Search found 58 matches
- Mon Oct 18, 2021 5:56 am
- Forum: Main Message Board
- Topic: Getting vaccines while on budesonide
- Replies: 2
- Views: 124
Re: Getting vaccines while on budesonide
Thanks very much for sharing your take, Tex. I can always count on you to be there, and I appreciate it.
- Sun Oct 17, 2021 6:31 pm
- Forum: Main Message Board
- Topic: Getting vaccines while on budesonide
- Replies: 2
- Views: 124
Getting vaccines while on budesonide
Hey there, I am wondering how efficacious it is to get a vaccine (for flu, or later, a J&J booster as I had one in March) while still on budesonide? I started at 9 mg in July, and have been slowly tapering ever since, now on one 3mg pill every other day. My GI doc still hasn't replied to my quer...
- Fri Jul 30, 2021 6:53 pm
- Forum: Main Message Board
- Topic: Anyone else get WORSE with dietary restrictions of Enterolab?
- Replies: 9
- Views: 457
Re: Anyone else get WORSE with dietary restrictions of Enterolab?
Bugger indeed :-) That is one I have heard before, and it's still funny to this Southerner! Thanks for your reply.
- Thu Jul 29, 2021 7:56 pm
- Forum: Main Message Board
- Topic: Anyone else get WORSE with dietary restrictions of Enterolab?
- Replies: 9
- Views: 457
Re: Anyone else get WORSE with dietary restrictions of Enterolab?
Thanks for that clarification. I take topical magnesium chloride in the Mo Maggies lotion. I tsp is supposed to be about 250-300 mg. I do this once daily. I don't measure exactly.
- Thu Jul 29, 2021 5:39 pm
- Forum: Main Message Board
- Topic: Anyone else get WORSE with dietary restrictions of Enterolab?
- Replies: 9
- Views: 457
Re: Anyone else get WORSE with dietary restrictions of Enterolab?
Hey Gabes, Thanks for your detailed reply - sorry for the delay. Had my GI appt yesterday and it went reasonably well in terms of agreeing to do a long slow taper. You are very detailed in thinking of what might be tripping me up, so I appreciate your attention to detail. Here are my answers: coffee...
- Thu Jul 29, 2021 5:27 pm
- Forum: Main Message Board
- Topic: Ammo needed on budesonide tapering to prepare for GI doc visit
- Replies: 3
- Views: 199
Re: Ammo needed on budesonide tapering to prepare for GI doc visit
Thanks for taking the time to answer my recent posts, Tex. I really appreciate your timeliness and thoroughness. It's reassuring to feel like someone out there both understands and cares. Thanks for mentioning the Mayo Clinic thing - I will have to look that up. (I had earlier found the 2016 BMJ stu...
- Mon Jul 26, 2021 1:31 pm
- Forum: Main Message Board
- Topic: Anyone else get WORSE with dietary restrictions of Enterolab?
- Replies: 9
- Views: 457
Re: Anyone else get WORSE with dietary restrictions of Enterolab?
Thanks, Gabe, for your detailed reply. I have read many of your replies on the board and am glad you are so thorough. In response: what are you drinking each day? water, coffee, black tea, sometimes a seltzer did you purchase new cookware and utensils? I cook with my own GF stuff and keep my cooking...
- Sun Jul 25, 2021 1:19 pm
- Forum: Main Message Board
- Topic: Anyone else get WORSE with dietary restrictions of Enterolab?
- Replies: 9
- Views: 457
Anyone else get WORSE with dietary restrictions of Enterolab?
I really appreciate the time and energy people have put into this board to share knowledge and tips on dealing with MC. When first dealing with this disease, I read here about the recommended approaches to improve things, and read Tex's book as well. So don't mean to sound ungrateful or whiny when I...
- Sun Jul 25, 2021 12:59 pm
- Forum: Main Message Board
- Topic: Ammo needed on budesonide tapering to prepare for GI doc visit
- Replies: 3
- Views: 199
Ammo needed on budesonide tapering to prepare for GI doc visit
Hi there, It's been many months since I posted, and I am hoping to get some advice on how long to be on budesonide, and how to make a case for that with my doc. I am preparing for my second meeting with my GI doc on Wed - last meeting was pretty unpleasant, as she was dismissive of my dietary effort...
- Thu Feb 18, 2021 7:32 pm
- Forum: Main Message Board
- Topic: Running up the white flag
- Replies: 16
- Views: 1183
Re: Running up the white flag
Hi Brandy and Laine, I doublechecked my notes and realized I misspoke. My maternal aunt, who is 83, got dx'd with LC about 8 months ago. I haven't talked to her about her diet lately but heard she was going on Entocort and was doing ok. My mom is 84, and got dx'd with MC a pretty long time ago, mayb...
- Wed Feb 17, 2021 12:58 pm
- Forum: Main Message Board
- Topic: Running up the white flag
- Replies: 16
- Views: 1183
Re: Running up the white flag
Hi Tex and Brandy, Thanks for your replies. Tex, I DEFINITELY want to know what halted my period of improvement rather than just go for meds first. (My mom and her sister have MC and they think I am crazy not to be using Entocort. I suppose if I were in my 80’s I might just go for drugs too). It’s a...
- Tue Feb 16, 2021 1:53 pm
- Forum: Main Message Board
- Topic: Running up the white flag
- Replies: 16
- Views: 1183
Re: Running up the white flag
Thank you! That is helpful to know. Some future day, post-pandemic, I hope to have enough control over MC that I can travel a bit again, go to music camp, all those fun things I used to do. I suppose the bright side of staying home during a pandemic is ready toilet access!
- Tue Feb 16, 2021 1:19 pm
- Forum: Main Message Board
- Topic: Running up the white flag
- Replies: 16
- Views: 1183
Re: Running up the white flag
Thanks for sharing that info - how long were you on budesonide? I've not read a ton about that on this board (yet) but am generally aware that people are less likely to relapse if they taper very very slowly off the budesonide. Did you taper, then do Lialda, or go straight from one to the next?
- Mon Feb 15, 2021 2:37 pm
- Forum: Main Message Board
- Topic: Running up the white flag
- Replies: 16
- Views: 1183
Running up the white flag
Hi there, I am checking in after a long absence and hoping for some good advice, or at least a virtual shoulder to cry on. I last posted in October, and here is a recap of where I was at, to spare rewriting it ("Keep on keepin' on, or try something new?"): http://www.perskyfarms.com/phpBB/...
- Mon Oct 19, 2020 7:19 pm
- Forum: Main Message Board
- Topic: What turkey to trust?
- Replies: 4
- Views: 186