MICROSCOPIC COLITIS SUPPORT

Just thought I'd update you since my last post in August. A lot has happened since then. It's now been 3 months since being abruptly stopped on the budesonide. In my last post, I had had a bad cold. Well, that did turn into bronchitis (with which the coughing cracked 2 ribs) and a sinus infection, f...

I've now been off budesonide for several weeks, after being stopped by my physician without tapering. I posted about the side effects I had including pretty significant muscle and joint pain. Most of that has resolved, thankfully, but I continue to have pain in my hands and sometimes in my feet and ...

I have more energy in the mornings and have better productivity then, but I'm in the bathroom many times before noon. Arg! Hard to get things done, and I don't go anywhere unless I have to in the mornings.

Thanks, Tex. I hope you understand I wasn't upset at YOU! I was upset because I knew so little about all this and apparently my doctor does not know as well. I realized the serious potential of withdrawing from this drug, and that I could possibly become very ill, even die, from those effects. I'm g...

Okay then. I was pretty upset when I read your post, Tex. You sound very knowledgeable about this illness and medications. I really know nothing, but feel that I am a lot more informed. I did call an advice nurse after I read your post, which was last Sunday night, and she looked up budesonide and s...

Thank you, Marie! All these years I never thought to look into a forum for my problems. I hope I can get information that I can't seem to get from the docs so I can talk to them about things in an intelligent way and ask questions I never think to ask.

Thanks, again!

Hi! I was just turned onto this forum by someone who also is on a Crohn's forum. I don't have Crohn's but do have collangenous colitis, diagnosed last August. Originally, I was diagnosed with lymphocytic colitis many years ago and was first put on Asacol. It didn't work for me. I was switched over t...