Search found 17 matches

by Supergirl
Fri Sep 22, 2017 8:30 am
Forum: Personal Experiences with Medications
Topic: Starting LDN
Replies: 3
Views: 2541

Well, I've taken my first dose of LDN. I had heard that symptoms included popping awake at 4 am or other ungodly hours and not being able to sleep, vivid dreams/nightmares. I did not feel my dreams were more vivid than usual, but I did remember them more easily. Usually unless I concentrate right as...
by Supergirl
Fri Sep 22, 2017 8:14 am
Forum: Personal Experiences with Medications
Topic: Starting LDN
Replies: 3
Views: 2541

DEAR SUPERGIRL I am so curious about you starting L.D.N/I was just asking Tex about it. Monique and others have had amazing results. I was told I am a candidate for it, but now I am trying completely gluten free, soy free etc.just got my results back from enterlab.I figured I will try diet for a fe...
by Supergirl
Fri Sep 15, 2017 9:32 am
Forum: Personal Experiences with Medications
Topic: Starting LDN
Replies: 3
Views: 2541

Starting LDN

Well, I thought this might be a good place to document my experience taking LDN. I feel that I have had a vast improvement to symptoms with diet modification; I follow an autoimmune protocol diet with some modifications for a damaged colon (such as not eating brassica, only cooked vegetables, limiti...
by Supergirl
Fri Sep 15, 2017 9:11 am
Forum: Current Research
Topic: Fecal Microbiota Transplant - new MC specific study
Replies: 6
Views: 1085

Yes, the Scandinavian countries are way ahead of the U. S. and the rest of the world on MC research in general. This is like most medical research projects — they don't follow up anywhere near long enough to actually determine how well the treatment might work out in the real world . . . but intere...
by Supergirl
Fri Sep 15, 2017 9:03 am
Forum: Main Message Board
Topic: Another newbie
Replies: 14
Views: 1831

It's kind of funny that so many gastroenterologists know so little about MC that they consider the symptoms of "IBS" (a disease that only exists in their minds, not in the real world) to be worse than the symptoms of MC. :lol: Tex It's amazing. There's a lot of circular logic involved. My...
by Supergirl
Thu Sep 14, 2017 2:30 pm
Forum: Main Message Board
Topic: Another newbie
Replies: 14
Views: 1831

Re: Another newbie

Hi All, Firstly, thank you sooo much for setting up this site. It's nice to see there is a place where we can discuss our disease. Although it is part of the IBD family, I'm finding most places cater only for ulcerated colitis or crohns disease e.g. telling to eat nuts and yoghurt. I was diagnosed ...
by Supergirl
Thu Sep 14, 2017 1:45 pm
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

Re: Welcome

Welcome Supergirl. I'm new to the forum as well and appreciate you sharing your story in detail. I am a foody, love to cook and experiment with new foods. I have always tried to eat a good balanced diet. More recently (past 18 months) I had started eating a large fresh salad each day for lunch that...
by Supergirl
Wed Sep 13, 2017 11:20 am
Forum: Current Research
Topic: Bad bugs
Replies: 2
Views: 953

Re: Bad bugs

Has anyone used this product or something similar? http://complimed.com/dysbiorx.html Just wondering how well it was tolerated. Thanks! Linda Ingredients kind of remind me of Atrantil, which contains quebracho also. There was a study on that blend for people with IBS-C here , though it was done by ...
by Supergirl
Tue Sep 12, 2017 2:01 pm
Forum: Current Research
Topic: Fecal Microbiota Transplant - new MC specific study
Replies: 6
Views: 1085

Fecal Microbiota Transplant - new MC specific study

I was browsing clinicaltrials.gov and noticed this new study in Sweden: "Fecal Microbiota Transplant in Patients with Microscopic Colitis." . This is the first time I have seen a study on FMT specifically looking at those with MC, which is really exciting to me because there is fairly litt...
by Supergirl
Mon Sep 11, 2017 8:23 am
Forum: Main Message Board
Topic: Organic Bone Broth Protein Powder
Replies: 3
Views: 642

Re: Organic Bone Broth Protein Powder

I have seen ads for this. Does anyone know anything about this? It sounds like a good way to add protein to the day. I saw a product by "Dr. Axe" at the store the other day if that is what you are referring to; they were featuring it and had a table set up with a salesperson. I read the l...
by Supergirl
Mon Sep 11, 2017 7:39 am
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

MC is a tough gig, but it's not the end of the world. It's only marks the end of our old lifestyle and the beginning of our new lifestyle. I realize that may not impress you favorably at this point, but you will eventually embrace the changes you have to make and you will view them as challenges, r...
by Supergirl
Mon Sep 11, 2017 7:38 am
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

Super Girl...welcome! Even your name made me smile...fits so many of us who strive for perfection .... I fit that profile too.....unremitting stress with our son and his wife for almost 10 years preceded my diagnosis of LC...we just don't seem to comprehend how destructive stress is ...even when we...
by Supergirl
Mon Sep 11, 2017 7:35 am
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

Hello. I fit into the profile Tex described. Stress tripped my LC trigger when my only child left for college. I had no idea how stressed I was until the D began. You will find a new "normal" and will be able to travel. Eating out is like playing roulette, but I have traveled several time...
by Supergirl
Tue Aug 29, 2017 9:07 am
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

Welcome Supergirl, I sympathize with your story, and the conundrum that you are a nutritional dietitian on top of it all and MC still kicked your feet out from under you. It's a sneaky syndrome and I imagine it was stress and hormones that topped it off for me, along with the fact that my grandmom ...
by Supergirl
Tue Aug 29, 2017 8:48 am
Forum: Main Message Board
Topic: Newly diagnosed; food is my life.
Replies: 16
Views: 2176

welcome to our group and sympathies for your issues and that you had to find us. as you read through posts and discussions, you will see that your journey to this point is very similar to many here. so far as what caused the tipping point, for most here it is generally not one thing, it is generall...

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