Medications
Topic: Anyone have issues with beta blockers making MC worse
Replies: 5
Views: 1752

Anyone have issues with beta blockers making MC worse

I haven't posted in a long while since I've been in the same pattern for more years than I can count. I've reached the bottom of the list of meds that will help manage my MC and have settled with one Entocort each day to manage night issues. To make a very long story shorter, I take Armor thyroid me...
by DebE13
Sat Jan 08, 2022 5:20 pm
Forum: Main Message Board
Topic: osteoporosis and GI/thyroid issues
Replies: 4
Views: 341

osteoporosis and GI/thyroid issues

Does anyone else have osteoporosis issues? I've had CC since 2007 and had thyroid cancer and a total thyroidectomy in 2013. Almost four weeks ago I injured my knee at work and am now wondering if I need to look into further testing. I manage a warehouse and was cleaning the floors. I attempted to pu...
by DebE13
Sat Jan 08, 2022 4:24 pm
Forum: Main Message Board
Topic: Lymes and remission
Replies: 6
Views: 494

Re: Lymes and remission

The first time I had Lymes a few years prior, I took doxy and it actually caused remission from MC. I've had CC since 2007 and have never been able to get it under control. The D returned after the course of doxy was over. It was really weird. This time around, nothing. I don't believe I have any la...
by DebE13
Mon Aug 23, 2021 12:33 pm
Forum: Main Message Board
Topic: Lymes and remission
Replies: 6
Views: 494

Lymes and remission

I haven't posted in such a long time because I gave up on finding anything that would help my MC. Apparently, Lyme's is my answer. I am really scratching my head and thinking "only me." I had Lyme's in 2017 with the classic bullseye and was treated with doxycycline. After a few days on the...
by DebE13
Sat Jul 04, 2020 3:26 am
Forum: Main Message Board
Topic: Very Important Research re LDN (low dose naltrexone)
Replies: 15
Views: 1295

Hi Paul, I read the transcript and I agree.... I am also suspicious of anything that seems to good to be true. I've spent thousands of dollars over the years trying anything and everything and I have found no miracle yet. The closest to it is this forum which provides invaluable information as to wh...
by DebE13
Sun Mar 10, 2019 4:29 am
Forum: Main Message Board
Topic: Checking In with a UTI
Replies: 11
Views: 785

Thanks for your suggestions Erica- it's always something to deal with. The antibiotics did their job and I'll keep taking the probiotics for a while. I've tried so many and have never seen any improvements but I figure it can't hurt. I did a test a while back that gave data about my individual gut b...
by DebE13
Mon Mar 04, 2019 4:45 pm
Forum: Main Message Board
Topic: Checking In with a UTI
Replies: 11
Views: 785

I’ll be 48 in August. I’ve never had an irregular period ever. Missed it when I was pregnant, obviously, but have always been like clock work so this was a bit surprising. I know menopause is on the horizon but it’s hard to tell what’s what. Ever since the year prior to my thyroid cancer my thermost...
by DebE13
Mon Mar 04, 2019 9:23 am
Forum: Main Message Board
Topic: Checking In with a UTI
Replies: 11
Views: 785

Thanks for your experience Tex. I’ve always taken inspiration from your self advocacy. I haven’t given up hope but have been coasting since I seem to be in a no-win situation. I’ll have to talk with my GI again and see if there are any options. In the past it’s just been bouncing between the two spe...
by DebE13
Sun Mar 03, 2019 7:00 am
Forum: Main Message Board
Topic: Checking In with a UTI
Replies: 11
Views: 785

Checking In with a UTI

It's been a while since I've posted since I've pretty much stopped exploring what my core issues are and am just putting up with being "as good as it gets." In 2017 I tried everything under the sun for GI issues, most of which made me feel worse. My GI finally said we were at the end of th...
by DebE13
Fri Oct 05, 2018 5:05 pm
Forum: Main Message Board
Topic: Brandy, and Anyone Else Who Might Have Kidney Issues
Replies: 6
Views: 647

You simply amaze me! :smile: You are a great inspiration for self advocacy.
by DebE13
Wed Oct 03, 2018 4:52 pm
Forum: Main Message Board
Topic: Brandy, and Anyone Else Who Might Have Kidney Issues
Replies: 6
Views: 647

How did you convince your doc to double it? Glad you figured out a resolve for some of the issues.
by DebE13
Wed Oct 03, 2018 4:47 pm
Forum: Main Message Board
Topic: If you have UC or know someone who does, please read:
Replies: 1
Views: 309

Thanks for sharing Carol. Good to keep in mind when talking to my son. Thankfully, his meds are keeping him feeling pretty normal.
by DebE13
Sat Aug 25, 2018 6:28 pm
Forum: Main Message Board
Topic: Very Important Research re LDN (low dose naltrexone)
Replies: 15
Views: 1295

I've been taking LDN for about three years for pain issues and possible benefits related to having a history of cancer. It hasn't helped with my MC (but nothing really has). It's worth a try. Anyone entertaining the idea of trying it- do some reading. Many doctors aren't familiar with it as low dose...

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