Search found 13 matches
- Sun Feb 17, 2019 7:09 am
- Forum: Guidelines for Recovery
- Topic: Ongoing battle with LC.
- Replies: 2
- Views: 1126
Ongoing battle with LC.
Good morning everyone, I have been battling CC and/or LC depending on which biopsy we are seeing at the time. I went GF about 8 years ago and while it has helped my pain symptoms my diarrhea never went away. I had a GI doc perforate my colon and send me home following a colonoscopy in 2013 and from ...
- Sun Dec 16, 2018 5:21 am
- Forum: Main Message Board
- Topic: CBD Oil
- Replies: 3
- Views: 993
I started using CBD oil for my CC symptoms about 7 months ago. It is the only thing that has helped my severe pain. While I cannot say it has reduced my trips to the bathroom it has greatly reduced my pain level. I was able to get off opioids and muscle relaxers. I do not take any NSAIDS unless I hu...
- Sun Sep 24, 2017 5:40 am
- Forum: Main Message Board
- Topic: Right sided hemicolectomy
- Replies: 11
- Views: 974
Thank you all so much for the replies. The funny thing is, ever since my resection I have tested negative for MC. I mean, of course where the biopsies are taken could be the reason for that. So since then my GI really isn't too keen on treating me for MC, not that any of the medications helped. He i...
- Tue Sep 19, 2017 10:54 am
- Forum: Main Message Board
- Topic: Right sided hemicolectomy
- Replies: 11
- Views: 974
Thank you everyone. I take 5000mcg B12 SL daily. I also take 500mg of Magnesium. I am not sure if this is the correct dose for magnesium or not. I also take D3 supplement, not sure of the strength, may be 2000. If you guys have any other suggestions for supplements I'm open to hearing. I also have f...
- Mon Sep 18, 2017 10:43 am
- Forum: Main Message Board
- Topic: Right sided hemicolectomy
- Replies: 11
- Views: 974
Thank you both for your replies. I have tried all kinds of medications throughout the years. Bile salt binders, steroids, antibiotics, you name it I have probably been on it. Nothing has helped. I had an ileostomy as well for several months following my hemicolectomy. I developed abscesses which cau...
- Mon Sep 18, 2017 4:03 am
- Forum: Main Message Board
- Topic: Right sided hemicolectomy
- Replies: 11
- Views: 974
Right sided hemicolectomy
I had a right sided hemicolectomy with ileocecal valve, appendix and a portion of my terminal ileum removed in 2013 due to a perforated colon during a colonoscopy. I was diagnosed with CC back in 2005 after a year of diarrhea. Off and on flare ups between 2005 and 2013. Fast forward to 2013, flare u...
- Tue May 03, 2016 6:11 am
- Forum: Main Message Board
- Topic: My success story
- Replies: 5
- Views: 955
My success story
Hi everyone. I am not new here, just not on my computer much but wanted to share my success. I have been battling collagenous colitis for 12 years, and nothing has given me any relief. Tried all of the meds, nothing worked. I tested negative for celiac so didn't figure gluten to be an issue. Until I...
- Tue Oct 15, 2013 5:41 am
- Forum: Main Message Board
- Topic: Question regarding remission
- Replies: 1
- Views: 415
Question regarding remission
I have a question, that has bugged me ever since my diagnosis with CC in 2005. I spontaneously go into remission after a period of time flaring up. It is really bizarre because I change nothing that I do. I have had flares last weeks, months or years. I have had differing degrees of inappetence, foo...
- Wed Oct 09, 2013 6:18 am
- Forum: Main Message Board
- Topic: Had GI consult yesterday and...
- Replies: 4
- Views: 624
Had GI consult yesterday and...
I was sent home after initial consult with a poop hat, three bags of different culture vials, a lab requisition to test for Celiac, and a colonoscopy appointment in early November. I have to say the highlight of this whole ordeal is pooping in a hat and scooping it into the little vials. That is som...
- Sun Sep 08, 2013 6:47 am
- Forum: Discussions on Treatment Options Using Diet, and/or Medications
- Topic: Newbie (sort of)
- Replies: 9
- Views: 2524
Thank you all so much for the kind replies. I would be very interested in reading Tex's book, where do I get it? What I don't understand is no matter what I eat, or don't eat, the diarrhea never abates until the flare ends. I have absolutely no appetite whatsoever, and the thought of food literally ...
- Tue Sep 03, 2013 4:49 am
- Forum: Discussions on Treatment Options Using Diet, and/or Medications
- Topic: Newbie (sort of)
- Replies: 9
- Views: 2524
Thank you both so much for your responses. I am going to bite the bullet (no pun intended) and start to wean off of gluten, every time I try to do so I get so overwhelmed I end up throwing in the towel. If you guys have ANY suggestions for how to begin I would be eternally grateful. I have had this ...
- Mon Sep 02, 2013 5:43 am
- Forum: Discussions on Treatment Options Using Diet, and/or Medications
- Topic: Newbie (sort of)
- Replies: 9
- Views: 2524
Newbie (sort of)
Hello everyone, I have been an on again, off again lurker/info seeker on this discussion board as well as the internet in general. I have been suffering with CC since 2005. Was diagnosed after a year of horrible diarrhea with doctor after doctor unable to figure out why. Long story short, my CC bega...
- Sat Jan 29, 2011 9:52 am
- Forum: Main Message Board
- Topic: Does anyone else have decreased urine output?
- Replies: 9
- Views: 2064
Urine output
I have a friend with Crohns and she is always telling me to "keep my pee clear"!! It is hard to get enough liquid in during a flare for me. I drink 2 liters of water a day but I also get very nauseated while I am sick so it is hard to keep proper nourishment in..
Sandra
Sandra