Search found 15 matches

by missbutterfly
Thu Jul 19, 2018 11:47 pm
Forum: Main Message Board
Topic: Brainstorming time- huddle up, I need your thoughts.
Replies: 10
Views: 881

Hi Carol - you mentioned eating sweet potatoes. I am also doing an elimination diet; sounds a little different from yours, but I bought sweet potato chips and they gave me some GI issues. Also agree that an abrupt change can cause problems...when I started this diet, I felt awful, anxious, foggy, an...
by missbutterfly
Wed Jul 18, 2018 4:50 pm
Forum: Main Message Board
Topic: Elimination Diet
Replies: 6
Views: 478

Thanks Gabe and Tex. IFM = Institute for Foundational Medicine. It's so strange to me that all inflammatory GI issues don't respond to the same treatment -- I would think inflammation is inflammation. Ughhh. I noticed there is a post about doctors who treat MC, but there was no one near me. Any othe...
by missbutterfly
Tue Jul 17, 2018 7:37 pm
Forum: Main Message Board
Topic: Elimination Diet
Replies: 6
Views: 478

Elimination Diet

Hi, Quick history..Diagnosed with lymphocytic MC 2 years ago. Initially took budesonide and it helped. MC came back and I wanted to try to control it with diet. Got enterolab results and cut out gluten and dairy and it seemed to help for a while. In the last 6-9 months, issues have gotten worse and ...
by missbutterfly
Wed Nov 09, 2016 9:25 pm
Forum: Main Message Board
Topic: Update and Enterolab Results
Replies: 9
Views: 989

Thanks for the info, Tex. I'll check out those breads you mention. Probably won't be eating alligator meat though :smile:
by missbutterfly
Wed Nov 09, 2016 7:34 pm
Forum: Main Message Board
Topic: Update and Enterolab Results
Replies: 9
Views: 989

Thanks Erica! Relieved that your numbers are similar to mine. The gluten one was a little shocking. What's funny is that I used to be such a carb, starch, bread and pasta person and didn't make the connection with gluten until I found this board. I'm totally fine with gluten free pasta - tastes almo...
by missbutterfly
Tue Nov 08, 2016 5:43 pm
Forum: Main Message Board
Topic: Update and Enterolab Results
Replies: 9
Views: 989

Wow - thanks Tex and Gabes, this is hugely helpful information. You guys are the best. Will keep you posted.
by missbutterfly
Mon Nov 07, 2016 6:18 pm
Forum: Main Message Board
Topic: Update and Enterolab Results
Replies: 9
Views: 989

Update and Enterolab Results

Hi all, I posted in May or June when I got my diagnosis and was put on budesonide for about 6 weeks. At first, I was fine, then the symptoms came back a few months later. Rather than calling my doctor, I tried going gluten-free and that has done the trick. Which makes a lot of sense in light of the ...
by missbutterfly
Fri Jul 08, 2016 6:35 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Thanks Tex!
by missbutterfly
Fri Jul 08, 2016 5:43 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Hi all,

A questions about taking budensonide for 3-6 months...Yes, this is very vain of me, but, since it's a steroid, I understand that eventually one gets that bloated face side effect if taking this long-term. Is this likely to happen if I'm on it for up to 6 months?

Thanks!
by missbutterfly
Wed Jul 06, 2016 7:17 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Thanks Gabes! I will check out that section. I'm so glad I found this board.
by missbutterfly
Wed Jul 06, 2016 6:48 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Thanks Tex. I do notice a difference between the lactose free milk and regular milk (symptom wise), but I'll keep what you said in mind. Not a big fan of the nut milks, but I had a coconut milk latte today and I think it can grow on me :)
by missbutterfly
Wed Jul 06, 2016 5:03 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Oh, also, I took a quick look at the Enterolab website and there seem to be a lot of tests to order. Is there one that's standard for people with MC?

Never mind - just read the part of the site that tells people with MC what to get. thx.
by missbutterfly
Wed Jul 06, 2016 5:00 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Ugh... disappointed to hear that 1) apparently my doctor doesn't know what he's doing and 2) I would have to be on budesonide for that long. I have to figure out what I'm going to do. I'd rather not take a steroid for so long (especially such an expensive one). Thanks everyone for the wisdom and gui...
by missbutterfly
Wed Jul 06, 2016 7:48 am
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

Hi Martha, Thanks for your reply! The enterolab test sounds like a good idea. I'll look into that. I didn't think a month on budensonide sounded like enough either, although I'm not enjoying the side effects (starving all the time). I know I have to eliminate dairy, and I will also try no-gluten. Th...
by missbutterfly
Tue Jul 05, 2016 9:04 pm
Forum: Main Message Board
Topic: 2 more weeks of budesonide (sp), then what?
Replies: 13
Views: 1096

2 more weeks of budesonide (sp), then what?

I was diagnosed with lymphocytic MC after a colonoscopy (I am a 48 y/o woman). The doctors office prescribed budesonide for 2 weeks, then taper down for another 2. This was all left as a phone message without a word about dietary changes, and I didn't bother calling the office to get more info. Bude...

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