MICROSCOPIC COLITIS SUPPORT

Hi Marcie, I'm a "long lost veteran" of this board and I just happened to check in and saw your post re: compounding of Ketotifen. I think I might be able to help. I too was diagnosed with ME about 6 years ago, when not much was understood about the role of mast cells in GI disease. Tex an...

Hey Tex, Stopping by here is like running into an old friend you haven't seen in a long while...familiar and comforting. I've said it before, but it bears repeating; I couldn't have survived this mast cell journey without the support from those on this board. I will be forever grateful. Life with MC...

Hi Tex! I haven't posted in quite awhile, but I stop by from time to time to read up on where people are with their MC (mast cell) issues as it relates to their overall health. (Gosh, remember when I first joined PP and we could count the number of people on the board with MC issues on one hand?! So...

Greetings PP veterans and newbies! I feel like it's been forever since I posted, but life has been busy with a dad and dad-in-law both dealing with cancer. My FIL has late stage gastric cancer (although he is responding VERY well to chemo) and my dad has invasive bladder cancer. I'm the sole caregiv...

Very interesting Deb, thanks for the link! It was very humbling to think about the magnitude of his struggles. Maybe having limited food options isn't so bad after all! I was so intrigued by his story I searched around on the internet and found a brief interview he did which tells a bit more about h...

Hi Kitty, Not that you need one more voice to express empathy and outrage but...."been there, done that" is all I can say! First, I'm aghast that your physician would share such information with your spouse. There are so many laws against sharing medical information without a patient's con...

Hi Mary Beth, Thanks for sharing your beautiful pictures and message with us. I'm so glad you were able to make the trip; a trip that would have probably seemed inconceivable just a few years ago when your mast cell issues were at their worse. I surely hope good things continue to come your way! Bes...

Congrats Tex and all the others who were so critical in creating this great place! I have visited other health board forums and NONE, and I mean none, have the "personality" of this board. The genuine kindness, concern, willingness to help, resources and overall support is truly unparallel...

Definitely. But not surprising given my MCAS diagnosis. Started years ago and was thought to be part of my then mixed connective tissue disease diagnosis. The rash hasn't been as bothersome in more recent years, but has been replaced by an overall sensitivity to the sun. Last summer while at the bea...

One word...asparagus. It works like a charm for me. It's not unusual with Mast Cell disorders to have alternating D and C due to changes in motility caused by the many different mediators associated with mast cell degranulation. It's funny many of my doctors were completely dumbfounded by my having ...

Joe, Thanks for sharing that great story! And yes, wise to be careful with Nestle and the bottles. You just never know what a dog will decide to chew on or get into, even when they are well past the puppy stage. Daisy, our beloved mastiff, came into our lives a few years prior to my getting sick. Sh...

Very encouraging news for you Tex. Off to a great start before it even hits the shelves.

Please just remember all the "little people" (us!) as you sky rocket into literary stardom!



Julie

Hi Rich, Good to hear from you with an update. I'm a vegetarian and as you can imagine, it is not easy, given all our other dietary limitations. I fortunately do OK with dairy, so that helps quite a bit. I'll also eat some seafood, so that helps with variety (and protein intake) as well. But, I can'...

Martha, My goodness, what a lot to have going on in your family. Of course, the very best wishes for little Abigail and her upcoming surgery. What a wonderful mom she has to keep on pumping milk in the midst of dealing with all Abigail's other critical health issues. It really makes you appreciate w...

Hi Joe,

Do I remember you saying that your specimen would be tested for mast cells? Maybe not,... I have had mast cells on the brain lately!

Glad you got some good news in the report. Hope your flare settles down soon!

Julie