Search found 40 matches

by pieroaj
Tue May 01, 2018 6:09 am
Forum: Main Message Board
Topic: It's been a year, 3 weeks+ off Entocort
Replies: 6
Views: 815

It's been a year, 3 weeks+ off Entocort

I've been on and off this site for a year. It has helped in so many ways. A quick summary, diagnosed in March 2017. Prescribed Uceris - too strong, ended up in hospital for a variety of reasons, all GI. Switched GIs and changed to Entocort in August. Symptoms were such that 3 mg every other day was ...
by pieroaj
Tue Jan 02, 2018 8:02 pm
Forum: Main Message Board
Topic: Tex? Gabes? Anyone! Tell me what to do next!?!
Replies: 26
Views: 2161

Not to jump in here, as I am relatively new here, diagnosed in March 2017. But since you asked about Uceris vs. low dose of budesonide, I thought I would respond. I was first put on Uceris. It worked well, then so well I developed pretty severe constipation. Actually, while traveling, I also develop...
by pieroaj
Thu Sep 21, 2017 2:21 pm
Forum: Main Message Board
Topic: MethylGuard question
Replies: 3
Views: 512

Tex, Thank you so much!! I will try it!
by pieroaj
Thu Sep 21, 2017 7:27 am
Forum: Main Message Board
Topic: MethylGuard question
Replies: 3
Views: 512

MethylGuard question

Hi everyone! I have one of the MTHFR mutations. My integrative medicine doctor recommended Methylation Complete. In looking at it, it is similar to MethylGuard in ingredients and purpose, different amounts of ingredients but looks similar. For those of you that take something like this, did you have...
by pieroaj
Thu Sep 14, 2017 6:12 am
Forum: Main Message Board
Topic: Hey Tex! Settle a debate!
Replies: 14
Views: 1282

Just one more way MC is inflammatory - since my diagnosis in March 2017, my C-reactive protein was measured. It is high. Never in my life has it been high. As my doctor said, it is a general marker for inflammation, not just cardiac issues (which I do not have). Really for my purposes the CRP test d...
by pieroaj
Sat Jul 29, 2017 7:36 am
Forum: Main Message Board
Topic: For what its worth....new GI doc gave a bit of perspective
Replies: 9
Views: 844

Thanks y'all. I knew my new GI wasn't going to suggest diet changes. I knew him years ago, and unless there is a solid clinical study, he isn't going to recommend it. He was not opposed to diet, he just wasn't going to recommend. For where I am, I am okay with this. I have learned enough from this b...
by pieroaj
Thu Jul 27, 2017 5:59 am
Forum: Main Message Board
Topic: For what its worth....new GI doc gave a bit of perspective
Replies: 9
Views: 844

For what its worth....new GI doc gave a bit of perspective

One thing I have struggled with, since being diagnosed in March, is how dismissive my GI was of the disease state. Literally, she wrote me a years worth of Uceris and told me to come back in 10 years for a follow up colonoscopy. (she did say call if I need anything, but I felt completely dismissed)....
by pieroaj
Sun Jul 09, 2017 6:55 pm
Forum: Main Message Board
Topic: Oral Magnesium question
Replies: 7
Views: 733

Thanks Gabes and Tex. I have been applying it to my neck (per doctor direction due to headaches, she thought it would help with muscle tension). Also to low back, and calf muscles. It just developed a mild rash around my neck. I know the skin is a bit tender there. I don't have trouble with burning ...
by pieroaj
Sun Jul 09, 2017 3:16 pm
Forum: Main Message Board
Topic: Oral Magnesium question
Replies: 7
Views: 733

Oral Magnesium question

Hi all, Is it possible to titrate your way up to the recommended dose of Magnesium? I started Dr. Best oral and it was too much for me to take orally before bedtime (cause D). I switched to topical in May, but I am starting to get some irritation for it. Also, as your Magnesium level increases, can ...
by pieroaj
Mon Jun 26, 2017 4:33 pm
Forum: Main Message Board
Topic: So back from ER....ugh, question about Colase
Replies: 6
Views: 843

I just wanted to say thank you again to all of you. I am home from vacation and things are returning to normal (Ha!).....funny, can't really claim normal, but funny how I wanted just to have routine, daily MC. The cramping subsided greatly after the medication I received from the ER. Although I left...
by pieroaj
Sun Jun 18, 2017 12:42 pm
Forum: Main Message Board
Topic: So back from ER....ugh, question about Colase
Replies: 6
Views: 843

Thank you both! I am doing topical magnesium. I am sure it takes some time to have them increase but I am working on it. I am learning that there are no "quick" fixes with this. I stopped the Uceris. I will see what happens over the next two days. If nothing happens, I will take the Colase...
by pieroaj
Sat Jun 17, 2017 10:05 pm
Forum: Main Message Board
Topic: So back from ER....ugh, question about Colase
Replies: 6
Views: 843

So back from ER....ugh, question about Colase

So I am on vacation, going to several national parks and hiking. My symptoms have been manageable, or so I thought. I had an episode of bad WD last night. It passed and felt okay this am. However as the morning progressed, I started cramping really bad. We tried to do a few short walks and I had tro...
by pieroaj
Wed Jun 14, 2017 1:29 pm
Forum: Main Message Board
Topic: Additional bloodwork results
Replies: 2
Views: 493

Thank you Tex! Good to know about the magnesium. I knew I needed the RBC, but couldn't remember what "true" normal was. Definitely will continue to work on increasing my magnesium. I will keep that in mind about the pregnenione. My moods are okay. I am still focusing on diet, elimination i...
by pieroaj
Tue Jun 13, 2017 5:25 am
Forum: Main Message Board
Topic: Additional bloodwork results
Replies: 2
Views: 493

Additional bloodwork results

Hi everyone- My provider ran a panel of tests. Good news is my Vitamin D is on the rise. It is 42.5 ng/ml. It was 23 in December. Although not as helpful, my magnesium, RBC is 5.4, which is in the range of normal. This is after several months of topical magnesium, which I will continue. My vitamin B...
by pieroaj
Thu May 25, 2017 5:59 am
Forum: Main Message Board
Topic: 12 Years Old
Replies: 20
Views: 1871

Congratulations!!! This board is literally the best information out there on MC. I am still new to this diagnosis, but it is evident that many providers don't have a clue or dismiss the severity of MC. This board truly helps people find their new normal. The people here are so supportive and respons...

Go to advanced search