Search found 10 matches

by O
Wed Sep 14, 2016 12:21 pm
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

Thanks

Thanks again to everyone for the recommendations and encouragement. Nothing to do but keep trying to get out of this mess.
by O
Tue Sep 13, 2016 1:14 pm
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

Thanks everyone. I will try to find the magnesium spray. I have been taking Epsom salt baths. I wonder how many I need to take? One daily? I was taking Doctors Best chelated magnesium but I stopped when they told me to stop all supplements. It seems like the spray and baths aren't going against thei...
by O
Tue Sep 13, 2016 11:58 am
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

One more question

Rockhopper Penguin,

Here you taking anything else along with the cholestyramine? He'd you tried other things before this?
I will suggest trying that if I don't see some changes soon.
by O
Tue Sep 13, 2016 11:53 am
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

Mistake on the Lialda.

I took the Lialda thru out the summer along with dietary changes and the metagenics. So much different stuff that I'm getting confused!
by O
Tue Sep 13, 2016 11:49 am
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

Thank you for responding to me Rockhopper Penguin, A few things I should have mentioned in my post. I was diagnosed with CC MC a year ago. The first thing that was tried was the peptol bismol. I tried that for about 2 months with no success. Then they put me on budesonide. After three months they ad...
by O
Tue Sep 13, 2016 7:10 am
Forum: Main Message Board
Topic: Latest treatment
Replies: 18
Views: 2179

Latest treatment

Hi everyone. it has been awhile since I checked in. I'm still keeping busy with my MC. I actually decided to try to get a second opinion and see if another group of doctors could come up with a solution for me. In August I put myself thru the executive physical at Mayo Clinic. (I live in Minnesota a...
by O
Fri Aug 12, 2016 10:20 am
Forum: Main Message Board
Topic: Need Input that I'm not going to get from Dr.
Replies: 393
Views: 102703

Thanks Tex.

It is good to hear that so many have found a way to live with this disease. I guess a change in diet is do-able considering the alternative.

Thanks
O
by O
Fri Aug 12, 2016 7:47 am
Forum: Main Message Board
Topic: Need Input that I'm not going to get from Dr.
Replies: 393
Views: 102703

Totally overwhelmed

Hi everyone. I am very overwhelmed with all of this.I am not even sure how to post a new question on this site let alone how to understand all the information that I have been reading. I have figured out that I should go on a gf, df, and soy free diet.( I've done this as a week ago.) I have also add...
by O
Sat Aug 06, 2016 2:04 pm
Forum: Main Message Board
Topic: Newbee
Replies: 7
Views: 887

Thanks Tex for your warm welcome!

So, what dietary measure do you think I should start with? I could try the gluten free and dairy free to start with. Does that make sense?
by O
Sat Aug 06, 2016 12:26 pm
Forum: Main Message Board
Topic: Newbee
Replies: 7
Views: 887

Newbee

Hi! Boy am I ever happy to have found this site! I have learned more about MC in my last few hours of reading than I have from all other sources including my doctors. I was diagnosis end with CM this past fall after months of non-stop diarrhea. The first treatment was Budesonide (9mg) and a high dos...

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