MICROSCOPIC COLITIS SUPPORT

Thanks Carol, Makes me feel a bit of relief to hear this. I was sortof worried. I have been having a hard time for a couple weeks with the just plain old weakness. Not tired, but more like my body feels tired. That's when I noticed the swollen lymph nodes. I agree with the rest part. I was able to j...

I wouldn't take any antibiotic that has an increased risk for a C-diff infection. Tex would know the best but I got C-diff about 4 years ago from Augmentin (ear rupture from infection) and I almost died from getting C-diff from the medicine. MC is a breeze compared to how sick I was from C-diff. I w...

Thanks Tex. You are right about Budesonide making me hyper - moreso in the afternoons - my place of work loves the extra output right now-lol. Mornings I am a teensie "out of it". I am on month three of the med and I keep telling my doctor yes, the D is better and my stomach is nice and fl...

Just checking here to see if anyone else has had this going on while in recovery? I can feel swollen lymph nodes in collar bone area and groin (pea size). I also feel weak - not sleepy tired - just weak like I feel the best sitting or laying down. Not sure if it's part of this or the Budesonide or s...

I do not understand this at all. Got a results letter from GI today and she wants to do an endoscopy? Immunoglobulin A, Qn, Serum Range: 87-474 Mine: 77 t-Transglutaminase (tTG) IgA: Range: 0-3 Mine: <2 Tex, do I need an endoscopy or what? "Jeanine--Your celiac sprue panel cannot be interpreted...

I hope I have your determination and courage after my taper is complete.

Good job in my opinion!

Jeanine

Brenda:

OMG LOVE IT!

I will sleep with a grin on my face tonight!

Jeanine

oh one that thing I will ad to all this and this is her basis for acting this way. She has ONE, I am not kidding you, just one patient of all her patients who has this disease and the gal quit eating altogether because she was so miserable from the D. She ate rice porridge until she almost died and ...

Thank you to everyone! I am so glad it was unanimous vote and I AGREE 100 PERCENT and am going to say no way. What is she thinking??? Even Mayo Clinic says to stop gluten when you look this up!! YES, I am going to fire her for sure but I want to make sure I get my next month filled and my taper mont...

So I had my appointment last week and the doctor ran all these blood tests including for Celiac Disease but since I have eliminated gluten for five weeks now she left me a voicemail today that she wants me to eat gluten for TWO MONTHS and they are going to re-run the blood test since they didn't &qu...

Thanks for the hope on grease! LOL My blood work results were just uploaded from doctor (Sunday?) No signs of celiac she said. The only thing that same back high was the Lymphs (absolute) and she said it's not a high number that she would worry about. To me, it still means that I am right: Not ready...

Thank you Tommyboywalker! I like your energy. I will keep persisting with this doctor just to prove her wrong. (I am stubborn). I have met my deductible for 2019. My cost for Buesonide for a month - $48.00 (not bad at all). That is my point to her. I have the flexibility NOW to keep this going for a...

so good to hear others have had the same experience with a not so good topic. i will definitely be shopping for a new doctor and yes, my next follow up is with her PA. She literally turned purple when talking to me - I had to laugh. Like, does she think she can tell me what to eat or not to eat? Tha...

LOL Tex you are probably right about the Budesonide letting me sneak in a brownie a day. It may have to go bye bye later on.

Jeanine

Had my one month follow up with GI specialist today. She literally turned purple when I started to explain to her I had changed my diet and joined this forum for support, etc. She went off on a big speech about not believing the "internet" on these things and so on and so on. We got into a...