Search found 9 matches

by Inconvenienced
Wed Feb 17, 2010 11:00 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Thank you Tex for the info on Customs (I hadn't thought about that) and I hope that you are much better. Hi Polly, The next lot of drugs the GI mentioned are Azothiaprine or Asacol/Pentas. I did mention to him that I had gone on a GF diet (didn't mention DF - too scared!) and he responded well sayin...
by Inconvenienced
Wed Feb 17, 2010 9:07 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Hi Dee I was very interested in your explanation as to how Entocort is released in the bowel and not into the bloodstream so much. It makes me happier about taking it, though it doesn't seem to be having much effect at the moment. My specialist did tell me that for every 500 patients he has with Ulc...
by Inconvenienced
Sat Feb 13, 2010 7:32 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Well folks, I saw the specialist yesterday and he is repeating the course of Entocort 9mg a day for 4 weeks 6mg for 4 weeks and 3mg for 4 weeks in the hope that it will calm things down again. I'm not to bother with the Questran as it made no difference whatsoever but I can take Imodium as and when ...
by Inconvenienced
Mon Feb 08, 2010 11:14 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Hi Polly I tried to get my specialist on the phone but was unsuccessful so I spoke to my GP. He has suggested I go back to taking 1 tablet a day Entocort and that the specialist may put me back on 3 when I see him Friday. I took it immediately and also asked about taking Imodium as well and he didn'...
by Inconvenienced
Mon Feb 08, 2010 6:33 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Hello All I have been reading as much as possible on your findings on the message board and am more confused that ever! The response of most of you is that my Specialist took me off the Entocort too soon (12 weeks). I admit that I am back to liquid D and not venturing more than 10 yards from the toi...
by Inconvenienced
Sat Feb 06, 2010 3:45 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

I am overwhelmed with the welcome response from you all and I obviously have a lot to learn. There is a lot of information to 'digest' :smile: and I will read on. Thank you all for your suggestions and time. I will keep you posted on progress. After reading through all the messages (including my own...
by Inconvenienced
Fri Feb 05, 2010 10:17 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Than you Polly, you sound lovely and have given me much hope. I have just checked out the websites you suggested and found them very interesting. My specialist has prescribed colestyramine which I hope will take effect soon (I've only been taking the sachets 4 days and things seem to be slowing down...
by Inconvenienced
Fri Feb 05, 2010 9:00 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Thank you so much for your comments, I didn't expect such a quick response. I think I will initially try the food combining diet and try and read as much as possible.
by Inconvenienced
Fri Feb 05, 2010 4:32 am
Forum: Main Message Board
Topic: Hello, This is all new to me - joining a support group!
Replies: 35
Views: 4273

Hello, This is all new to me - joining a support group!

After years of 'upset' I have been finally diagnosed with CC. They were looking for coeliac disease as my brother, nephew and great niece all have it. I have had a negative result on that by way of biopsy on the bowel and confirmation of CC. I have just finished a course of Entrecote (3 tabs for 4 w...

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