MICROSCOPIC COLITIS SUPPORT

Hi Tex,

Do you have an opinion on the other Crohn’s or UC drugs?

Amy

Hello all, I have been gone a while, not because I have reached remission but because I have been seeing how my pregnancy goes. I am 14 weeks tomorrow 😊 I made it! My tummy was quite good in the beginning, then at about 7-8 weeks I suddenly started going more. I’m not sure if a lunch out caused the ...

Hi all, Had my bloods and calprotectin done last week. I’m the closest I think I’ve been to iron deficiency anaemia but apparently that is ok. My iron was at 7 umol/L, iron saturation was 11%, ferritin was well within normal limits as well as T.I.B.C. I’m guessing my miscarriage could be why my iron...

Hi Tex, My symptoms tend to return when I drop to 6mg though, maybe I need a slightly longer period at full dose then drop to maintenance for a long time. I agree with you though, I hate gastro symptoms especially as they’ve been continuing for so long. Budesonide always causes problems with my horm...

Hi Tex, Unfortunately that has been discussed, they don’t want me on it long term being so young. They have decades of experience and apparently saw the effects of young patients with IBD being on long term corticosteroids with osteoporosis etc. I will speak to them later today but I am feeling ill,...

Hi all,

For anyone who experiences a miscarriage I think it can cause a flare. That’s what I found when I researched for IBD anyway.

Amy

Hi Susanne,

Have you considered acupuncture? It works by trying to find harmony in the body so that it can function as it should.

Amy

Hi Audrey, I’m like you I’m afraid that I’m still not in remission with diet changes, although I’ve had quite a few bumps on that road. You could try adding in exercise? Have you been on Budesonide before? You may need to wait a bit longer. Remember every major stress and virus you get will slow or ...

Hi both,

My husband got a Japanese toilet for me so that I can wash my bum after a bm, it’s amazing!

Amy

Hi Lisa, I agree with what Tex has said but I will go further and say that your friends and family just need to deal with your MC. Mine have over the years, they start to be more considerate and thoughtful but not without being persistent and sometimes I’m afraid being forceful with boundaries. What...

Hi all, A quick update. More of the same to be honest. I’ve had the worst start to a year I think I’ve ever experienced. I had an early pregnancy loss followed by two deaths in the two weeks following. I am currently struggling with appetite and nausea, more than I ever have before, so much so that ...

tex wrote: ↑Mon Nov 20, 2023 6:23 pm The U.S. healthcare system seems to be headed the same way.

Tex

You guys pay for your healthcare though? How can that possibly go wrong I guess if demand increased more than availability.

Hello all, Sorry I’ve not posted an update recently. I think I’m doing pretty well actually, I’d say fairly close to remission. I’m alternating between diarrhea or mushy stool, perfect bms and slight constipation. Number of times daily is currently 2-4, urgency has mostly improved. I had a brief mis...

Hi all, I saw the IBD clinic on 18th October, after a 4 month wait. I was told I would be sent for a repeat gastroscopy and colonoscopy, probably a 6-8 week wait but possibly in the near year. I haven’t heard about a colonoscopy, I had a letter a couple of weeks ago to say my bloods came back ‘reass...

Dear Laine,

What digestive enzymes and Betaine HCL do you take please? Can you take them at the same time as the cholestyramine?

Kind Regards,

Amy