Search found 40 matches
- Tue May 01, 2018 6:09 am
- Forum: Main Message Board
- Topic: It's been a year, 3 weeks+ off Entocort
- Replies: 6
- Views: 815
It's been a year, 3 weeks+ off Entocort
I've been on and off this site for a year. It has helped in so many ways. A quick summary, diagnosed in March 2017. Prescribed Uceris - too strong, ended up in hospital for a variety of reasons, all GI. Switched GIs and changed to Entocort in August. Symptoms were such that 3 mg every other day was ...
- Tue Jan 02, 2018 8:02 pm
- Forum: Main Message Board
- Topic: Tex? Gabes? Anyone! Tell me what to do next!?!
- Replies: 26
- Views: 2161
Not to jump in here, as I am relatively new here, diagnosed in March 2017. But since you asked about Uceris vs. low dose of budesonide, I thought I would respond. I was first put on Uceris. It worked well, then so well I developed pretty severe constipation. Actually, while traveling, I also develop...
- Thu Sep 21, 2017 2:21 pm
- Forum: Main Message Board
- Topic: MethylGuard question
- Replies: 3
- Views: 512
- Thu Sep 21, 2017 7:27 am
- Forum: Main Message Board
- Topic: MethylGuard question
- Replies: 3
- Views: 512
MethylGuard question
Hi everyone! I have one of the MTHFR mutations. My integrative medicine doctor recommended Methylation Complete. In looking at it, it is similar to MethylGuard in ingredients and purpose, different amounts of ingredients but looks similar. For those of you that take something like this, did you have...
- Thu Sep 14, 2017 6:12 am
- Forum: Main Message Board
- Topic: Hey Tex! Settle a debate!
- Replies: 14
- Views: 1282
Just one more way MC is inflammatory - since my diagnosis in March 2017, my C-reactive protein was measured. It is high. Never in my life has it been high. As my doctor said, it is a general marker for inflammation, not just cardiac issues (which I do not have). Really for my purposes the CRP test d...
- Sat Jul 29, 2017 7:36 am
- Forum: Main Message Board
- Topic: For what its worth....new GI doc gave a bit of perspective
- Replies: 9
- Views: 844
Thanks y'all. I knew my new GI wasn't going to suggest diet changes. I knew him years ago, and unless there is a solid clinical study, he isn't going to recommend it. He was not opposed to diet, he just wasn't going to recommend. For where I am, I am okay with this. I have learned enough from this b...
- Thu Jul 27, 2017 5:59 am
- Forum: Main Message Board
- Topic: For what its worth....new GI doc gave a bit of perspective
- Replies: 9
- Views: 844
For what its worth....new GI doc gave a bit of perspective
One thing I have struggled with, since being diagnosed in March, is how dismissive my GI was of the disease state. Literally, she wrote me a years worth of Uceris and told me to come back in 10 years for a follow up colonoscopy. (she did say call if I need anything, but I felt completely dismissed)....
- Sun Jul 09, 2017 6:55 pm
- Forum: Main Message Board
- Topic: Oral Magnesium question
- Replies: 7
- Views: 733
Thanks Gabes and Tex. I have been applying it to my neck (per doctor direction due to headaches, she thought it would help with muscle tension). Also to low back, and calf muscles. It just developed a mild rash around my neck. I know the skin is a bit tender there. I don't have trouble with burning ...
- Sun Jul 09, 2017 3:16 pm
- Forum: Main Message Board
- Topic: Oral Magnesium question
- Replies: 7
- Views: 733
Oral Magnesium question
Hi all, Is it possible to titrate your way up to the recommended dose of Magnesium? I started Dr. Best oral and it was too much for me to take orally before bedtime (cause D). I switched to topical in May, but I am starting to get some irritation for it. Also, as your Magnesium level increases, can ...
- Mon Jun 26, 2017 4:33 pm
- Forum: Main Message Board
- Topic: So back from ER....ugh, question about Colase
- Replies: 6
- Views: 843
I just wanted to say thank you again to all of you. I am home from vacation and things are returning to normal (Ha!).....funny, can't really claim normal, but funny how I wanted just to have routine, daily MC. The cramping subsided greatly after the medication I received from the ER. Although I left...
- Sun Jun 18, 2017 12:42 pm
- Forum: Main Message Board
- Topic: So back from ER....ugh, question about Colase
- Replies: 6
- Views: 843
- Sat Jun 17, 2017 10:05 pm
- Forum: Main Message Board
- Topic: So back from ER....ugh, question about Colase
- Replies: 6
- Views: 843
So back from ER....ugh, question about Colase
So I am on vacation, going to several national parks and hiking. My symptoms have been manageable, or so I thought. I had an episode of bad WD last night. It passed and felt okay this am. However as the morning progressed, I started cramping really bad. We tried to do a few short walks and I had tro...
- Wed Jun 14, 2017 1:29 pm
- Forum: Main Message Board
- Topic: Additional bloodwork results
- Replies: 2
- Views: 493
- Tue Jun 13, 2017 5:25 am
- Forum: Main Message Board
- Topic: Additional bloodwork results
- Replies: 2
- Views: 493
Additional bloodwork results
Hi everyone- My provider ran a panel of tests. Good news is my Vitamin D is on the rise. It is 42.5 ng/ml. It was 23 in December. Although not as helpful, my magnesium, RBC is 5.4, which is in the range of normal. This is after several months of topical magnesium, which I will continue. My vitamin B...
- Thu May 25, 2017 5:59 am
- Forum: Main Message Board
- Topic: 12 Years Old
- Replies: 20
- Views: 1871
Congratulations!!! This board is literally the best information out there on MC. I am still new to this diagnosis, but it is evident that many providers don't have a clue or dismiss the severity of MC. This board truly helps people find their new normal. The people here are so supportive and respons...