Search found 3 matches

by SumSum
Wed Jan 05, 2022 12:35 pm
Forum: Main Message Board
Topic: LC and Mastocytic Enterocolitis -- what next?
Replies: 7
Views: 565

Re: LC and Mastocytic Enterocolitis -- what next?

Hi, I'm a newbie though not new to MC - diagnosed 2013. I have no idea what's best. I'm taking budesinide right now. My husband was on low dose steriods for quite a while and slowly weaned off too, so I can understand your concerns with another one. However, the systemic effects are so much lower wi...
by SumSum
Wed Dec 29, 2021 3:13 am
Forum: Main Message Board
Topic: servere reflux & CC
Replies: 3
Views: 196

Re: servere reflux & CC

Thanks for the welcome and reply Tex. It doesn't sound like your problems were minor compared to me. That was a tough go! I've really come to appreciate how Dr's respond by throwing medication at you but that in turn causes a new problem. I see that I need to try to fix the root of the problem as yo...
by SumSum
Sat Dec 25, 2021 10:57 pm
Forum: Main Message Board
Topic: servere reflux & CC
Replies: 3
Views: 196

servere reflux & CC

Hello. Apologies this is rambling. I was first diagnosed with CC 9 years ago. It was pretty serve and boy was I sick. Budesinide pills set me right. I relapsed and slow-tapered a couple of times. Two of years ago I started having wd again. Loud bowels sounds. My GI took blood levels and said since m...

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