Search found 8 matches

by coffngrl
Wed Apr 08, 2015 2:59 pm
Forum: Main Message Board
Topic: List Of Recommended Doctors
Replies: 151
Views: 117671

Found one!

I found one: Charles F Barish of Wake Gastroenterology in Raleigh, NC. He treats numerous MC patients and other IBDs and is very sympathetic to the plight of us Potty People, unlike my last doc, who was like 'well, you can't stay on Budesonide. I can refer you...' Turns out I can stay on the Budeson...
by coffngrl
Wed Feb 04, 2015 12:30 pm
Forum: Main Message Board
Topic: Possible success story
Replies: 10
Views: 1404

Update

So all was ticking along nicely until I had a server error and ended up with gluten in a dish I ordered, unbeknownst to me until that night when my belly sounded like an approaching thunderstorm, and I was rocketing out of bed to dash to the loo. I'm completely off the Uceris now, but recovery from ...
by coffngrl
Tue Dec 30, 2014 11:29 am
Forum: Main Message Board
Topic: Possible success story
Replies: 10
Views: 1404

Possible success story

I'm too superstitious to put this in the "member success story" thread. After relapsing following my course of Budesonide, and failing to convince my GI doc that diet could be a factor, I did a course of Uceris (to avoid nasty side effects of the Enterocort). The nice thing about Uceris is...
by coffngrl
Fri Oct 24, 2014 3:45 pm
Forum: Main Message Board
Topic: Newbie with a hopeless doctor
Replies: 18
Views: 3858

I had my outback adventure and had a splendid time. The plumbing worked to perfection, even when eating dehydrated backpacker food. I think it must be the healing waters of the southwestern hot springs. I'm glad I had the Uceris to get things largely under control before I left, but I haven't had su...
by coffngrl
Wed Oct 08, 2014 7:19 am
Forum: Main Message Board
Topic: Newbie with a hopeless doctor
Replies: 18
Views: 3858

Thanks Tex, Gabes. So Tex, since you seem scientifically-inclined, what constitutes healing and what is merely alleviation of symptoms, at a physiological level? If I put cortisone cream on a rash, and the rash disappears, isn't the skin healed? How is that different from the guts? Not trying to be ...
by coffngrl
Tue Oct 07, 2014 1:09 pm
Forum: Main Message Board
Topic: Newbie with a hopeless doctor
Replies: 18
Views: 3858

Thank you all for your help! Tex, I have no idea why doctors can't be bothered to do any type of research whatsoever. I told her when I saw her first that NSAIDs were a problem for me. I've never been able to take ibuprofen without massive stomach pain. Duuuuh! SCIENCE IS GOOD. Funny story - I calle...
by coffngrl
Mon Oct 06, 2014 12:20 pm
Forum: Main Message Board
Topic: Newbie with a hopeless doctor
Replies: 18
Views: 3858

Thanks for the advice. I'll ask my current doc about Uceris - never heard of that one! I'm not sure on the gambit about the fecal incontinence - it seems like karma could turn that one back around on me! :oops: As far as food, I subsist on my home made GF bread that's brown rice, sorghum and tapioca...
by coffngrl
Mon Oct 06, 2014 9:22 am
Forum: Main Message Board
Topic: Newbie with a hopeless doctor
Replies: 18
Views: 3858

Newbie with a hopeless doctor

Hi everyone, I'm so glad to have found this board and the wealth of information here. I'm a year into a celiac disease diagnosis (anniversary comes in two weeks!) and have been gluten free since the bloodwork came back off the charts positive. I stopped losing weight after going gluten free, but my ...

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