Search found 9 matches
- Sat Aug 08, 2015 3:44 pm
- Forum: Main Message Board
- Topic: Ketotifen Compounding Pharmacy
- Replies: 5
- Views: 1343
- Sat Aug 08, 2015 1:43 pm
- Forum: Main Message Board
- Topic: Ketotifen Compounding Pharmacy
- Replies: 5
- Views: 1343
Ketotifen Compounding Pharmacy
I have Mastocytic Enterocolitis (confirmed several years ago in colonoscopy via staining test). Despite strict diet and daily H1 and H2 blockers I still have massive D daily. Tried Gastrocrom and that made it worse. My doc recommends trying Ketotifen now. Ketotifen is not FDA approved. So I know mos...
- Thu Oct 04, 2012 8:19 pm
- Forum: Main Message Board
- Topic: Alkaline Phosphatase
- Replies: 7
- Views: 2627
- Thu Oct 04, 2012 8:08 pm
- Forum: Main Message Board
- Topic: Alkaline Phosphatase
- Replies: 7
- Views: 2627
Thanks, Tex. My ALT, AST, bilirubin, calcium and phosphorus levels were all within normal range. But the gluten sensitivity may be the issue, as I probably had not been as vigilant in my diet as I have in the last month or so. So, I guess I'll try to keep my gluten diet in check more carefully and r...
- Thu Oct 04, 2012 7:43 pm
- Forum: Main Message Board
- Topic: Alkaline Phosphatase
- Replies: 7
- Views: 2627
Tex, I am taking Zyrtec and Zantac and Welchol for the ME. Plus I also take Singulair, Vytorin, and Dexilant (a proton pump inhibitor) and birth control pill. I am on a gluten free and casein free diet (I figured out several years ago that I couldn't tolerate those items long before I was ever diagn...
- Thu Oct 04, 2012 5:32 pm
- Forum: Main Message Board
- Topic: Alkaline Phosphatase
- Replies: 7
- Views: 2627
Alkaline Phosphatase
I was diagnosed with Mastocytic Enterocolitis a few months ago. My blood tests from my annual checkup last week showed an elevated Alkaline Phosphatase level (212, normal range is 38 - 126). This is the third year in a row that my alkaline has been elevated (slowly increasing each year). My internal...
- Fri Sep 07, 2012 1:26 pm
- Forum: Main Message Board
- Topic: Newly diagnosed with Mastocytic Enterocolitis
- Replies: 7
- Views: 2671
Thank you all sooo much for your ideas. I think I will check out the low histamine diet and see if that provides any relief. And Zizzle many thanks for the info on getting the Ketotifen as my doctor had already told me I was going to have to get it from Canada if it came to that and sounds like you'...
- Thu Sep 06, 2012 6:18 pm
- Forum: Main Message Board
- Topic: Newly diagnosed with Mastocytic Enterocolitis
- Replies: 7
- Views: 2671
- Thu Sep 06, 2012 4:53 pm
- Forum: Main Message Board
- Topic: Newly diagnosed with Mastocytic Enterocolitis
- Replies: 7
- Views: 2671
Newly diagnosed with Mastocytic Enterocolitis
Ok, here's my story: I am 33 years old. For years I have had problems with severe, severe diarrhea. Had a colonoscopy about 5 years ago and GI doc said I was fine and put me on Welchol. Welchol helped some but not nearly enough. In June I changed GI docs and had another colonoscopy. My stains showed...