MICROSCOPIC COLITIS SUPPORT

DJ, Thanks for easing my mind - I have read and reread over the very similar findings you posted just to try and make sure I did everything right which I did. I am not on any of those meds and I even stopped my ketotifen for 3 days prior to starting the test. My tryptophan as in mid range so no flag...

Hi, I have been on this journey since aug 2012 and have been helped by those in this group immensely. Had it not been for this group and the advice I rec'd about stopping yogurt and the histamine issue, I would have not gained the 10 lbs I have finally gained in the last 2 months nor feeling that th...

I started very slowly due to my sensitivities - .5 mg for almost a month then 1 mg for another month and now I am almost at 1.5 mg - I do have vivid dreams and do wake up early - which like the other poster isn't a bad thing as I am also now finally after 49 years a morning person!! my hubby loves i...

I have been on LDN since mid November but going very very slowly - only now up to 1.2 mg nightly - already my thyroid is not requiring as much medication - my hair has stopped falling out!!!

barb

HI Izzie, I have been taking LDN along with ketotifen since nov 12 - slowly building up my dosage. I am currently only at 1 mg of LDN with my 1 mg of ketotifen at night although I take ketotifen also in the am and mid day. I sleep like a baby at night at current dose. Vivid dreams - happy though and...

I decided to eat some tuna fish on gluten free bread that had yeast and vinegar in it! now I have massive heart racing but that's the only symptom although that was one of my main symptoms when all this started and ketotifen stopped it. Also had a banana along with some more p.butter. So now my hear...

THanks Tex - I did the tryptase blood test this morning and now trying to eat foods high in histamine - 2 pbutter flourless muffiins, 3 pbutter flourless cookies and a banana. Will be going back to take the trypase blood test once I react. I have heart racing all the time again now with certain food...

Hi ! Well my drs have finally taken my advice and are leaning towards mastocytic entocolitis with minor lymphocytic colitis but still aren't for sure. Don't want to do another colonscopy for staining so doing the tryptase, histamine panel, metabolic test and 51HAA testing along with CRP, complement ...

also one of my newest symptoms after eating is swollen glands on my neck?? anyone else experience this??

babs

Nancy, I didn't know I had histamine issues but was getting some tiny signs that occurred months after my diagnosis of MC - heart racing, hives, bump on gum after eating certain foods and I have always had oral allergy syndrome to birch it's just MC has made my sensitivities even stronger and more p...

agreed Jean!! had no idea the extensiveness of my issues without eating carbs. Will start adding in squash hopefully I can handle that!! Believe me I would more carbs if my gut could handle them!!! And don't know where else to get fat from - you would think 1 steak a day would be enough LOL!
babs

yummy! what are rutabagas - maybe I can try that next! so how do you roast them?? I am not handy in the kitchen at all hence the reason I probably am not eating a heck of a lot as I am picky and don't know how to make things taste good!!

babs

thanks sooo much leah - no wonder I only feel good after my nightly steak!! I decided tonight to try sweet potatoes instead of yam as I finally found 1 store selling them. No issues so far and ate them an hour after my steak. Will know tomorrow how they sit in me. Will try squash next for sure. I gu...

marie,
sorry to hear about your recent rash - good luck with the Benadryl!! Yes this group is a lifesaver for me as well.

Here's to a healthier 2014 may all our prayers be answered!!

babs

Hi DJ - wow sounds like you went through a tough time as well - I am lucky not to have GERD yet LOL! I did try carrots the other night but high in sugar so may bring back my candida but I may have to go there and start taking nystatin regularly so I can at least eat. Haven't tried squash yet but did...