Search found 18 matches

by MvdH
Mon Dec 23, 2013 5:45 pm
Forum: Main Message Board
Topic: Start entocort again?
Replies: 6
Views: 892

Thanks for both your reactions..!! I've been in remission since July. Ironic enough that happend when I was in Ghana (also the place were it all started;)). Had the diagnosis in Februari this year and started with Entocort/budenoside. Didn't work out so the dr. made me to start with prednison..and w...
by MvdH
Mon Dec 23, 2013 7:15 am
Forum: Main Message Board
Topic: Start entocort again?
Replies: 6
Views: 892

Start entocort again?

Hi, A month ago I thought (after being gluten and dairy free for 9 months with perfect results:)) that I should test if I really, really can't eat them. Well, guess what..worst idea ever, cause after two days it all started again. A week later it was kind of ok..but then, when I was in Spain for a p...
by MvdH
Thu Nov 14, 2013 1:59 pm
Forum: Main Message Board
Topic: cheese
Replies: 9
Views: 962

If you can eat soy...they have some 'good' soy-cheese in Holland. Doesn't look really Dutch so you can probably buy it in the US as well.. Next time i'll be in the grocery, i'll check out for the brandname:) And...don't know if you heard of nutritional yeast? Taste a bit (ok, even less then a bit, b...
by MvdH
Thu Nov 14, 2013 1:53 pm
Forum: Main Message Board
Topic: Still smiling after a big box of chocolate (with gluten:)!
Replies: 5
Views: 962

Thank you all, for your reactions...! And yes, i've to admit....you're all right (which I can say after I decided to eat some goatcheese as well) Pain, bloating and D since months, but ok..now I do know why I don't eat it anymore. Just praying that it wont cause n real flare up.. But again..thanks f...
by MvdH
Mon Nov 11, 2013 2:52 am
Forum: Main Message Board
Topic: Still smiling after a big box of chocolate (with gluten:)!
Replies: 5
Views: 962

Still smiling after a big box of chocolate (with gluten:)!

Hi, It's been a while since I post a message in this forum, and that definitly has something to do with the fact that my bowels are behaving the way to have to:)! I was diagnosed with MC last Februari, and from februari till july I had pain, D and the other stuff almost everyday. Had to use Entocort...
by MvdH
Mon May 13, 2013 10:40 am
Forum: Main Message Board
Topic: fecal fat
Replies: 19
Views: 2961

Maybe all nuts are my issue. I've been soaking & dehydrating macadamia & filberts & pecans, as they suggested at Enterolab. Maybe it's coconut as that's the milk I drink & use for a treat. I'm running out of options for foods because I had reactions to rice & oats..... Am I corr...
by MvdH
Mon May 06, 2013 9:22 am
Forum: Main Message Board
Topic: MC and travelling (to Africa)
Replies: 5
Views: 1769

MC and travelling (to Africa)

Hi all... I've got a question..which is maybe a little bit strange but maybe some of you do have advices:) By this time (been diagnosed with MC for 3 months ago) I'm still having an active inflammation (using Prednison now..and it's getting a bit better:))...but, my ticket to Ghana is allready booke...
by MvdH
Mon Apr 29, 2013 4:53 pm
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Hi Anne, Ha..no..i've been on entocort for 10 weeks (9mg a day) and still had fever, blood, pain and all the kind of inflammation. Didnt eat any gluten en dairy that whole time. So..the internist told me to start with Prednison..taking that now for 7 days but still doenst seems to work that much (we...
by MvdH
Mon Apr 29, 2013 11:39 am
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Hi Nancy, Thanks:) Ha..that acupuncture-treatment is called PERLA, but I just red that the Dr. who's treating me, used N.A.E.T as the base for this thing. So, I guess it's pretty the same. Allready thought something like that...guess it's pretty impossible to heal all this stuff only with acupunture...
by MvdH
Fri Apr 26, 2013 12:47 pm
Forum: Main Message Board
Topic: Quick question about Juicers
Replies: 3
Views: 1022

Ha.. I just bought an slowjuicer last week. Used to make an spinach, shrub selery, fennel, carrot, red beet smoothie with chlorella- or spirulina powder every morning..but did had stomach-pain after drinking every time (like, duh..all that fibres on an empty stomach) The slowjuicer i have now (Versa...
by MvdH
Fri Apr 26, 2013 12:30 pm
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Ah..I see. Guess it's something like the Loperamide we know here? And haha, yes..you're so right about that. I don't even believe that she actually knows what MC is about...especially after saying that 'changing in Crohn' thing. But to be honest...after reading a lot of topics over here..m starting ...
by MvdH
Fri Apr 26, 2013 5:37 am
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Hi Jennifer, ...When i read your message it feels like you having the same kind of questions about all that kind of different type of treatments. The problem is ofc that it's soo hard to find out what really triggers the pain, D and other anoying stuff. So..you're using Pepto and entrocort? Maybe a ...
by MvdH
Tue Apr 23, 2013 9:55 am
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Tex... Thank you so much for your quick response.. Think I'll call the doctor tomorrow to get some stool-tests..(they allready did that 4-5 ago (before MC was diagnosed) and they saw some rests of Shigella and E.coli..which made me pretty sick in Ghana. But, because they give me some metronidazol ov...
by MvdH
Tue Apr 23, 2013 6:58 am
Forum: Main Message Board
Topic: Don't know what to do?
Replies: 13
Views: 1672

Don't know what to do?

Hi all... Sorry for opening a new topic, but didn't know where to write else..so hope it's not a problem. I've got some questions about the medicine's, food and all the other things, cause for now..I'm a little bit lost i think. M diagnosed with MC for 2 months now (after to many trips around the wo...
by MvdH
Sun Mar 03, 2013 1:21 pm
Forum: Main Message Board
Topic: Budesonide - on vacation but in trouble
Replies: 9
Views: 1363

What sometimes does work for me is is to drink two cups of water (not hot, not cold..but in the middle, don't know the English word;)), with fresh lemon-juice when you wake up, wait for 20 minutes, eat two kiwi's and go out to run or walk (and all of that on an empty stumach)! Not a realy nice start...

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