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by Gloria
Wed Nov 24, 2021 1:04 pm
Forum: Information on Medications
Topic: Budesonide - Long term?
Replies: 17
Views: 2442

Re: Budesonide - Long term?

I have had MC for nearly 15 years and have taken budesonide almost the entire time. I wasn't able to reach remission by eliminating foods, even after getting down to 83 lbs. and consuming just five foods, three being meat, and the other two being mango and almond flour. I have many food intolerances...
by Gloria
Tue Jan 14, 2020 12:42 pm
Forum: Main Message Board
Topic: Histamine, Vitamin C, Zinc, and Copper — Gabes is Right On
Replies: 32
Views: 3812

Hi friends! I came on the board to look for the water-magnesium spray I've been making. I couldn't find it, so used a 4:1 ratio of hot water to Epson salts. I can't remember if the formula was three or four tablespoons hot water. While looking I came across this thread. Yes, Kari, I am still taking ...
by Gloria
Thu Mar 01, 2018 4:13 pm
Forum: Main Message Board
Topic: All Day Chemist requiring a prescription?
Replies: 2
Views: 818

All Day Chemist requiring a prescription?

I just tried to order Budez from All-Day Chemist. They no longer sell any packages larger than 90 capsules, so I placed an order for two 90 pill packages and one 60 pill package. When asked to provide my prescription, I left the field blank. My order did not go through, so I tried again. I received ...
by Gloria
Fri Dec 29, 2017 8:46 pm
Forum: Main Message Board
Topic: Get up-to-date Promethease reports for free
Replies: 1
Views: 594

Get up-to-date Promethease reports for free

Happy Holidays to everyone! You may have gotten the email below already. Updated reports are available from Promethease for free for previous customers. Note that this offer has a deadline of December 31. It may take longer than 5 minutes to get the report because of the demand. If you register with...
by Gloria
Sun Dec 10, 2017 7:50 pm
Forum: Main Message Board
Topic: High Vitamin D level
Replies: 0
Views: 500

High Vitamin D level

I recently had my annual blood test and the doctor included my vitamin D level in the testing. My vitamin D level was 105 and the doctor told me to cut my vitamin D supplementation in half. I'd been taking 4,000 IU per day, and am now taking 2, 000 IUs per day. I don't eat any dairy or any other foo...
by Gloria
Sun Dec 10, 2017 7:43 pm
Forum: Main Message Board
Topic: Drug Exposure and the Risk of Microscopic Colitis
Replies: 1
Views: 765

Drug Exposure and the Risk of Microscopic Colitis

I found this fairly recent article interesting. Forgive me if it's already been posted. https://link.springer.com/article/10.1007/s40268-016-0171-7 Notice in the chart listing the impact of drugs that one of the supplements having a high likelihood to cause microscopic colitis is Ranitidine or Zanta...
by Gloria
Sun Dec 10, 2017 7:17 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: How long can you stay on Entocort?
Replies: 3
Views: 1490

Welcome to the board, Amy! I was diagnosed ten years ago and have been on budesonide almost continuously since then. Each time I went off of it, I would relapse, in spite of being on an extremely restricted diet. I presently take 3 mg. (one pill) for three days, then no pill, then repeat the cycle. ...
by Gloria
Fri Nov 10, 2017 2:46 pm
Forum: Main Message Board
Topic: Bovine gelatin
Replies: 10
Views: 1148

Hi Linda, I'm doing pretty well, though I'm still taking 5-6 Entocort pills a week. My diet is limited with no vegetables, but I can have a little mango jam, mango sherbet and a slice of dried mango every day. I've also discovered that I can tolerate marzipan (almond paste) coated with a little bit ...
by Gloria
Fri Nov 10, 2017 11:05 am
Forum: Main Message Board
Topic: Is Compounded or All Day Chemist's Budesonide Encapsulated?
Replies: 8
Views: 1550

Compounded Budesonide

I'm sorry I haven't updated sooner. I had to finish creating a new website for my county genealogy society before the annual workshop tomorrow. I've been managing their website for thirteen years and it was time to redo it. It took a longer amount of time and learning than I expected. I just called ...
by Gloria
Fri Nov 10, 2017 10:08 am
Forum: Main Message Board
Topic: Bovine gelatin
Replies: 10
Views: 1148

Hi Louise, I buy Great Lakes gelatin powder because the manufacturer is about 7 miles from me. Here is their website: http://greatlakesgelatin.com/storefront/ They have some recipes on their website and more on Pinterest. I haven't made anything with it except plain gelatin sweetened with 1 tablespo...
by Gloria
Tue Nov 07, 2017 4:08 pm
Forum: Main Message Board
Topic: Tex
Replies: 18
Views: 2074

Wow - I'm just reading about your stroke, Tex. I'm so sorry that has happened to you. One of my worst fears is to get a stroke because you never know how it will affect you. It sounds like yours left your brain intact (thankfully!), but your right side has been affected the most. You are a fighter a...
by Gloria
Sun Oct 08, 2017 6:35 pm
Forum: Main Message Board
Topic: Is Compounded or All Day Chemist's Budesonide Encapsulated?
Replies: 8
Views: 1550

Hi Sunny, It's nice to see a picture of you! You look great! I don't know if we can get prescription drugs on Amazon, though I wouldn't be surprised if we can. What I found were empty enteric-coated capsules that the pharmacist could use to fill with budesonide. Tex, All Day Chemist does allow (and ...
by Gloria
Sat Oct 07, 2017 10:19 pm
Forum: Main Message Board
Topic: Is Compounded or All Day Chemist's Budesonide Encapsulated?
Replies: 8
Views: 1550

Thank you both for your replies. I checked on Amazon and I can purchase enteric-coated capsules through them. I wonder if the compounding pharmacy would have some on hand and use them if I requested them. I'll call the pharmacy on Monday and see what they say. I would need a prescription from my doc...
by Gloria
Sat Oct 07, 2017 4:01 pm
Forum: Main Message Board
Topic: Is Compounded or All Day Chemist's Budesonide Encapsulated?
Replies: 8
Views: 1550

Is Compounded or All Day Chemist's Budesonide Encapsulated?

Hi Everyone! It's been a while since I've posted. Not much new. I live a pretty normal life with my limited diet being my only unusual routine. I'm still taking Entocort at a dosage of 3 mg per day for three days, with 1/2 pill for the fourth day. I'm unable to reduce it further. I've been taking it...
by Gloria
Thu Jan 26, 2017 12:38 pm
Forum: Main Message Board
Topic: name brand Entocort no longer available
Replies: 11
Views: 2398

My copay for Budesonide from Walgreens has gone up from $132 for 90 capsules in 2016 to $311.38 for the same 90 capsules in 2017, a cost that is 2.4 times as much. I called a local compounding pharmacy to see how much it would cost for a compounded prescription. The pharmacist said that they cannot ...

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