Search found 15 matches

by lisa in lj
Thu Jun 17, 2021 11:00 pm
Forum: Information on Medications
Topic: New Medications?
Replies: 2
Views: 477

New Medications?

I haven't been on in awhile. To summarize my history...I was diagnosed 10 years ago with a biopsy done during a colonoscopy after having experienced symptoms for several years. I first took Cholestyramine, which helped, but degraded the enamel on my teeth and after 6 months, I needed 3 crowns. I tri...
by lisa in lj
Wed Apr 17, 2013 2:01 pm
Forum: Main Message Board
Topic: I have a couple of questions
Replies: 8
Views: 1621

Tex, is there a test that would say definitively that I have a problem with gluten, or would it just be trial and error? When I was on the elimination diet, I was taking Cholestyramine, so my symptoms were already diminished, but some things, such as caffeine and artificial sweeteners, still caused ...
by lisa in lj
Wed Apr 17, 2013 11:16 am
Forum: Main Message Board
Topic: I have a couple of questions
Replies: 8
Views: 1621

Thanks for the information about the genetic markers and Entocort. When I was first diagnosed, I went on the 28-day elimination diet. The only things that really seemed to bother me were super spicy foods, caffeine and diet sodas, which I have eliminated. Many processed foods had minor effect, so I ...
by lisa in lj
Wed Apr 17, 2013 12:43 am
Forum: Main Message Board
Topic: I have a couple of questions
Replies: 8
Views: 1621

It was 4 different genetic markers - ATG16L1, ECM1, NKX2-3, and STAT3. For the first three, my result was Mutations Detected and the reference was No Mutations Detected. For the last one, my result was No Mutations Detected and the reference was Mutations Detected. Also, when it said I didn't have I...
by lisa in lj
Tue Apr 16, 2013 11:19 pm
Forum: Main Message Board
Topic: I have a couple of questions
Replies: 8
Views: 1621

I have a couple of questions

I recently switched GI doctors. The one I went to before was great in the beginning, but when I went for follow up visits as instructed, he seemed to be in a hurry and barely listening. He also had some billing practices that I wasn't happy with. I work in healthcare and know that some the things he...
by lisa in lj
Tue Jun 19, 2012 10:11 am
Forum: Main Message Board
Topic: Where to Start?
Replies: 4
Views: 1004

Plavix and Coumadin have a major interaction, which can cause potentially fatal bleeding episodes. It's possible to take both together, but they usually only prescribe it for very high risk patients. Regardless, I will talk to my Cardio the next time I see him. I have had several TIAs while on Couma...
by lisa in lj
Tue Jun 19, 2012 9:41 am
Forum: Main Message Board
Topic: Where to Start?
Replies: 4
Views: 1004

Thanks. The only NSAID I take is an 81mg aspirin once a day. That goes along with the Coumadin that I take for my mechanical heart valve, so I'm a bit leery of discontinuing it. As to avoiding gluten, soy and dairy for a month, guess I need to start reading labels! Gluten is pretty easy as it is &qu...
by lisa in lj
Mon Jun 18, 2012 11:15 pm
Forum: Main Message Board
Topic: Where to Start?
Replies: 4
Views: 1004

Where to Start?

I've been following the low fiber/low fat/low residue diet my doctor prescribed for about 2 weeks now. I also stopped drinking Diet Cokes. I've been taking Cholestyramine. Originally I took 1 packet per day, but now I'm taking 1 every other day. I don't like diarrhea, but I like constipation even le...
by lisa in lj
Mon Jun 11, 2012 1:08 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Another Newbie - Cholestyramine
Replies: 8
Views: 5087

I completed my lactose malabsorption test this morning (hydrogen breath test) and it was negative. I didn't think that dairy was an issue for me, but it's nice to have confirmation. I have a fructose malabsorption test scheduled for Friday. After a week with no Diet Coke, I'm excited to get to drink...
by lisa in lj
Sun Jun 10, 2012 11:41 am
Forum: Main Message Board
Topic: I Finally Get It
Replies: 137
Views: 21283

carolm, 108th percentile? Is that possible? That would mean that 107% of the people your age have worse results, wouldn't it? I was told my results were very good and that I was in the 99th percentile for people my age (50). Considering I am at HIGH risk for osteoporosis - family history, small bone...
by lisa in lj
Sun Jun 10, 2012 10:55 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: High dose Pepto Bismol
Replies: 4
Views: 7600

I have a question. I can't take Pepto Bismol because of Coumadin, but if NSAIDs irritate the condition, doesn't Pepto, since Bismuth Subsalicylate is related to aspirin. Or is this one of those meds to treat the symptoms, but not necessarily the disease?
by lisa in lj
Sat Jun 09, 2012 10:08 am
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: How Many of Us Have Other Autoimmune Issues?
Replies: 46
Views: 31152

So, Tex, are you saying that you don't believe the two I mentioned are autoimmune diseases? Both have a trigger, but don't many autoimmune diseases? Rheumatic Fever is caused by an autoimmune response to strep. They call it an antibody cross-reactivity. Pericarditis, in my case, was triggered by Ope...
by lisa in lj
Fri Jun 08, 2012 10:00 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Another Newbie - Cholestyramine
Replies: 8
Views: 5087

Thank you for the input/advice.

Some of you talk about healing. So is the expectation that at some point you are completely healed, or is it just remission and you're waiting for it to reappear?
by lisa in lj
Thu Jun 07, 2012 1:50 pm
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: How Many of Us Have Other Autoimmune Issues?
Replies: 46
Views: 31152

I know I'm late to the poll, but I have/had 3. LC, plus two that I don't think are on the list - Rheumatic Fever and Recurrent Acute Pericarditis.
by lisa in lj
Thu Jun 07, 2012 1:28 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Another Newbie - Cholestyramine
Replies: 8
Views: 5087

Another Newbie - Cholestyramine

After years of ignoring frequent, soft bowel movements, it got to where I couldn't ignore it any longer. I have some pain occasionally, but not near as severe as many people seem to have. Anyway, I had a colonoscopy a few weeks ago and it was fine. However, the biopsies showed lymphocytic colitis. I...

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