MICROSCOPIC COLITIS SUPPORT

Hi, Tex. I'm so grateful you're still up. I used to take UltramER, but due to the LC, I wasn't absorbing it. So, I was hoping I could take Ultram. I have to take the brand name, because the generic caused severe leg pain, and strange nightmares. Thank you, Tex, I'll be so happy to be off the Oxycodo...

Tex, I need your help again. Is Ultram safe to take with LC? I began experiencing side effects from the Oxycodone around the 3rd week of July. Dizziness, depression, muscle and bone pain. I have been trying to wean myself off of it. I was only taking 2.5mg 3 times a day, but I can't believe how mise...

JLH wrote:http://www.tv2.no/v/717059/

https://www.youtube.com/watch?v=36b1bIkz1x4

Thank you for the links. I feel I have a lot of information now, for my DO.

Sydney

https://www.youtube.com/watch?v=bOekLFIvR7I I do have mine compounded (so far) but quite a few PP make their own from the tablets. You are welcome to join our PP LDN Facebook group even though it is for MC, mainly. If there are thyroid issues, the advice is to start low. I started 1.5 and will go t...

http://crystalangel6267.webs.com/multiplesclerosis.htm LDN Trust http://www.ldnresearchtrust.org/search/node/Multiple%20sclerosis http://www.ldners.org/ http://www.honestmedicine.com/about-the-book.html There really is waaaaaay too much, just Google. There is a You Tube video I want to find for you...

Are you on Facebook? Lots of good groups there. I am sure there are plenty of Yahoo groups, too. I just don't like that format. Francie (MS patient) was in hospice and got her life back with LDN. BRB with some MS links for you. Hi, Joan. Yes, I am on Facebook. I don't like the format on Yahoo, eith...

Hi, Tex. I agree-I think giving LDN is definitely worth a try. Thankfully, my DO is very open-minded when I ask to try a medication, and he will know the dose to prescribe. I've checked, and it only comes in a 50 mg. tablet, so I am going to ask him to prescribe a lower dose, and send it to a compou...

Sydney, check out Low Dose Naltrexone (LDN). First thing I Googled not necessarily the best. http://www.nationalmssociety.org/Treating-MS/Complementary-Alternative-Medicines/Low-Dose-Naltrexone Joan, Started thinking about the LDN. Any idea of the dose I should request? I thought, just because it d...

Mayo Clinic says no Ibuprofen, no Acetaminophen with LC. I have not been in remission for years so I haven't noticed an effect of taking the ibuprofen - I just always have watery D. Is it problematic if you take it all the time? Sydney and Jane, Acetaminophen (Tylenol) does not trigger MC symptoms,...

Sydney, check out Low Dose Naltrexone (LDN). First thing I Googled not necessarily the best. http://www.nationalmssociety.org/Treating-MS/Complementary-Alternative-Medicines/Low-Dose-Naltrexone I have a friend, whose husband also has MS-he takes LDN-has had some improvement in pain. But, we are bot...

http://theness.com/neurologicablog/inde ... t-cure-ms/

There isn't a diet that can cure MS.

Sydney

I am really glad that you have a good GI doc who is knowledgeable about LC, especially in light of your MS. Sounds like he's a keeper! Are you familiar with the Wahls Protocol? Dr. Terry Wahls, who has MS, went from not even being able to sit up in a wheelchair to biking long distances in five mont...

Hi Sydney, I am wondering... how long did you try a gluten-free diet? Did you make sure all sources of gluten were gone from your house, including wooden utensils, cutting boards, aluminum pans, cast iron, etc., that become impregnated with gluten and cannot be cleaned? How about supplements, hair ...

Theresa,
Thank you-gluten free diet didn't help me. Just being careful to stay low fat, low fiber kept my LC under control.
Mayo Clinic says no Ibuprofen, no Acetaminophen with LC.
And with MS-I do need pain meds.
And I can't drink red wine.
Sydney

Hi, Tex. I kind of suspected there weren't really any effective pain medications for people with LC. I guess I am back to where I started from before my MS was diagnosed. I was thinking recently, I'd rather not have been diagnosed, because the Rebif caused my LC, and I can't take the pain meds that ...