MICROSCOPIC COLITIS SUPPORT

My PCP was surprisingly open to prescribing LDN. Admittedly one of the reasons I waited so long to ask was that I expected her to decline. Early last March, when she prescribed gabapentin for a pinched nerve, I sent her links to some LDN trials and studies on neuropathic pain, IBD’s, urticaria, etc....

Jeannie and Tex, I agree that the single most important element in reducing inflammation and managing collagenous colitis is a diet that eliminates the foods one reacts to. But although a strict G/F, D/F, S/F, E/F, low-histamine diet helped me enormously, some symptoms persisted. I don’t think cross...

Paul, Valor sent the following reply: “Thank you for contacting us! For the LDN we have a flat-rate of $105 for 90 capsules (90 days supply) meaning the same price apply to 4.5mg and 5mg capsules. We also offer free shipping and 2 days turnaround time.” I’m currently paying about 25% less ($79 plus ...

Thanks Paul. I took a look at their website, which was pretty user friendly. They’ll transfer your Rx, work with your provider—or refer you to one. They ship to Oregon and a dozen or so other states. They had an inquiry form and I’ve asked for quotes on 90 day supplies of 4.5 mg and 5 mg LDN. You’re...

My husband and I each received our first dose of Pfizer 5 days ago at a PDX parking lot drive-thru operated by the medical school. Very efficient, unlike the process of getting appointments. No problems other than sore arms for 2 days, although I was surprised that they scheduled our second dose for...

Paul, It was at least a month before I noticed that digestive issues had begun to improve. But progress was gradual, intermittent and more difficult to pinpoint than other issues. I started LDN on 4/2/20 and on 6/6 had a Reclast infusion during which I contracted either the flu or a mild case of Cov...

Hi Paul, My first reactions were similar to yours. I'd almost forgotten what it was like to feel good and be energized. This overall sense of well-being continues, and over time I also noticed gradual improvements in other chronic conditions. I guess this has become my "new normal”, although it...

Hi Paul, Since it’s prescribed by my PCP, I’m able to get LDN from a local compounding pharmacy. I think their charges are based more on the # of pills than the dosage. My 1st 90 day prescription included: 42 pills @ 1.5 mg (for 21 days:1st wk=7, 2nd wk=14, 3rd wk=21) = $43.99 70 pills @ 4.5 mg (for...

Firstly I want to thank everyone here who’s help has been invaluable these past years. I haven’t posted in ages but have continued to lurk in the shadows while trying to achieve MC remission and to understand and address mast cell activation syndrome/histamine intolerance. I’ve been taking DAO fairl...

Hi Kari, I took Synthroid from 2002 until 10 days ago, when I switched to Levoxyl, another “branded” version of levothyroxine. A friend who’d switched a few years ago thought it was “mellower” and less “jarring” than Synthroid. It’s too early to tell if I agree, but there have been no adverse reacti...

Susanne, Sorry to see your latest update. Hope things are at least beginning to improve. Can’t tell you how may times I’ve stopped and restarted various supplements trying to identify possible “culprits.” Sometimes its best to take a break from just about everything for awhile—even food—particularly...

Brandy, That’s pretty frightening and demoralizing about the K-2 (MK-4) research. At $45 monthly I wasted an awful Lot of $—I probably took it for at least 5 years. The main MK-7 studies (re: bone density/strength and cardiovascular stiffness) were done at a university in The Netherlands, so hopeful...

Tex,
Felt like I was cast adrift. Thanks for getting us back on board safely and quickly. I resisted my impulse to e-mail figuring you were probably swamped.
Teri

Dorothy and Susanne, In the “we’re all different department,” I’ve been taking Rx Potassium since 2010, and it has not helped at all with debilitating muscle cramps. For continuing relief I’ve had to also take 1,000 to 1,400 mg of Mag Glycinate daily. For years I also took megadoses of Vitamin K2 (M...

Hi Susanne, I saw a nutritionist (once) and began a Low FODMAP diet shortly before being diagnosed with CC in 5/2016. It helped at first and then not so much. I kept at it for months but kept losing weight, etc. In 2/2017 as a last ditch effort to avoid Budesonide, I decided to do the EnteroLab test...