Search found 11 matches

by ccruicks@shaw.ca
Sat Mar 01, 2008 6:44 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi GreenGirl, I think I managed a total of 3, maybe four hours of broken sleep each night for the last three days and boy am I bushed! The pattern for me so far has been to go to the bathroom after 3 days with an intense urgency. This isn't a good feeling either followed by fatigue, but better than ...
by ccruicks@shaw.ca
Wed Feb 27, 2008 8:42 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi GreenGirl, After about a week on Entocort the D has stopped and now I'm experiencing the opposite and am having a tough time with that. I increased my fibre. I'm on 9 mg. of Entocort per day and i'm wondering if I cut down to 2 tabs a day, if it will give me some relief, not that I want the D. to...
by ccruicks@shaw.ca
Sun Feb 24, 2008 6:23 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi GreenGirl, Shirley and Tex, Thanks for the helpful feedback and support. The Entocort continues to work, but I'm feeling a bit sleep deprived. Also am very constipated for a change. I'm eating healthfully and drinking lots of water. Hopefully my lazy gut will kick in. Tex will the Entcort rebuild...
by ccruicks@shaw.ca
Fri Feb 22, 2008 10:24 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

P.S. GreenGirl,
I was previously on Asacol X8per day. The tablets passed through only partially digested.
by ccruicks@shaw.ca
Fri Feb 22, 2008 10:22 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi GreenGirl, It's somehpw comforting to know that someone else out there is going thru the same sh___. I feel much stronger, but still out of sorts, balance wise. I'm actually experiencing constipation for the first time in years. I notice that my body chemistry is changing. I feel and smell differ...
by ccruicks@shaw.ca
Fri Feb 22, 2008 9:25 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi GreenGirl, The Kenwood Chef and cow sounds have ceased emanating from my gut after about a week on Entocort-truly amazing! My doc has me on a three month supply. Then I don't know what ... Like you, I'm having major sleep problems, night sweats followed by chills, and my brain feels a little swol...
by ccruicks@shaw.ca
Tue Feb 12, 2008 6:16 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

ErinD
HI Erin,
Just rereading the posts.
My doc is starting me on Entocort. Would you mind letting me know about your experiences with this drug?
Thanks.
Cheryl
by ccruicks@shaw.ca
Tue Feb 12, 2008 6:13 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

It looks like I'm going on Entocort. Has anyone gone this route before? If so, what was the effectiveness and for how long?
Were there any noticeable side effects?
My doc tells me that I won't gain weight or develop a moon face. Will it affect my sleep? moods?
Cheryl
by ccruicks@shaw.ca
Mon Feb 11, 2008 2:12 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Thanks friends. The Immodium X8 per day has not helped one iota, nor has the ratio codeine, except to ease the cramping, which us not what it's intended purpose is. I hate waking up to this pain and having to go to the toilet during the night. Wayne suggests a gluten-dairy free diet may be the only ...
by ccruicks@shaw.ca
Thu Feb 07, 2008 8:32 pm
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Hi Pat, Thanks for welcoming on board. Other problems/complaints include abdominal cramping and an aching pain on the right side that wears me down. It feels like menstrual cramps. I'm up thru the night. It seems like as soon as I get ready to settle down for the night, then my guts start to act up,...
by ccruicks@shaw.ca
Thu Feb 07, 2008 3:23 am
Forum: Discussions on Treatment Options Using Diet, and/or Medications
Topic: Remicade to treat collagenous colitis
Replies: 43
Views: 12471

Remicade to treat collagenous colitis

I've been on medical leave for a year and I miss being an elementary teacher and being able to live a normal life. I have had the big D ruining my life for over 30 years. Am 54 now. My doc informs me that Remicade won't do the trick.
What's a girl to do???
Cheryl

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