MICROSCOPIC COLITIS SUPPORT

Another point regarding Zizzles situation (and mine): My ongoing literature search came back with this brand new article today: https://doi.org/10.1016/j.jaad.2019.03.045 The article finds correlation between dermatomyositis and MC. This older article points to another such related correlation: http...

It’s been a while. I’ve been busy laying the last (for now) piece of my puzzle. This piece is UCTD, or more specific anti pm/scl antibodies. So I’m getting quite experienced in autoimmunity; collagenous colitis, diabetes 1, vitiligo, autoimmune hepatitis (very low grade) and UCDT with anti pm/scl. Q...

I have been adding sugar to my tea [...] Have you tried quitting all caffeinated drinks for several weeks? Coffee and tea are my main triggers besides gluten. This was hard to figure out because the time it took for the gut to heal. I also had to quit both coffee and gluten, neither one alone did t...

Hi, Jane I think you’re making good choices trying budesonide first, and then cholestyramine. I reacted very quickly to both. I went from 6-8 watery D’s a day to formed stools in 3 days when I first started on 9 mg Entocort. When I started tapering the Entocort, the stool quickly got looser, and I s...

As a general surgeon, I'm so used to researching and getting my information from truly reliable, scientific/peer-reviewed sources. now I'm having to adjust to relying on anecdotal information. I have a collection of a couple of hundred peer reviewed papers on MC, and there’s really not that big a d...

Hi, Jane I think you should consider that the gut inflammation is at the root of your daughter’s problems. I got MC when I was 28, and then came several (other) autoimmune conditions, among them diabetes 1 and low grade autoimmune hepatitis. MC causes leaky gut, and diabetes 1 and autoimmune hepatit...

I’m so sorry to read about this. But I agree that it’s a good thing that the diagnoses now are falling into place. IBS is not a good place to be with celiac disease, MC and/or bile acid malabsorption. I can’t add much to what the others have proposed, but I wonder why she’s on prednisone and why the...

I think it`s a general rule to use «the lowest effective dose». If 2 capsules (or 1) works, I can`t see any reason to use 3 capsules. I also think a low dose (one or two capsules) can be used for a longer period of time if necessary. But you should talk to your doctor about it.

— Tor

Sorry to hear about your bad symptoms, BarbieAnn. I hope your doctors have given you a thorough check up. Up to 40 % of MCers have other autoimmune conditions as well. Due to your nausea I think at least your thyroid hormones and liver enzymes should be checked. But I’m no expert, except that I have...

Have you tried cholestyramine or colesevelam, BarbieAnn? There are several threads about it in here, and it did wonders for me before I figured out all my main triggers. I used up to 16 g (4 packets a day) of cholestyramine. There are several ways of action for the bile acid binders. First of all th...

Have you had celiac disease ruled out, Al? MC is 50 times more prevalent in celiacs than in the general population. Celiac or not: Are you on a gluten free diet? Do you take any medications or supplements? Have you tried quitting coffee for more than two weeks? What did the trick for me, was quittin...

I found this book quite interesting, Aphrodite: https://www.amazon.com/Anticancer-David-Servan-Schreiber-MD-PhD/dp/0452295726/ref=sr_1_1?s=books&ie=UTF8&qid=1513504447&sr=1-1. I read this out of general interest and good reviews. What I liked about the book, was that the author backs his...

Magnesium deficiency is a good bet. But I would advice you to check your blood sugar levels, just to be sure. Excess peeing is a staple symptom of diabetes.

With MC you are probably predisposed for autoimmune diseases. I got diabetes 1 a couple of years after I got CC.

-- Tor

When it comes to gluten and peripeherial neuropathy, it seems to be well documented by now. But most of the documentation comes from the neurologist Hadjivassilou and the gastroenterologist Sanders. Anyway, they seem to be producing very strong evidence like this more recent research article: https:...

https://www.drugs.com/sfx/questran-side-effects.html I think this list applies to most bile acid binders: https://www.drugs.com/sfx/questran-side-effects.html I think most side effects are quite rare, but I’ve seen reports of nausea on this list. I experienced lower cholesterol levels and increased...