Search found 26 matches

by susan
Wed Feb 08, 2012 8:38 pm
Forum: Main Message Board
Topic: Anyone Ever Have A Klebsiella Oxytoca Infection?
Replies: 32
Views: 3798

Hi Tex

I agree the doc would have called you if it were something serious. Don't know anything about that kind of infection, but I hope it is over SOON! And yes, it's always something.

Best wishes, Susan
by susan
Mon Feb 06, 2012 8:58 am
Forum: Main Message Board
Topic: My Thoughts On Vitamin A
Replies: 27
Views: 4274

Gloria Perque makes a multi that has only beta-carotene (5,000 IU). It's called life guard. You can find it at perque.com. Pure encapsulations also makes a multi called Nutrient 950, which you can get without vitamin A. Also, without copper and iron. I dropped vitamin A a couple of years ago and tha...
by susan
Sun Feb 05, 2012 1:08 pm
Forum: Main Message Board
Topic: My Thoughts On Vitamin A
Replies: 27
Views: 4274

thanks, Tex, but I'm still confused. I just bought an oil for moisturizing that contains palm oil--I had to look forever to find something without grapeseed, soy, sunflower, safflower, and almond oil, which I can't tolerate. So does this information that you've shared mean that the palm oil itself i...
by susan
Sun Feb 05, 2012 10:33 am
Forum: Main Message Board
Topic: My Thoughts On Vitamin A
Replies: 27
Views: 4274

Tex

Does that mean that pure palm oil contains vitamin A palmitate? Or does the ingredient have to be retinol palmitate? Would these concerns re IBD also apply to vitamin A acetate?
by susan
Thu Feb 02, 2012 11:23 am
Forum: Main Message Board
Topic: MC ISSUE'S OR THYROID HELP?????
Replies: 14
Views: 1732

Robin I know you will go over everything with your doc, and probably get lots of tests, but I will second the hormonal change/menopause probability. Menopause can work in very weird and mysterious ways. I was a full 15 years into it when I developed terrible hot flashes-- which more or less coincide...
by susan
Tue Jan 31, 2012 9:39 am
Forum: Main Message Board
Topic: My crazy, upside down MC!
Replies: 29
Views: 3696

Lesley i think the idea about acupuncture is a good one--I don't know if Medicare would cover it. Medicare does cover my visits and tests with an integrative medicine physician here--she just did a full stool study to evaluate what is happening in my intestines during this current bout of D. They te...
by susan
Mon Jan 30, 2012 9:21 am
Forum: Main Message Board
Topic: Hurts!
Replies: 16
Views: 3551

Lesley, Good luck with trying to communicate with your GI. It is just really, really discouraging to deal with doctors who don't listen, and even if they do listen, put down what you are saying. I wish you could get some response that makes you feel like someone is trying to help you and be your par...
by susan
Mon Jan 30, 2012 9:08 am
Forum: Main Message Board
Topic: lentil soup
Replies: 7
Views: 2638

When I was not reacting, I was able to eat lentil soup occasionally. I never took a chance on eating it regularly. I also tested black beans when I was not reacting, and they were definitely out--no D but a lot of discomfort and some bloat. Now that I've lost remission, I've decided no legumes at al...
by susan
Mon Jan 30, 2012 8:56 am
Forum: Main Message Board
Topic: new granddaughter
Replies: 111
Views: 15407

Thinking of you and your family, Martha, and praying that Abigail will feel better very soon.
by susan
Sat Jan 28, 2012 2:17 pm
Forum: Main Message Board
Topic: Reconnecting and seeking advice
Replies: 14
Views: 1819

Deb I have always had seasonal allergies, so the congestion is not new to me. Yes, sometimes my eyes can get runny. However, it has been somewhat worse, I think, since mc began 3 and a half years ago. However, I live in the land of mold and pollen and coal plant pollution and frequently stagnant air...
by susan
Sat Jan 28, 2012 12:51 pm
Forum: Main Message Board
Topic: MC and Histamine
Replies: 57
Views: 12652

Gloria

Do you have a compounding pharmacy in your area? They might be able to give you the antihistamine additive free--don't know for sure. And compounded things can be more expensive.
by susan
Sat Jan 28, 2012 9:12 am
Forum: Main Message Board
Topic: Reconnecting and seeking advice
Replies: 14
Views: 1819

Gloria, I am so sorry you have to keep struggling so much with this. It's challenging enough when you have periods of relief. I haven't taken Benadryl yet, although my allergies are worsening (it's been unseasonably warm here and the grass is turning green) I spoke with my dr. about the mast cell is...
by susan
Thu Jan 26, 2012 8:15 am
Forum: Main Message Board
Topic: scd diet
Replies: 25
Views: 3912

Robin I'm a Long Islander living now in North Carolina. Land is, relatively speaking, inexpensive here. My daughter volunteers teaching riding for the disabled as well-in Virginia. I spent much of my work life training and working with volunteers. I've never known more wonderful, special people. You...
by susan
Tue Jan 24, 2012 9:36 am
Forum: Main Message Board
Topic: Reconnecting and seeking advice
Replies: 14
Views: 1819

Lesley, I've changed my travel habits a lot--used to go lots of places for work and visiting friends and family, but i think twice now. My DH and I have talked about renting an apt. in some exotic place we'd like to visit, and then cook for ourselves, and I think that might work eventually. I think ...
by susan
Mon Jan 23, 2012 5:17 pm
Forum: Main Message Board
Topic: Reconnecting and seeking advice
Replies: 14
Views: 1819

Tex, My June 2009 Enterolab results: Anti gliadin 222 (gasp) units Anti casein 27 units Anti ovalbumin 15 units Anti soy 25 units Anti yeast 16 units Anti tissue transglutaminase 79 units Fecal fat score Less than 300 units HLA-DQ 3, 3 (Subtype 7. 7) October 2011 results: Anti gliadin 28 units Anti ...

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