Search found 21 matches

by miriam
Mon May 04, 2015 11:06 am
Forum: Main Message Board
Topic: strange turn of events-- constipation
Replies: 3
Views: 1010

strange turn of events-- constipation

Hi all, I've been struggling with diarrhea, abdominal pain, and nausea for a long time (diagnosed w lymphocytic colitis, proctitis, and celiac disease) and have tried multiple treatments (diet and meds), with slow recent improvement, particularly with my diarrhea. On Friday, I had the worst abdomina...
by miriam
Fri Mar 27, 2015 10:16 am
Forum: Main Message Board
Topic: And here we go again! Mental prep for visit with my endo
Replies: 16
Views: 2972

Hi, my iron was quite low last year and my GI recommended a series of iron transfusions, which helped tremendously. Each one took about 15 minutes, with 30 minutes of observation afterwards. All of the iron supplements that I tried caused too much GI distress.
by miriam
Fri Mar 27, 2015 10:08 am
Forum: Main Message Board
Topic: Entocort tapering
Replies: 4
Views: 1033

Entocort tapering

Hi, I'm sorry, I know a lot has been posted about this in the past, but I couldn't find this specific information. I'm in the process of tapering my entocort (very slowly!)-- I've taken it for about a year and started tapering in December. I had significant withdrawal symptoms in December, so switch...
by miriam
Fri Mar 27, 2015 9:41 am
Forum: Main Message Board
Topic: Amitriptyline??
Replies: 9
Views: 1846

Hi, I took elavil a few years ago and also found that the 10 mg dose was too strong. I cut them in half, which significantly decreased my sedated feeling. It helped a bit, but I was amazed by how much more clearly I was able to think after I stopped them....
by miriam
Tue Mar 10, 2015 10:44 am
Forum: Main Message Board
Topic: lidocaine shots
Replies: 2
Views: 553

lidocaine shots

H, I was wondering if anyone has had any experiences with lidocaine shots. I'm supposed to have a skin biopsy tomorrow that will include 3 lidocaine shots in different parts of my leg. Does any know if this will trigger a flare?

thanks!
by miriam
Mon Dec 29, 2014 12:35 pm
Forum: Main Message Board
Topic: Antihistamine help
Replies: 8
Views: 1857

By the way, do antihistamines usually help with GI symptoms or just typical allergy ones? I don't have any typical allergy symptoms or itchiness, was just hoping they would help with some of the pain. Benadryl seemed to make my diarrhea worse, but Zyrtec is at least helping me sleep (and causing som...
by miriam
Mon Dec 29, 2014 12:33 pm
Forum: Main Message Board
Topic: Entocort tapering
Replies: 6
Views: 1027

Thanks, I've actually been eating gluten free for the past 11 years (I have celiac disease). It's a bit confusing because the symptoms I'm having now are different than my symptoms prior to taking entocort (different type of diarrhea and stomach cramping), which makes me think this is steriod withdr...
by miriam
Fri Dec 26, 2014 9:21 am
Forum: Main Message Board
Topic: Entocort tapering
Replies: 6
Views: 1027

Entocort tapering

Hi, I know there are a lot of posts on this topic, so I'm really sorry it this is repetitive. I was on entocort for 9 months and started tapering to 6 mg 11 days ago. I was ok at first, but have had diarrhea for the past three days. My doctor told me to just go back on 9mg, but I'd really love to tr...
by miriam
Tue Dec 23, 2014 11:35 am
Forum: Main Message Board
Topic: Antihistamine help
Replies: 8
Views: 1857

Thanks for the helpful advice- I now understand why the bentyl seems to be causing an increase in acid reflux. But, it is the first medication that seems to really help with my cramping and pain, without too many side effects. I react to most medications, but have been pleasantly surprised by this o...
by miriam
Sun Dec 21, 2014 12:47 pm
Forum: Main Message Board
Topic: Antihistamine help
Replies: 8
Views: 1857

Thanks! Do most people feel the results immediately or have to take it for a week or two to know if it's working? Also, has anyone had positive experiences with bentyl?
by miriam
Sat Dec 20, 2014 11:09 am
Forum: Main Message Board
Topic: Antihistamine help
Replies: 8
Views: 1857

Antihistamine help

Hi, I recently tried using Zyrtec to help with some of my symptoms, but it seems to be highly sedating (although sadly doesn't help me sleep at night)! Any recommendations for another antihistamine to try? My situation has gotten a bit complicated- I was recently diagnosed with proctitis (currently ...
by miriam
Thu Nov 13, 2014 5:51 pm
Forum: Main Message Board
Topic: Protein Powders
Replies: 9
Views: 1558

I just starting using a rice protein that I found in whole foods- NutriBiotic rice protein. The only ingredients are rice protein, sprouted brown rice, and natural vanilla flavor (they also have an unflavored one). It is gluten free and hasn't upset upset my stomach yet (although doesn't taste great...
by miriam
Wed Oct 15, 2014 10:40 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Help with diet and entocort!
Replies: 19
Views: 5577

The bizarre thing about the results is that I had blood IgG testing done a few months ago and it came back highly positive for casein. I know the tests measure different things, but I was surprised that they were contradictory. Interesting about the potatoes-- I've been eating russet potatoes daily ...
by miriam
Tue Oct 14, 2014 8:01 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Help with diet and entocort!
Replies: 19
Views: 5577

Hi, I'm pasting my results below: Food to which there was no significant immunological reactivity: none Food to which there was some immunological reactivity (1+): milk Food to which there was moderate immunological reactivity (2+): Rice Cashew Walnut White potato Sesame Seed Food to which there was...
by miriam
Tue Oct 14, 2014 4:19 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Help with diet and entocort!
Replies: 19
Views: 5577

Hi, thanks for your help! I actually did the enterolab testing before I got your responses and the results came back positive for everything (I did the vegetarian panel). I'm having trouble wrapping my head around these results-- that my system can't tolerate any major food group. Any suggestions on...

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