Search found 129 matches

by Lucy_B
Fri Feb 19, 2016 10:29 am
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: Age of onset?
Replies: 40
Views: 11265

Just seeing this thread! I feel your pain, Kim. It's been tough trying to get my family to understand the gluten thing, too. They just haven't the slightest clue where that pesky little substance resides, lol. It's been an extensive educational process for sure. I also fully understand the anger and...
by Lucy_B
Sat Dec 26, 2015 10:36 pm
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: Age of onset?
Replies: 40
Views: 11265

Hi, Kim! Welcome! If opioid medication eased your symptoms, you may do well with low-dose naltrexone (LDN) in addition to your diet plan. Keep in mind, though, that it definitely can NOT be taken with with any opiate medications. I've been using it for a couple of months now. Started out with capsul...
by Lucy_B
Fri Nov 20, 2015 1:37 pm
Forum: Main Message Board
Topic: New user recently diagnosed
Replies: 18
Views: 3931

Hi Lucy, sorry to hear you're in similiar situation. Of course stress and anxiety play a huge role, after I've stopped taking SSRI's I was in really bad condition with a lot of stress and anxiety and then GI problems developped like a thunder. I feel sorry that You haven't found better antidepressa...
by Lucy_B
Sat Nov 14, 2015 10:13 am
Forum: Main Message Board
Topic: New user recently diagnosed
Replies: 18
Views: 3931

Welcome, Michal! Sounds like you and I have a similar profile. I too developed LC after stopping an SSRI antidepressant (Prozac) and have struggled with digestive problems since my early 20's. I strongly believe that stress and anxiety have a huge role to play in triggering this disease. I've tried ...
by Lucy_B
Sat Nov 14, 2015 9:48 am
Forum: Main Message Board
Topic: Sensitization From Cosmetics!
Replies: 2
Views: 715

Do you have a soy sensitivity? I've found that many, many lip balms (especially the GF ones) contain soy. Maybe that was the culprit? Glad you figured it out!
by Lucy_B
Fri Nov 13, 2015 4:41 pm
Forum: Main Message Board
Topic: New to condition
Replies: 11
Views: 1476

So sorry for your diagnosis! It's definitely a frustrating journey, but you've hit the support jackpot with this forum. :) Glad to hear that you are looking toward diet to aid in healing- it will make everything else that you do much more effective. I, too, have been resistant to budesonide and am g...
by Lucy_B
Tue Nov 10, 2015 9:29 am
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: Age of onset?
Replies: 40
Views: 11265

Wow...that's an insane amount of time! Can't believe no one caught it sooner- yikes. Teaching hospitals are hands down the best places to go for medical answers, in my opinion (I speak from experience). They really care about what's going on and will actually take the time to figure things out. Glad...
by Lucy_B
Sat Nov 07, 2015 3:08 pm
Forum: Main Message Board
Topic: An update on my LDN therapy: A Miracle? An unequivocal YES!
Replies: 99
Views: 66736

Thanks, everyone! I think it was a blood sugar situation, as I also had the shakes and things improved as I continued to eat. In hindsight, I probably didn't have enough for dinner the night before. I didn't have the same experience this morning after using the same dose of LDN last night so am chal...
by Lucy_B
Fri Nov 06, 2015 11:53 am
Forum: Main Message Board
Topic: An update on my LDN therapy: A Miracle? An unequivocal YES!
Replies: 99
Views: 66736

Quick question for you LDN veterans- did anyone ever experience heart palpitations with dose increases? I've recently gone from 1 mg. to 2 and woke up around 4:00 a.m. this morning with a racing heart (and lots of energy :) I'm assuming this is part of the endorphin rush but just wanted to make sure...
by Lucy_B
Wed Nov 04, 2015 1:07 pm
Forum: Main Message Board
Topic: LDN and Imodium (plus leakage- oh my!)
Replies: 7
Views: 1707

Thanks, everyone! I'm really glad to hear that Entocort has been successful for you, C and C. My main concern is that I don't want it to exacerbate overgrowth of yeast or bad bacteria (as I suspect I may be dealing with a bit of dysbiosis, not sure). Do you both take probiotics along with the budeso...
by Lucy_B
Mon Nov 02, 2015 1:36 pm
Forum: Main Message Board
Topic: LDN and Imodium (plus leakage- oh my!)
Replies: 7
Views: 1707

Thanks, Tex. I guess I feel like it's not the first line for me, since I've tried several other things already- Imodium (great for D, does nothing for inflammation); Lialda (caused WD, even with Imodium); and Pepto Bismol (caused horrible abdominal cramping and WD). I've also experimented with diet,...
by Lucy_B
Mon Nov 02, 2015 11:07 am
Forum: Main Message Board
Topic: LDN and Imodium (plus leakage- oh my!)
Replies: 7
Views: 1707

LDN and Imodium (plus leakage- oh my!)

Hi, folks! Does anyone know if it's a problem to take Imodium in conjunction with LDN? They both work on opiate receptors and I've read conflicting opinions online about combining them. My doc suggested going off the Imodium (I guess mainly to see if the LDN will work on its own), but my D is back w...
by Lucy_B
Fri Oct 30, 2015 12:56 pm
Forum: Main Message Board
Topic: Salicylate sensitivity?
Replies: 10
Views: 1161

Wow...that makes so much sense. And yep, I'm pretty sure that's exactly what happened here. I haven't cooked with gluten, dairy, or corn in ages, but I would still have those foods in small amounts when eating out, socializing with friends, etc. I had no idea I could be setting myself up for worse s...
by Lucy_B
Fri Oct 30, 2015 10:17 am
Forum: Main Message Board
Topic: Salicylate sensitivity?
Replies: 10
Views: 1161

Thanks so much, Erica and DJ! I am extremely glad to hear that you're both doing better by following the protocol. And I agree that I need to embrace this thing and be patient. Just trying to get to that place emotionally. ;) I think I got so frustrated because I received those awful Enterolab resul...
by Lucy_B
Thu Oct 29, 2015 9:00 am
Forum: Main Message Board
Topic: How terrible is conditioner that contains gluten...?
Replies: 13
Views: 1419

Omg, I LOVE Arbonne. One of my friends used to sell it. But yeah, I can't afford it unless I throw a hostess party. ;)

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