MICROSCOPIC COLITIS SUPPORT

My experience with GI doctors has varied tremendously. Some give credence to the importance vitamin D levels, some do not. Some believe in a very extended course of Budesonide, others do not. I used a very extended course of budesonide after my initial diagnosis and another time when I relapsed. Bot...

Welcome gator9t9! You have found a great forum! Led by Tex, this forum has many helpful folks and informational threads that can help get you to a healing gut state. Sure did help for me. Spend some time searching this forum and you will learn a lot. Tex (Wayne Persky) really understands this diseas...

Hi Tricia, I think you may have to carefully supplement to get your vitamin C level up a bit. I would for sure choose a "timed release" (slower) vitamin C supplement and I also would start with a vey low dosage. I take vitamin C "tablets" which you can cut the pills into small pi...

Welcome Slow Pony! Yes, this forum and all who grace it along with Tex and his knowledge, compassion and leadership is a tremendous resource. It helped me to get to remission during my initial time of MC diagnosis, then helped me to get there once again after a significant relapse. I am doing quite ...

I have a recommendation. Dr. James Wise. University of MN / Fairview. Dr. Wise was the GI doctor that initially performed my colonoscopy and diagnosis of Microscopic Colitis when he was practicing at CentraCare GI clinic in St. Cloud MN. I don't make these recommendations often or take it lightly. M...

Short note to agree with the others here on their gratitude to Tex Persky and this forum! I have learned SO much since my MC diagnosis a few years ago. A few bumps in the road of course as is the case for so man of us as MC is seldom a straight line. Got it under control initially, then had a major ...

Hi Omilly and welcome to the forum! I agree that your prior Gastroenterolotist is quite clueless when it comes to Microscopic Colitis. Which unfortunately isn't that unusual. I live in central Minnesota and was very lucky and landed with a doctor who understands the importance of diet in controlling...

Hi jcml12, I don't have any personal experience with that product but in general, I'm not a fan of taking any GI supplements while taking Budesonide. I'm sure some GI supplements "could" be helpful but because of the varied ingredients and the many, many different strains of probiotics, yo...

Hi Julie, I have used Budesonide twice. A few years ago after my initial diagnosis of MC and then fast forward to now as I suffered a relapse in the spring and am now on the last taper dose (one capsule every third day). It worked the first time and is now working the second time. Very pleased. It t...

Hello Kestrel, I tried the "Pepto" treatment but it didn't work for me. I then switched to Budesonide which did work. At the bottom of this post is what I copied from the Gastro Journal from Dr. Kenneth Fine, who conducted the Pepto trial. He is also the doctor who founded and is in charge...

Hi Jennifer, Another thing to consider is that you could be experiencing a sort of "pelvic shelf" pain, which is not at all uncommon, ask me how I know! My backstory. In 2005, I was experiencing rectal pressure for many months and we just couldn't figure it out. Eventually I had an early f...

Hi Martha, I received the regimen of 2 Shingrix shots for prevention of shingles. The first shot I only had a very mildly sore arm for about 2 days at the site of the injection. But the second shot left me with a very low grade fever for about a day and just a feeling of malaise or out of sorts for ...

Hi Marcia, I think most of us can for sure relate to the "stress" component, especially in these trying times! One thing that you may want to explore and just try a few times to see if it helps you is the practice of "mindfulness meditation". It's not a hippie guru type of thing,...

Hi Heather, I too went on a 2 year remission with the help of a Budesonide "very" slow taper. (very slow taper is the only way to taper this drug in my opinion). However, this past winter...probably because of high stress because of a Melanoma Cancer diagnosis and a bit of let up in how st...

Hey Paul,

Sorry to hear about this new issue. Dang the luck, seems to be always something.

As usual, the counsel from Tex is rock solid and worth heeding.

All the best to you Paul and please keep us updated both on the hearing issue and how your MC is doing.