Search found 60 matches

by Marie
Tue Aug 20, 2013 7:22 pm
Forum: Main Message Board
Topic: DX- thyroid cancer
Replies: 27
Views: 4590

Hi Deb, Sorry I'm late to the thread but I wanted to give you a big virtual (((hug))) online and offer you some upbeat news. My mom had her thyroid radiated at insanely high levels (they call it Hiroshima's thyroid) when she was three years old. In 1952 they didn't realize the dangers in removing to...
by Marie
Sun Aug 11, 2013 1:27 pm
Forum: Main Message Board
Topic: Everything has failed....anyone know the pepto protocol?
Replies: 22
Views: 2817

I agree, hormones are a toughie. My MC issues started in '07 with my first pregnancy so hormones are highly suspect. Doctors were not diligent; they said "IBS". Finally, 5 years later I got the MC diagnosis. My GI from back then told me it was like having a bum knee, nothing a little Asaco...
by Marie
Sun Aug 11, 2013 1:10 pm
Forum: Main Message Board
Topic: Anyone ever experience floating D?
Replies: 10
Views: 1294

Never had the floats issue until post C.Diff, so it's new to me. Linda, I do agree that it has to do with fat malabsorption issues. Not sure how to make it stop though since I don't eat a high fat diet. Mzh, I also took DAO and Betaine HCl. I'm keeping my supplements down to a multivitamin since I'm...
by Marie
Sun Aug 11, 2013 12:44 pm
Forum: Main Message Board
Topic: Everything has failed....anyone know the pepto protocol?
Replies: 22
Views: 2817

Tex, While all those other causes/influences of MC have been discussed, I was under the impression that the core emphasis on this forum is that diet is the most important. I wanted Susie to know that there are others in her same position who have not achieved remission through diet alone. I noticed ...
by Marie
Sat Aug 10, 2013 8:45 pm
Forum: Main Message Board
Topic: Everything has failed....anyone know the pepto protocol?
Replies: 22
Views: 2817

Hi Susie, I understand your pain. I was also diagnosed nearly two yrs ago. No one, except my husband who sees what I eat, can testify to how restricted I've been with diet. I tried Asacol, Imodium, and Pepto without success. I really hope Pepto works for you! I had improvement with Entocort. After d...
by Marie
Fri Aug 09, 2013 9:34 pm
Forum: Main Message Board
Topic: Anyone ever experience floating D?
Replies: 10
Views: 1294

Thanks to those of you giving support; it's genuinely heartwarming. My stress level has been exacerbated this past summer because of my incidence with C.Diff. MC alone stinks :lol: pun intended . MC + C.Diff= unthinkable. It will take time to mentally get over that doozie, and physically too: calmin...
by Marie
Thu Aug 08, 2013 4:19 pm
Forum: Main Message Board
Topic: Anyone ever experience floating D?
Replies: 10
Views: 1294

Anyone ever experience floating D?

Hi guys, Fortunately, I see my GI at Shands (UF) tomorrow. I'm usually upset when I have D at all. Now I'd be relieved if the D would sink. I've been on Entocort for less than a week. I was going to begin Entocort sooner but I had to hold off for my pill cam. Last Sun. I tested at a walk-in clinic f...
by Marie
Sun Aug 04, 2013 8:18 pm
Forum: Main Message Board
Topic: Newbie with lots of questions
Replies: 8
Views: 2305

I'm the one who directed you here. Glad you found the site with ease. This is my primary online support group b/c I've only ever been Dx'd with MC. I read up on the Chrons Forum b/c my doctor has pushed those drugs and I want to be as educated as possible. Best wishes to getting the answers you need...
by Marie
Sat Aug 03, 2013 7:51 pm
Forum: Main Message Board
Topic: Pathology results, paging Tex ;)
Replies: 3
Views: 631

Tex, You never cease to amaze me with your support and abundance of knowledge. I will try to keep calm and carry on until I'm able to speak with my GI. My GI has been ready to throw me in the Crohn's category since day one, so I'm not sure she'll entertain the idea of possible Intestinal TB or MAP.....
by Marie
Sat Aug 03, 2013 5:49 pm
Forum: Main Message Board
Topic: Pathology results, paging Tex ;)
Replies: 3
Views: 631

Pathology results, paging Tex ;)

I probably need to stay off the computer and stop worrying myself sick. I was just curious if Intestinal TB is often misdiagnosed as MC? I have been losing weight, steatorrhea diarrhea and some night sweats. Would a colonoscopy or small pill camera rule out intestinal TB? Perhaps, I'm petrified of i...
by Marie
Sat Jul 27, 2013 8:28 pm
Forum: Main Message Board
Topic: How About That? I do have thyroid issues.
Replies: 13
Views: 1693

DebE, I'm sorry you've had to wait so long to find a doctor with a comprehensive understanding of the thyroid and pituitary, and one really willing to listen to your symptoms. With that being said, congratulations!!!!!!! It seems you're finally going to get some good insight. Thanks for mentioning t...
by Marie
Sat Jul 20, 2013 8:24 pm
Forum: Main Message Board
Topic: So tired
Replies: 10
Views: 1091

Hi Christy, It's great to hear that you are feeling well, aside from the fatigue. I'm sure it will improve in time since it seems you're doing well with your digestion. I completely agree with Tex about having your thyroid levels checked. I'm one with thyroid issues and MC. I'm also in South FL so i...
by Marie
Thu Jul 18, 2013 3:34 pm
Forum: Main Message Board
Topic: Concerned- could use support!
Replies: 15
Views: 2336

Thanks y'all. I sincerely appreciate the information and advice. Tex, thank you for explaining the HPA and HPT systems. My GI had me stop the Entocort, which is what helped me reach remission in the past. Not quite sure why he did this, perhaps because of the recent c.diff or because he thinks I can...
by Marie
Wed Jul 17, 2013 3:05 pm
Forum: Main Message Board
Topic: Concerned- could use support!
Replies: 15
Views: 2336

Zizzle, that is very interesting! It makes me glad that I will be seeing someone about my adrenals next week. Ever since my pregnancies (2007, then 2011), I feel that my hormones majorly changed, including the functioning of my thyroid & adrenals. Pregnancy was stressful for me, some people love...
by Marie
Tue Jul 16, 2013 7:04 pm
Forum: Main Message Board
Topic: Concerned- could use support!
Replies: 15
Views: 2336

Hey Tex! Thanks for the encouragement. We haven't received the pathology report yet but the GI informed us verbally that there were plenty of lymphocytes. I'll be sure to post results when I do receive the report. I did the Enterolab test last year. I just emailed you those results. The C.Diff toxin...

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