Search found 24 matches

by seabare
Tue Jun 08, 2010 1:52 pm
Forum: Main Message Board
Topic: HELP - I can't eat anything at all
Replies: 19
Views: 1959

Dear Annie, Although I have not yet had the Enterolab tests done and am finally scheduled for another endoscopy and colonoscopy, I have also had luck with Gabes' diet --esp. when I've had a bad day. But it can be hard if you have a family to feed that doesn't want chicken and mushy veggies all the t...
by seabare
Fri May 21, 2010 10:43 am
Forum: Main Message Board
Topic: Enterolab testing
Replies: 14
Views: 1499

Wow Tex. I didn't think that could ever be possible again. It has been so many years now that I had convinced myself that I was doomed to live/survive this way for the rest of my life. If remission is really being able to be the me I was before the symptoms, I'd feel like I was 25 again! Well, once ...
by seabare
Fri May 21, 2010 10:19 am
Forum: Main Message Board
Topic: Attn Washington / Oregon residents!
Replies: 5
Views: 582

Hopefully when you leave Seattle it will not be totally at night, as you should pass thru the beautiful San Juan Islands on your way to BC. These and the Canadian San Juans are some of the most beautiful areas in the NW. (Of course I live on an island where the ferry leaves for the San Juans, so I a...
by seabare
Fri May 21, 2010 9:59 am
Forum: Main Message Board
Topic: Friday Laugh
Replies: 5
Views: 675

Thanks Gabe, Thank your for your always upbeat attitude!! I have enjoyed all of your posts that exude such kindness of spirit. I hope your new job goes well and that moving will not be too big a project. As for the Entocort from Vanuatu, I wish it smelled of frangipani, but no. Maybe I'll ask them t...
by seabare
Fri May 21, 2010 9:46 am
Forum: Main Message Board
Topic: Enterolab testing
Replies: 14
Views: 1499

Thank you both Tex and Connie, Now I've looked at the other information and I must go from here. Can you please give me a definition of "remission"? Is it just a little better, much better, is it possible to feel "normal" again w/o all the rumbling, nausea, lack of appetite, tota...
by seabare
Thu May 20, 2010 2:03 pm
Forum: Main Message Board
Topic: Enterolab testing
Replies: 14
Views: 1499

Thanks Connie, I did just take a look there and unless I'm missing something, it appears that everyone of those results tested positive to gluten in some way. I'm wondering if anyone did the testing and it came back negative for gluten. It just seems there are so few posts from people who are not gl...
by seabare
Thu May 20, 2010 12:28 pm
Forum: Main Message Board
Topic: Enterolab testing
Replies: 14
Views: 1499

Enterolab testing

I was just wondering if anyone has had the testing for gluten from Enterolabs and their test came out negative? I've only read posts supporting the use of the testing from those with positive results. Have there been any negatives and I've just missed their posts? I'm still on the fence about the te...
by seabare
Thu May 20, 2010 10:52 am
Forum: Main Message Board
Topic: Attn Washington / Oregon residents!
Replies: 5
Views: 582

Up here in WA, Safeway usually has a pretty good range of GF foods. Not great, but OK. Also have a decent organic section. If you are in a good sized town, there should be a Trader Joes and you'll have good luck there. In the Seattle area look for the Food Co-op--it is wonderful and should be an eas...
by seabare
Thu May 20, 2010 10:41 am
Forum: Main Message Board
Topic: constant stomach rumbling?
Replies: 12
Views: 6232

I have those as well and they can be very loud! And embarrassing. Since taking Entocort they have lessened, but not totally stopped. I was GF for some time, but I didn't notice a difference (maybe stopped too soon) so I can't yet say that a dietary change helped me. But it certainly has helped many,...
by seabare
Sun May 16, 2010 1:13 pm
Forum: Main Message Board
Topic: Costs of colonoscopy
Replies: 9
Views: 1090

Well the weight seems to be the absolute determining factor. I have always been petite (4"9") and my normal/average weight has always been 75-79 lbs. So getting up to over 85 lbs is difficult and I'd actually be pudgy at that weight. I only weighed 97 while pregnant. What baffles me is tha...
by seabare
Fri May 14, 2010 2:38 pm
Forum: Main Message Board
Topic: Costs of colonoscopy
Replies: 9
Views: 1090

Costs of colonoscopy

Hello all, I finally have my colonoscopy scheduled for the end of the month. However, while checking things out with the insurance, hospital, lab, procedure fee and anethesia, it looks like it will cost anywhere from $5700 up to $9575, mainly due to the hospital facility fee. They gave me a range of...
by seabare
Wed May 05, 2010 5:14 pm
Forum: Main Message Board
Topic: Do I belong here??
Replies: 16
Views: 3815

Dear Darby--welcome! Yes, you are definitely in the right place to find tons of information, differing symptoms, treatments and opinions, none of which are discounted and all are accepted. And no question is too embarrassing to ask. I, too am relatively new to the forum and still awaiting a firm dia...
by seabare
Wed May 05, 2010 4:05 pm
Forum: Main Message Board
Topic: When One Door Closes . . .
Replies: 16
Views: 2249

Dear Tex and all of you who post here, Your eloquence truly hit home with me as well. Especially the difference in situations we all experience. Everyone has helped me so much, both medically and more importantly emotionally, I don't know what I would have done without this new "family"--i...
by seabare
Sun Apr 11, 2010 3:48 pm
Forum: Main Message Board
Topic: "Magic Bullet"
Replies: 24
Views: 2685

Oh, I don't know how I could forget this, but my headaches and migraines have increased greatly in the last month or so. There are so many variables, I'm at a loss as to what to attribute that to--Entocort, gluten withdrawal, stress, anxiety or what. But it's getting expensive using up all my migrai...
by seabare
Sun Apr 11, 2010 3:45 pm
Forum: Main Message Board
Topic: "Magic Bullet"
Replies: 24
Views: 2685

Well I'm going in to see the GI Dr. again tomorrow. Hope to pin him down on just what my issue really is. Entocort is still helping w/D and lower GI stuff, mostly, still some immodium. But upper still is sometimes dicey. I've been GF since 3/28 and also avoiding salads and raw veggies. Seems no prob...

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