MICROSCOPIC COLITIS SUPPORT

Update: been taking cholestyramine (2 scoops/sachets) once pd 45 mins after main meal for x3 weeks or so; am able to take other meds 3 hours after.

Massive turn around within a couple of weeks.

Cholestyramine in the game-changer for me.

Thanks Tex!

Cheers
Paul

Not at all, Tex. Thanks for everything. You've given me the motivation to pursue the "cholestyramine plus" route and to keep at it meticulously for a sustained period, and I really appreciate that. I think my GI is pretty wise, and her wisdom is reinforced by yours and that of this group. ...

Hi Tex, Unfortunately, I lost my copious notes I made few years ago on alternative treatments. I understand now the dangers of biologics. But what about drugs like humira (infliximab or adalimumab)? Unlike biologics, these are not injectables. Are these a less drastic option--ie would you need to st...

Hi Tex, My GI is seemingly resistant to putting me on a biologic so I continue the same old regime--budesonide + mesalamine + cholestyramine + pepto bismol + imodium. Here's the thing. Even if I turn this flare around, this treatment will always be tentative, anything can tip the balance. At the mom...

Paul, As you've probably already seen in the newsletter article by now, you can take meds 1 hour before taking cholestyramine. And if you cheat a little on the other side, and take a med 3 hours after taking cholestyramine, it probably won't have an unacceptable effect on the normal absorption of t...

Thanks as always, Tex. I'll be sure to look up the info you supplied on BAM in a mo. I do think I have an element of BAM because, from past usage of cholestyramine, it can prove quite useful, particularly if I take it within 30 mins or so of eating my main meal(s), as advised by a fellow forummer. D...

Hi Tex, I hope you are well. Didn't want to start a new thread, so joined this one! I have been using budesonide + lialda for a couple of years but the impact is wearing off. Cholestyramine can help but it is too difficult for me to take regularly as it interferes with meds I take for other conditio...

Good to know, Tex. It seems that 5000 iu a day works for both of us, though I'm raising my dose a little and will get my levels checked at an appropriate point. I hope you're thriving. Best, Paul PS I have been taking mesalamine (4 tabs) and budesonide (2 tabs) together for four months and it has re...

Hi Paul good to meet you Thanks for your insight and this info i will check it out. Ive seen similar articles regarding d3 . My Dr doesnt want me to take d3 anymore as i had a 'high' count . Im still taking but only 1000iu. I was only taking 4000 and my score was 196nmol which is about 80ng i think...

I've been taking 5000 iu since my diagnosis of celiacs/MC when my d3 was around 16 ng/ml. Interestingly, my level now remains constant at about 55 ng/ml. Dr John Campbell has just reviewed (May 15 2023) new research that indicates significantly higher levels are beneficial (he personally takes 8000 ...

Thanks Tex. Not sure budesonide works for me much. Am trying.

P

Any time I come on here vaguely triumphant, MC leaves me humbled with my tail between legs. Again and again.

I soiled my bed without even knowing it until I got out of bed.

I despise this condition.

Next stage? I don't know. Mesalamine?

Cheers
Paul

Doing well, Tex. Hope you are too.

Cheers,
Paul

Hi all, It's been a while. I thought I would leave this here. By chance, I have been taking NMN (Double Wood brand, 250 mg per day) for a few weeks, for general health reasons, but I also came across this study on mice: https://pubmed.ncbi.nlm.nih.gov/36105890/ Early days, of course. I'll report bac...

Great to hear Tex. I have been well. Just got over Covid, which was not a problem, thankfully--just chills and a slight cough for a few days.

Cheers,
Paul