Search found 21 matches

by GLJ
Fri Apr 23, 2010 2:57 pm
Forum: Main Message Board
Topic: Help! What is nodular lymphoid hyperplasia?
Replies: 12
Views: 10603

Tex, After my first colonoscopy I was diagnosed with MC or LC after biopsies were taken and examined. Then I took Entocort for about 10 weeks. Then I did a second colonoscopy and the GI doctor says the Colitis is healed up but the biopsies from my colon still show abnormalities. They show that I hav...
by GLJ
Fri Apr 23, 2010 10:48 am
Forum: Main Message Board
Topic: Help! What is nodular lymphoid hyperplasia?
Replies: 12
Views: 10603

Help! What is nodular lymphoid hyperplasia?

Hello everyone, I'm still feeling bad and my GI doctor wanted to do another colonoscopy and upper GI Scope since I have him stumped and he wasn't the one to do the previous scopes. He said everything looked normal but took a lot of biopsies. He says the colitis is cleared up from the Entocort that I...
by GLJ
Tue Apr 13, 2010 11:44 am
Forum: Main Message Board
Topic: Has anyone tried Dr. David Dahlman, DC suggestions?
Replies: 5
Views: 3147

Has anyone tried Dr. David Dahlman, DC suggestions?

Hello everyone! I just finished reading David Dahlmn's book called "Why Doesn't My Doctor Know This? He gives a complete list of supplements that he thinks you should take and follow 4 major dietary rules to heal IBD. Just curious if anyone of you ever tried following this program? Any knowledg...
by GLJ
Sun Apr 11, 2010 8:46 pm
Forum: Main Message Board
Topic: HOW ARE U TEX???
Replies: 18
Views: 1905

Tex,
It sounds like you've had a lot of health issues in your life. I can't believe how positive you remain. I hope some of that rubs off on me. Do you have a good support system around you.

GLJ
by GLJ
Sun Apr 11, 2010 1:44 pm
Forum: Meal Suggestions
Topic: Gluten-free and Dairy-free Meal Suggestions
Replies: 11
Views: 9410

Thank you!
I was going to ask for some example meals that you guys eat for breakfast, lunch, and dinner. Right now it is really hard because I have no appetite and am nauseated a lot so it is hard to put any thought to what I'm going to eat.

GLJ
by GLJ
Sat Apr 10, 2010 8:54 pm
Forum: Main Message Board
Topic: "Magic Bullet"
Replies: 24
Views: 2669

Robin, I have been nauseated, have not had an appetite, and of have lost 25lbs since my episode started 4 months ago. I take nausea medicine (zofran) It doesn't help that much. I force feed myself when the nausea isn't quite as bad and eat small meals or snacks throughout the day or else the nausea ...
by GLJ
Sat Apr 10, 2010 5:04 pm
Forum: Main Message Board
Topic: best way to get off entocort?
Replies: 5
Views: 1147

Good! I'll just stop taking it then. Thanks for your input.

GLJ
by GLJ
Sat Apr 10, 2010 4:55 pm
Forum: Main Message Board
Topic: best way to get off entocort?
Replies: 5
Views: 1147

Thanks! My cortisol levels are already above the normal range and I didn't want to increase this. So do you think I'll be fine to just stop the 3 mg. even after just a couple of days? I have been faithful following a GF and DF diet. I know I'm not going to have total control over this yet but right ...
by GLJ
Sat Apr 10, 2010 3:42 pm
Forum: Main Message Board
Topic: best way to get off entocort?
Replies: 5
Views: 1147

best way to get off entocort?

Hello, I've decided Entocort is not for me. I think it is causes side effects that I don't wish to have. I was on it 9 mg. for about 8 weeks. Then I went down to 6mg. for 2 weeks and now I went down to 3mg. for the last couple days. When can I stop completely and safely. It might be causing me a lit...
by GLJ
Thu Mar 25, 2010 8:45 am
Forum: Main Message Board
Topic: Update
Replies: 3
Views: 485

Update

Hello everybody. I thought I'd let you know how things are going. Sunday I started not doing so well again. Just can't stop feeling nauseated and burning in my stomach. My D issues are still mostly in the morning. Monday I had extreme anxiety and my appetite started slipping again. I had to take Lor...
by GLJ
Mon Mar 22, 2010 9:14 am
Forum: Main Message Board
Topic: My Update (Not Good)
Replies: 41
Views: 4472

Wayne, I am currently in the same situation you are in! I am very frustrated with the doctors and I know I need to probably take matters in my own hands too but it is so difficult. I got sick in December and have been fighting to get well ever since. At times I give up and go down in to a deep dark ...
by GLJ
Sun Mar 21, 2010 8:49 pm
Forum: Main Message Board
Topic: Acid Reflux (GERD)
Replies: 26
Views: 5867

Hello all, I was DX with hiatal hernia. I don't experience burning in my chest though. I experience terrible burning in my stomach and upper stomach. I am on prilosec which doesn't help. Would the vinegar test work for me to?

GLJ
by GLJ
Sun Mar 21, 2010 8:32 pm
Forum: Main Message Board
Topic: Newbie Recently diagnosed with LC
Replies: 23
Views: 4067

Polly, I just take the vitamin D twice a week for a couple of months and then once a week for another month I think? Are your vtiamin D levels low also? I keep getting this terrible burning in my stomach and upper abdomen. I am also very belchy. It makes me feel so sick. I had a terrible day today. ...
by GLJ
Sun Mar 21, 2010 2:26 pm
Forum: Main Message Board
Topic: Newbie Recently diagnosed with LC
Replies: 23
Views: 4067

Polly, I ordered the book on-line. It is suppose to arrive Wed. or Thurs. I have been thrown on and so many meds through this mess that going back to the basics is what I think I need to do. Although the Remeron and Entocort I'll have to wean off and probably not simutaneously. I might try to go to ...
by GLJ
Sun Mar 21, 2010 9:47 am
Forum: Main Message Board
Topic: Need help making decision, Entocort or not?
Replies: 16
Views: 3521

Charolette, It sounds like you are doing okay with what you are doing. I am on Endocort and not having as much luck as you are without. I haven't done the enterolab yet. I hope your results help you. I am a young mother of 3. Stress is what comes along with taking care of them. Luckily I have a mom ...

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