MICROSCOPIC COLITIS SUPPORT

Hello, Well, going back to my August 26, post...my husband's creatinine was high for several months, so the study team wanted him to see his PCP. His PCP ordered blood samples and an ultrasound of the kidneys. Kidneys had no blockage however, the PCP is suggesting he see a Nephrologist. I guess the ...

Hello,

I was wondering if anyone from this support group has researched or tried the GF products from GF Jules or gfjules.com.

If so, any comments?

Thank you,
Linda

Tex,

His 5th injection of the study drug was January, however, he started reacting either late November or December, but stopped the study drug on that 5th shot.

We will take things slow as suggested and see what the PCP says next week.

Thank you, again.
Linda

Tex, Thank you. Would you say we should stay with the diet as is or is it too early to move to a Stage 2 diet. I am not sure I ever really found a Stage 2 diet suggestions, but I remember reading about a Stage 2. With the high creatinine, he wants to reduce the amount of meat, so he wants to add som...

Thank you, Tex. I never found the Magnesium Glycinate, but he will probably cut back on the Mag Baths and he will definitely be tested or have a discussion with his local doctor. I do (very) regularly ask him to drink water and he is trying to drink more. Do you think it is too soon to try over cook...

Hello again. Just wanted to let you all know that we did find the AboutOliveOil.org quality seal olive oil in a neighboring town grocery store. Cut out the Chicken based on suggestion and EnteroLab results. We switch between Pork, Turkey and Venison seasoned only with salt, olive oil and onion that ...

Gabes-Apg and Tex, Thank you again for this much needed information. I have printed both links so my husband can read these. Tex, we are also in south/central Texas and rural, but we mostly have HEB's, Walmart's, Health Food Stores or order online. 1) May we ask where you purchase your Olive Oil (if...

Gabes-Apg and Tex, Thanks so much for the feedback. I have downloaded and printed the May 2021 Newsletter. The olive oil: One says Expeller Expressed Extra Virgin Olive Oil. Gluten free. Ingredients: Extra Virgin Olive Oil. (no other verbiage in the ingredient list.) Bottled and Packaged in Italy. T...

Hello again.... I was called back to work, so I am a little late getting my husbands Enterolab results posted and hope to get some input or interpretation. These were A1 and C1. He is weaning off Budesonide with 25 days of 3 mg to go and feeling pretty good, about five weeks of formed stools, but ti...

Tex, Thank you for the reply. He did not have an allergy to shellfish before MC. We will be careful bringing those in and we will see in a few weeks what his EnteroLab results are. I worry about the weight fluctuating around 121 to 124.5, but not sticking, not inching up. Patience is important as lo...

Tex,
Thank you so much for the reply. If we have any questions after results we will certainly ask.

We will stay status quo, but I was curious if we could try adding another safe meat to switch between...either grass fed beef, venison or bacon....or too soon?

Thanks again.
Linda

Hello, As I stated on 5/26/21, my husband was diagnosed several months ago with MC after taking a study drug for Bladder Cancer. He is on his second round of Budesonide (because we did not know about this site or diet during that first round, so during weaning of the last week he relapsed). Started ...

Tex,
Thanks so much, I think this is going to help us a lot.
Linda

Hi, My husband was diagnosed several months ago with MC after taking a study drug for Bladder Cancer. He is on his second round of Budesonide and is tolerating chicken, turkey, potatoes, squash, olive oil, coconut oil, almond milk, rice Chex and bone broth. Thanks to Tex for finding bone broth recip...

Great, thank you so much!
I think we are on the right track.
Linda