MICROSCOPIC COLITIS SUPPORT

Thanks so much for your reply, Brandy. I am aware of strontium, have researched it, but have seen a couple of references to clotting problems--I had a small stroke in 2015 so was concerned about that. I think it's the renalate form which I don't think is available in the U. S. But still--- I asked o...

December 2018 I had a compression fracture and a kyphoplasty. (bone cement) Almost a year to the day, December 2019 I had another one, really bad, another kyphoplasty in January. Primary sent me to an Endocrinologist who immediately wanted to put me on drugs. I had been taking 3 algaecal a day since...

Hi, Brandy, thanks so much for your response. You are catching a plane today so might not see this, but just checked my library and they have that McCormick book so placed a hold on it. I've seen reference to strontium citrate and in fact, plan to buy some. I've been calculating the amount of calciu...

i'm tapered off budesonide. I started on 3 a day September 2018,dropped to 2 a day Dec. 2018, seemed quite ready to go to 1 a day in Feb, 2019, 1 every other day April, then every 3rd day May, finished end of May. Not sure what I accomplished other than an extreme worsening of my osteoporosis, 3 com...

I started budesonide 9/5/18, tapered to 2 a day on 11/8. On Dec. 15 all the signs pointed to tapering to one a day so I did.Then things got complicated--12/19 I ended up in the hospital for 5 days for back pain, and an MRI showed more than one compression fracture, the one on T8 was very bad, with a...

Hi, tommyboywalker, thanks for the reply. I think you missed some days in how long I've been on entocort--it's about 43 days. But of course it looked like I can't even spell my own name, so what the heck! (I got in a hurry and put "Beverlu instead of Beverly) I hate to start tapering too soon, ...

wow, I do call that a long, slow, taper. If you've read my previous posts, in January the GI I am no longer using refused to give me more than 2 a day for 1 month, then 1 a day for a month! He was concerned about osteoporosis, which I think we've covered by some of out members. That was basically a ...

Thanks for the info, Brandy!

Beverly

I've been on it, 3 a day since Sept 5, definitely tightening up, trending towards constipation, but past few days, particularly yesterday and today definitely constipated. This is a new experience--after about 10 years of D, not a lot of muscle tone left so quite difficult. I'm wondering if it might...

thanks for that info, Jessica. This further confirms that it doesn't work as well in subsequent doses as it did the first time around. I saw the new GI again and got a little more info on the taper. She wants to see me in 6 weeks to monitor progress and discuss a taper. However, I will have only 75 ...

The last GI prescribed 2 Entocort a day for 30 days, dropped me to 1 a day for 30 days, but then refused to prescribe any more out of concern for my osteoporosis. I think we covered all this in my March and July posts. I asked my PCP to authorize a 2nd opinion--I did the research on 25 GI docs in my...

Adele, this just makes me sick! Of course you know that I started this thread in March, and if you've seen my recent update, that the GI refused to prescribe any more Entocort, and talked me into a colonoscopy which was a total waste of time and effort except it relieved his mind when he found no Cr...

I haven't tried Glutino, usually make my own bread, but have tried Canyon 7 grain when I'm busy, and despite the long list of ingredients, is the best commercial I've tasted and had no problems. Good luck!

Beverly

I have been using this brand of faux mayo for a few years, just noticed they have a new label. Duh! I of all people should know better and should have looked at the ingredients. Yup, you guessed it, it has totally changed. Now the 2nd ingredient is starch--which one? Of course corn starch. The thing...

thanks to all who have joined in this thread, I appreciate it. The more I am learning the more I think I will wait a month or two before jumping in. I have trips planned July and August, and don't want to be experimenting on diet, etc. until I get back. Also, I think I should see my primary to get h...