Search found 112 matches

by armstrongpilot
Sat Apr 10, 2021 7:05 am
Forum: Main Message Board
Topic: Back and still struggling
Replies: 4
Views: 255

Re: Back and still struggling

Hi tex! Yessir. I take 2 chloestrimine packets a day. They absolutly help in keeping the watery d away....but not the soft serve d. It seems I'm either over constipated or d....I can't ever seem to get the middle. My sons speech therapists dad has lc and he was able to get better with the right amou...
by armstrongpilot
Fri Apr 09, 2021 7:05 pm
Forum: Main Message Board
Topic: Back and still struggling
Replies: 4
Views: 255

Re: Back and still struggling

Budesonide at 3 pills seems to stop me up to the point of cant go at all. 1 pill seems to not help at all....2 is a mixed bag of c and d. I can never find a happy medium. This is why I'm trying mesalamine now...altho 3 weeks in and no difference at 2 pills a day. Doc said it could take 2 or 3 months...
by armstrongpilot
Thu Apr 08, 2021 5:44 pm
Forum: Main Message Board
Topic: Back and still struggling
Replies: 4
Views: 255

Back and still struggling

Hello everyone! Haven't commented in a while....but always reading thru the posts. My lc is in nuclear meltdown right now....no idead what set it off again. My current gi doctor told me that I'm a nice guy but there isn't anything else he is able to do for me. Long story short....im on mesalamine fo...
by armstrongpilot
Mon Aug 31, 2020 2:44 pm
Forum: Main Message Board
Topic: maybe a wierd question? Water??
Replies: 8
Views: 459

I am doing better. Talked with mayo clinic Dr who was well versed in mc. He said the same things I've come to expect....basically food doesn't play a big role and that leaky gut juncture don't make us intolerant to many foods. However he did recommend to me to take Fibre at bed time and then immodiu...
by armstrongpilot
Wed Aug 19, 2020 9:26 am
Forum: Main Message Board
Topic: New to Budesonide treatment + psyllium + hemorrhoid
Replies: 41
Views: 6483

what happens if we take immodium and the psyllium at the same time....? I'm currently doing immodium and pepto with constipation. Keeps me functional but not ideal.
by armstrongpilot
Wed Aug 19, 2020 7:14 am
Forum: Main Message Board
Topic: NEWBIE: Untreated MC for 12 years
Replies: 6
Views: 806

hi! Glad you are on here. I was 33 when diagnosed. I'm stuck in same boat as you....either its watery d or I take immodium and am constipated. Doctor kept wanting me to take fiber....always made it worse. Because his treatment didn't work he says i must have ibs......Tomorrow I am talking with a may...
by armstrongpilot
Fri Aug 14, 2020 11:40 am
Forum: Main Message Board
Topic: thinking about entero lab test
Replies: 1
Views: 185

thinking about entero lab test

thinking about taking the plunge. What are the tests that are recommended? I've been off Endocort for 3 weeks. Hopefully that won't skew results.


Are they super helpful?
by armstrongpilot
Thu Aug 13, 2020 12:18 pm
Forum: Main Message Board
Topic: Gi doctor frustrations.
Replies: 0
Views: 360

Gi doctor frustrations.

went to my gi today still trying to get relief. I've tried everything he has asked.....even when I knew it wouldn't help. Went a whole week no meds.....constant d. Then I tried a week with metamucil.....still constant d. Decided to go back to immodium so that I can at least function. He said that he...
by armstrongpilot
Mon Aug 10, 2020 12:32 pm
Forum: Main Message Board
Topic: new post...updates. looking for help
Replies: 18
Views: 992

I called them and it was very good. I am able to see their ibd specialist remotely on the 20th. Heres to hoping I can get some relief.
by armstrongpilot
Mon Aug 10, 2020 8:41 am
Forum: Main Message Board
Topic: maybe a wierd question? Water??
Replies: 8
Views: 459

maybe a wierd question? Water??

as you all know my lc is in a huge flare. One change is that I bought a new house a few months ago. It is awesome but on a different water supply. I am also a fish tank hobbiest. I have 5 tanks. In my new house many of my fish started dying....did water tests and my water ph is between 5.9 and 6.0. ...
by armstrongpilot
Sat Aug 08, 2020 2:24 pm
Forum: Main Message Board
Topic: new post...updates. looking for help
Replies: 18
Views: 992

I feel like I will keep posting for a while as I go through this....helps to talk with people that have similar experiences. Today has been a very bad one....all day with episodes. Even just sitting on couch i can feel my guts shifting and gurgling. I'm all out of ideas. Only eating two safe foods a...
by armstrongpilot
Fri Aug 07, 2020 5:20 pm
Forum: Main Message Board
Topic: new post...updates. looking for help
Replies: 18
Views: 992

with an already severely limited diet.....the thought of new sensitivities is alarming. How do we stop this?
by armstrongpilot
Thu Aug 06, 2020 6:34 pm
Forum: Main Message Board
Topic: Both collagenous and lympocytic
Replies: 2
Views: 164

I agree. It also sucks when having issues and the doctor is like "ill see you in a month". Or they want you to try something that hasn't worked for a longer time frame like it will magically change circumstances.
by armstrongpilot
Thu Aug 06, 2020 5:47 pm
Forum: Main Message Board
Topic: new post...updates. looking for help
Replies: 18
Views: 992

day number two back on cloyestrimine. Liquid d seems to be better....now it's long thin stool. Still tons of mucus....could this be c diff or something wierd like that? Im guessing that is an improvement. Waiting to see what tomorrow brings. It seems that what brought my remission years ago isn't do...
by armstrongpilot
Wed Aug 05, 2020 7:17 am
Forum: Main Message Board
Topic: new post...updates. looking for help
Replies: 18
Views: 992

after this morning I am going to have to try and go back to chloyestrimine. Had severe water d as soon as I woke up. Can't get anything done or be useful in this situation.

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