MICROSCOPIC COLITIS SUPPORT

Thank you Tex that was very helpful and informative. Much appreciated

My mum has been given a 7 day 40mg daily dose of prednisolone . What would the correct tape off regime be. Stopping from full dose doesn’t seem a good idea which is what my mums GP has prescribed, I wanted to talk to her about slowly reducing but wanted to know what is right before arguing my point ...

Mums suffering severe bloating, belching , loss of appetite and weight loss with watery diarrhea. Does any or all of this sound familiar

My mother has been diagnosed with collagenous colitis some 15 plus years ago. She has had a recent bout of severe diarrhea, her calprotectin is 965 which I didn’t think was possible with microscopic colitis . She is also bloated , very windy and a loss of appetite and weight loss . She awaits a hosp...

Erica I will pass the message on about hcl . I'm sure at some point I was taking them myself. Thankyou

Tex I appreciate your input (as always). Thankyou for the explanation. It's been years since my mum has had a flare so just wanted to know how stomach bloat tied in. Hope you are keeping well yourself.
I see your still doing the good work in this group. Thankyou

Hello all its been quite a long time , I hope I find you all well. I'm back to ask a question for my mum whose had colagenous Colitis for 20 odd years. In the last month or so her diarrhoea has got worse and she is complaining about stomach bloating (which Zantac seems to help with). I was wondering...

Hello all I hope I find you well. I'm at a loss, I was told I had Crohns and was given steroids over a year ago now, I'm still on a maintenance dose now. A repeat gastroscopy and capsule endoscopy show no inflammation at all, however as far as the diarrhoea goes it's business as usual on a daily bas...

Hello all hope I find you as well as can be expected . I have tested with elavated levels of Tryptase, which kind off may reinforce a finding from my colonoscopy. The doctor is repeating the test as he considers it spurious. As a reminder I have have Crohns like inflammation in small bowel and also ...

Gabes I have always been happy to try new vitamins and minerals, do you think that without testing they would be safe to take for the kidney. I've got so many problems , including pancreas but because they are a new experience to me I'm naively I'm bliss with them, however my father had complete ren...

Hi Gabes I have a question. You say that a mast cell issue had caused you kidney problems, do you think firstly that it can also cause a pancreatic issue. Also once you sorted your mast cell problem did your kidney function return to normal? Many thanks jim

Hi Gabes hope your well, I'm awaiting my results for mast cell activation syndrome which were done on my recent endoscopy. I will have to look into what is available in the UK. Hope you are keeping well. Tex I currently have Doctors Best Chelated would you say these are OK for the time being and if ...

It's quite strange you should mention magnesium . I'd noticed over a period of a month that my urine became dark or fluorescent at a certain time of the day, it was suggested to me that it may have been a vitamin or mineral I was taking, so I stopped the lot. On top of the D3, Chelated Magnesium and...

Hello all I hope I find you all well, while awaiting the results of my latest endoscopy which I've been told they will be looking at Mast cell activation syndrome and several other things , I noticed that I was urinating less and had some more pains around my abdomen. I therefore went to hospital to...

Hello all hope I find you in good health. I have today been informed that I have low fecal elastase and will be started on pancreatic enzymes soon. My elastase is 172. im still trying to digest this on top of everything else (Crohns etc) , I'm still waiting for a 24hr urine test plus the result of m...