MICROSCOPIC COLITIS SUPPORT

Thanks to everyone for your advice and good wishes, I truly appreciate it. Suze - going to check out IKOR, sounds like my family could benefit from them. Tex - thanks for the advice, I am back on the bland diet and upped the entocort. Leah - I need to read about the Histamine/Mast cells trigger. Aga...

It's been awhile since I have posted anything mainly because I've been doing pretty good. I am maintaining my diet of gf/sf/df/ef, also taking 3mg of entocort daily with a lot of success until…….. Unfortunately, my mom, who is 86 and lives in NJ with the rest of my family, had an appendectomy early ...

I have never considered myself a high energy person. Since MC, the fatigue is constant.

I have fibromyalgia and hypothyroidism. Both diagnosed before MC.

Camie - sending you strength and prayers. Poor thing...

Me too Camie. That's exactly what I thought I had. No fun...

Great explanation on both sides (taking the med vs the damage of gluten) of this issue, very interesting. Sorry for you experience Tex.

As always, I get the best info and support on this forum. I so appreciate it!

Gabes - I also wanted to add that I take 8000 units of vit D everyday.

Tex, thanks for all the info. It never occurred to me that soaps and lip balms, etc could contain gluten or soy. I checked my lip balms, which I am addicted to, and they all contain soy. They are now in the trash. I will check on the soaps we use also. I will have my iron and B-12 checked as well. B...

My relapse was in January of this year. I have been on Entocort 9mg since then. I had the Enterolab test and I reacted to everything, gluten, dairy, eggs and soy and then a bunch of other stuff. I have been gf, df, egg free and soy free since the end of March. The D stopped sometime in Feb, once the...

Thanks sizzle. I was thinking there was something else wrong with me along with anyone who notices the tremors. Julie - thanks for the info. My next question was going to be, do they stop once you stop the medication? The tremors are scary. It has freaked me out so much that I go into a huge panic a...

Thank you sooo much Julie! While I am sorry you went through it, I am glad I am not alone.

Jan

Thanks Cathy.

I am going to my GI on Monday and I will ask him then. But wanted to see if anyone else experienced it.

Did anyone experience hand tremors/shaking while on Entocort?

Thanks, Jan

Entocort saved me from losing my mind! Working well for me while I weed out the many foods I can't eat.