Search found 12 matches

by hjonsey
Fri Aug 24, 2012 5:11 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Well due to the fact i have had so many abdominal surgeries and each one took more work and took much longer than normal, they know I will be a mess inside if they cut me open. I dont blame them being hesitant, but to flat out deny me does suck. I had a cat scan today, with dye. Brain and full abdom...
by hjonsey
Wed Aug 22, 2012 12:44 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Thanks Tex! I am really enjoying all this information. There is very little info out there online, you guys have it all and I am thankful I found you :) Also Good to know not to be discouraged if there is no change after a few days of being on the diet. And thank you for the abbreviation list, that ...
by hjonsey
Wed Aug 22, 2012 8:03 am
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Awesome, I will def keep that in mind when buying anything!
by hjonsey
Wed Aug 22, 2012 7:48 am
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Nice to meet you Jenny! After my endo became so bad, I did have a partial hysterectomy to help with the pain (removal of uterus only) Sadly, this didnt help much, but I do have to say not having a period anymore is awesome, I only get pain from ovulation and the endo thats abundant in my system. As ...
by hjonsey
Wed Aug 22, 2012 7:45 am
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Oh I think I figured it out...Constipation and Diarrhea correct? As I continue reading, I do have another question. When you all speak of feeling great going gluten free, then something sneaking past you and becoming ill again, is this usually a stomach upset? I don't tend to have any upset stomach ...
by hjonsey
Wed Aug 22, 2012 3:40 am
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

*deep breath* Thanks Gabes. Ill just keep reminding my self there IS going to be a time where I feel better. To wake up in the morning pain free and symptom free would be so amazing. Ill make that my drive to have patience. I was wondering if you could help me out with some definitions. The ones I k...
by hjonsey
Tue Aug 21, 2012 6:04 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

HI Leah :) They just did the IgA in the last blood draw I had, I will know that answer soon I hope. Maybe what I will do is try to eat gluten free if only for a couple days this week to see if I feel different at all. Is that a good average of days to test it out, or does it take more to feel any ch...
by hjonsey
Tue Aug 21, 2012 5:44 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Thank you for that link! Another thing pointing to celiac. I was taking the Vit D2 but honestly, i cant even take any vitamins right now. Even my daughters MVI kills me. It gets me to the point of being immobile the pain is so bad. Until I can figure out why, I really cant chance taking them. The co...
by hjonsey
Tue Aug 21, 2012 5:18 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Nice to meet you (ps im a HUGE penguin fanatic, love your penguins!) Im not quite sure what they are looking for, at this point anything im assuming. *I have had an ANA done last year and this year, both came back negative. They originally thought it was Lupus with all my symptoms and blood in urine...
by hjonsey
Tue Aug 21, 2012 4:39 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Thanks Deb :) I have been reading and reading and I am noticing how rare this is. This may be one of the reasons I just got diagnosed now even though my colonoscopy and biopsy were in February. All it took was for a new NP to review my chart and notice the results. I am in a lot of pain, but mostly ...
by hjonsey
Tue Aug 21, 2012 3:23 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Oh and I also have sever endometreosis which makes the "tearing" so much more fun HA!
by hjonsey
Tue Aug 21, 2012 3:21 pm
Forum: Main Message Board
Topic: Collagenous colitis and constipation
Replies: 20
Views: 6488

Collagenous colitis and constipation

HI! My name is Hollie and I was recently diagnosed with collagenous colitis and also have a severe vitamin d deficiency (<3.7). Im 34yrs old. Now for about 2 years I have had symptoms all over the place. (Abd pain, fevers unexplained - its a constant 99-101, full body pain, rash on face plus many ma...

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