Search found 9 matches

by marciejones10
Sat Aug 08, 2015 3:44 pm
Forum: Main Message Board
Topic: Ketotifen Compounding Pharmacy
Replies: 5
Views: 1343

Thanks, Tex. I've never heard of that but will sure check into it.
by marciejones10
Sat Aug 08, 2015 1:43 pm
Forum: Main Message Board
Topic: Ketotifen Compounding Pharmacy
Replies: 5
Views: 1343

Ketotifen Compounding Pharmacy

I have Mastocytic Enterocolitis (confirmed several years ago in colonoscopy via staining test). Despite strict diet and daily H1 and H2 blockers I still have massive D daily. Tried Gastrocrom and that made it worse. My doc recommends trying Ketotifen now. Ketotifen is not FDA approved. So I know mos...
by marciejones10
Thu Oct 04, 2012 8:19 pm
Forum: Main Message Board
Topic: Alkaline Phosphatase
Replies: 7
Views: 2627

Thanks Tex!
by marciejones10
Thu Oct 04, 2012 8:08 pm
Forum: Main Message Board
Topic: Alkaline Phosphatase
Replies: 7
Views: 2627

Thanks, Tex. My ALT, AST, bilirubin, calcium and phosphorus levels were all within normal range. But the gluten sensitivity may be the issue, as I probably had not been as vigilant in my diet as I have in the last month or so. So, I guess I'll try to keep my gluten diet in check more carefully and r...
by marciejones10
Thu Oct 04, 2012 7:43 pm
Forum: Main Message Board
Topic: Alkaline Phosphatase
Replies: 7
Views: 2627

Tex, I am taking Zyrtec and Zantac and Welchol for the ME. Plus I also take Singulair, Vytorin, and Dexilant (a proton pump inhibitor) and birth control pill. I am on a gluten free and casein free diet (I figured out several years ago that I couldn't tolerate those items long before I was ever diagn...
by marciejones10
Thu Oct 04, 2012 5:32 pm
Forum: Main Message Board
Topic: Alkaline Phosphatase
Replies: 7
Views: 2627

Alkaline Phosphatase

I was diagnosed with Mastocytic Enterocolitis a few months ago. My blood tests from my annual checkup last week showed an elevated Alkaline Phosphatase level (212, normal range is 38 - 126). This is the third year in a row that my alkaline has been elevated (slowly increasing each year). My internal...
by marciejones10
Fri Sep 07, 2012 1:26 pm
Forum: Main Message Board
Topic: Newly diagnosed with Mastocytic Enterocolitis
Replies: 7
Views: 2671

Thank you all sooo much for your ideas. I think I will check out the low histamine diet and see if that provides any relief. And Zizzle many thanks for the info on getting the Ketotifen as my doctor had already told me I was going to have to get it from Canada if it came to that and sounds like you'...
by marciejones10
Thu Sep 06, 2012 6:18 pm
Forum: Main Message Board
Topic: Newly diagnosed with Mastocytic Enterocolitis
Replies: 7
Views: 2671

I've been gluten free and dairy free for several years now so I don't think that that is the problem. Are there any tests for food intolerances or that just a process of elimination game?
by marciejones10
Thu Sep 06, 2012 4:53 pm
Forum: Main Message Board
Topic: Newly diagnosed with Mastocytic Enterocolitis
Replies: 7
Views: 2671

Newly diagnosed with Mastocytic Enterocolitis

Ok, here's my story: I am 33 years old. For years I have had problems with severe, severe diarrhea. Had a colonoscopy about 5 years ago and GI doc said I was fine and put me on Welchol. Welchol helped some but not nearly enough. In June I changed GI docs and had another colonoscopy. My stains showed...

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