Search found 11 matches

by sjbruce
Mon Nov 25, 2013 7:00 pm
Forum: Main Message Board
Topic: CC and Autonomic Dysfunction, my story
Replies: 9
Views: 1434

Thank you Leah. My Lyme specialist also recommended a gluten free diet today. So, all signs say "yes"!
Difficult week to start though, with Thanksgiving!
by sjbruce
Sun Nov 24, 2013 8:53 pm
Forum: Main Message Board
Topic: CC and Autonomic Dysfunction, my story
Replies: 9
Views: 1434

Thanks Tex, for all the information and support. I'm going to read through it again tomorrow when I'm not so tired from the Lialda.
It sounds like it's more and more worth giving up the gluten!

:neutral:
by sjbruce
Sun Nov 24, 2013 4:49 pm
Forum: Main Message Board
Topic: CC and Autonomic Dysfunction, my story
Replies: 9
Views: 1434

Thank you Leah and Tex! I have so much to learn. I'd given up dairy, but the day symptoms returned this time, I had a small piece of my daughter's homemade birthday cake which had whipped cream in the frosting. Gave it up again, but symptoms remain. I've never felt good after using soy, and have bee...
by sjbruce
Sun Nov 24, 2013 3:00 pm
Forum: Main Message Board
Topic: Good bye to yogurt hello rice cereal - BAD CHOICE!! HELP!!
Replies: 42
Views: 5567

Carol I enjoyed your reply and found it very encouraging. As a newcomer here, I appreciate the "long view" very much, as well as the support and hope.

Thanks!
by sjbruce
Sun Nov 24, 2013 1:42 pm
Forum: Main Message Board
Topic: CC and Autonomic Dysfunction, my story
Replies: 9
Views: 1434

CC and Autonomic Dysfunction, my story

Hi all! New here so bear with me! I had symptoms, but relatively mild and not long lasting, for years before being diagnosed in 2007. I tried a short course of 2 meds the GI doc said "cured" 50% of people, no luck with me. Not sure what they were. So I've just "managed" it with a...
by sjbruce
Sun Nov 24, 2013 1:19 pm
Forum: Main Message Board
Topic: Dr. Briffa's Blog About The Flu Vaccine
Replies: 1
Views: 456

Thanks

Interesting, thanks. Yes, we can't abdicate our healthcare to doctors, only delegate with our minds active.
by sjbruce
Sun Nov 24, 2013 1:17 pm
Forum: Main Message Board
Topic: Advice, Opinions, and Musings...Entocort, Imuran, Adrenals
Replies: 15
Views: 2182

entocort

Entocort worked for me but caused severe anxiety, to the point of begging for an injection of lorazepam from my pcp. Interesting how different people tolerate different things. The long term use of steroids seems to cause problems for most though it seems.

Good luck!
by sjbruce
Sun Nov 24, 2013 1:14 pm
Forum: Main Message Board
Topic: Got Cold Fingers? Drink Something That Contains Caffeine.
Replies: 17
Views: 2209

Caffeine

Wow, interesting! It also helps my low blood pressure but makes my CC worse. :sad:
by sjbruce
Sun Nov 24, 2013 1:12 pm
Forum: Member Success Stories
Topic: Proof that you can get your life back- health and stamina.
Replies: 16
Views: 7155

Yay!

That's very encouraging to hear! Thanks for sharing hope. :grin:
by sjbruce
Sun Nov 24, 2013 1:10 pm
Forum: Main Message Board
Topic: Attn newbies or anyone struggling....
Replies: 356
Views: 119544

Thanks

Thanks so much. It is indeed quite overwhelming to be dealing with this, newly diagnosed, or like me, newly taking it seriously!
by sjbruce
Sun Nov 24, 2013 1:03 pm
Forum: Main Message Board
Topic: Good bye to yogurt hello rice cereal - BAD CHOICE!! HELP!!
Replies: 42
Views: 5567

No carbs

No carbs didn't help me at all, made me VERY weak. I find that any amount of high fat food, starts my symptoms. Rice, particularly the rice in baby cereal, should be easily tolerated so I wonder too if it was the bacon? I know if I eat chicken skin (a favorite of mine when crispy) I always pay for i...

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