MICROSCOPIC COLITIS SUPPORT

I saw this on Facebook and found it so funny my first thought was to share it here. I'm betting the woman who thought it was a man on a toilet had colitis! LOL

Hi Erica. Sorry you're experiencing something similar but I have to admit, it's nice to have some company on this unique, mystifying journey of ours! The 24 hour holter monitor showed that I am having PVC's. Doc said she didn't see any signs of serious heart disease but that perhaps I should see a c...

Thanks for sharing that, Tex! Proof again that we need to be our own doctors and the best we can hope for is that we find one that actually listens to us and our findings. I have no thyroid (Graves Disease) so I maintain my TSH level strictly through Synthroid. Being the extra-sensitive sap that I a...

Will try to keep this short: My health seemed to go to hell a few months ago. I started having frequent heart palpitations, my colitis remission seemed to be ending, my knee went bad on me, and now my shoulders are going, too. My Apple Watch has captured the almost constant palpitations which I sent...

Hi Erica, nice to "see" you. :) Yup, good attitude.... we just do the best we can at dealing with what we're dealt. It's not always easy but when I'm going through the rough times I remind myself that this too shall pass. So sorry about your recent losses - I'm sure the grief is affecting ...

Thanks, Tex.... I was so thrilled to see you are still very active here and this board is alive and well! I have been medication free for 15 months so HOPEFULLY if I need to go back on mercaptopurine it will work just as well as last time. But before going that route I'm just eating VERY CAREFULLY a...

Hi old and new members. As is typical, I'm back to read some of the wonderful information on here because I sense I'm coming out of remission and want to get the up-to-date knowledge and opinions of people who really KNOW about this disease - the moderators here! I was on 6MP for a while and it put ...

Yes, I, too, am guilty of not being on here in quite a while. I always tell myself that even when I'm feeling better I will stay current with the forum, but when things are going well, things get busy, life takes over, and computer time is low on the priority list. Sorry. :( I am TRULY enjoying life...

I heard from her last night. I had reached out to her via Facebook telling her she was missed and hoping she's OK, and she replied that she's doing well and will pop on here very soon.
Sue

Thanks for the encouragement and good wishes, TommyBoy..... it's the reassurance I needed that continuing to do what I'm doing (and what's working) makes the most sense right now. Maybe in 3 or 4 months when things in my life half reached a new normal then I will re-consider even giving up the one a...

Thanks for the posts - much appreciated and I value everyone here's opinion. I think I will not upset the apple cart and stay with 1 Entocort a week, at least for a while longer. Major changes going on in my life so this is no time to try something different that could take me out of remission. I do...

Hi Gang. Long time member here, tried everything over the course of the past 15 years, tried most of the drugs, done the Enterolab testing and eat according to the results, take the magnesium, etc. etc. What FINALLY seems to be keeping me in remission is the drug 6MP (mercaptopurine) which I fought ...

Wow, what a great, loving, inspirational thread. The support on here is always amazing and reading through these posts brought tears to my eyes. The caring, love, compassion, patience and understanding from everyone on here is the thing we all need so much but don't always get from doctors, family o...

Yup, yup, yup...... SO many benefits from eating a ketogenic way of life, BUT only if it's done properly. Read all you can about it, learn the science behind it, and when you're armed with all the data (and a grocery list), jump in, do it right, and reap the benefits!
Sue