MICROSCOPIC COLITIS SUPPORT

Unfortunately hefty magnesium and nutrient supplementation never budged the needle on my daughter's autoimmune problems (including MC). For awhile now I've been concerned that underperforming FOXP3 and IL10 genes (and my daughter has an IL10 gene that really stinks, and a suspect SNP in her STAT3 ge...

If anyone also takes Metformin here, does it help your MC symptoms, make it worse, or no observable change? This past week I've been reading stuff over in the Lupus camp and ran across some fascinating new research into increased glucose metabolism by activated lymphocytes. In labs, it's been notice...

Does anyone have any experience with Cyclosporin? My daughter who has MC also has to take Restasis for dry eyes (Sjogren's testing came up negative), it helps very much, and reading up on Cyclosporin I am very intrigued on its suppressive action on T Lymphocytes. I understand normally it's given to ...

My daughter takes oral Ketotifen for histamine problems - it's helped with her gut, it's helped with her food reactions, it's helped with her asthma. Recently, she added Boswellia Serrata and it has also really helped with gut and lung symptoms. We're still fighting problems but she's feeling a lot ...

Hi y'all, I'm at it again. Been researching and researching and I've become curious about a couple of things. I'm still not sure what I'm doing, but I've created 2 gene packs, one on SelfDecode and one on LiveWello. I'm looking into 2 specific genes, but for now I threw a bunch into these gene packs...

Hi! My daughter has been sick for 3 years now, abdominal pain going back about that long, but actual MC symptoms didn't really start and a LC dx until the end of 2017 (celiac dx in 2016 but a normal EGD in early 2017 indicating good gf compliance). We actually see an IBD specialist tomorrow (after 6...

Thanks y'all for your input. Reason I was asking was that I was looking into why Ketotifen is a mast cell stabilizer and I ran across a discussion how it may be a calcium channel blocker - it blocks calcium from going into mast cells, and mast cells need calcium to degranulate. I saw more info sugge...

A couple trivia questions popped up in my research into MC and thought I'd toss them out and see what y'all might have to say about it - Does anyone with MC also take a calcium channel blocker for high blood pressure (like Norvasc/Amlopidine)? If so, does it help/hurt or not affect MC symptoms? Does...

Thanks Lisa! Currently afraid to try celery juice as I believe she reacted to it last year. But now that she's on oral Ketotifen and Prednisone, the allergic-like reactions are very much reduced, though she's still afraid to try it. A factoid I recently read involved how the stomach adds a ton of ac...

Not much to report. The PCOS diagnosis sent us off on a tangent. I think we finally found an endocrinologist we like (this would be #4). Continuing to adjust thyroid medicine and taper down the prednisone, things seem to be pretty stable in general so once we achieve a couple of goals with those med...

Moving forward slowly ... we finally got the Lialda prescription for 1.2 g twice a day. Just started that on 3/2. No change yet but figure if the sulfa was messing things up it would take a little time for the system to recover. New gastro had her do an MRI Enterography on 3/5 to check for any small...

... and we hurry up and wait ... saw our new PCP (we had to leave the old one as he got called up for duty), she was not at all familiar with sulfasalazine or mesalamine and would not switch it. Since our old gastro doesn't want anything more to do with us and our new gastro specialist-specialist is...

Thanks y'all. I think the rheumy prescribed sulfasalazine to help with her arthralgia, and declined switching to mesalamine because perhaps she doesn't prescribe that in her practice. Gastro #1 was a terrific diagnostician, but not familiar with treatment of celiac and MC and has been trying to get ...

Thanks Tex. I've seen the Drugs.com dosing page earlier and was really confused - the usual adult dose for active ulcerative colitis was 800 mg delayed release tablets: 1600 mg orally 3 times a day, which would be 4.8g per day while the usual adult dose for maintenance of ulcerative colitis was 1.6 ...

The Rheumy has declined switching the Sulfasalazine to Mesalamine to Gastro#1, who is declining any further treatment to Gastro#2, whom we now can't see until May 14, which is a full 3 months away. We are appealing this insanity to our PCP. We have a blood test order coming up soon and will try to g...