MICROSCOPIC COLITIS SUPPORT

Hello everyone, I thought I should let you know how I have been doing lately. I have been on the Entocort for a month now and I feel a big change. The D has stopped and I have up to 7 bowel movements a day, as opposed to 25 a month ago. I am very careful in what I eat and it seems to work so far. I ...

Hello everyone, I went to my hospital today for a check up. The doctor told me my stomach is still very inflamed but that it should improve with Entercort. She then said to me that I could have a flare up (is this true?) but that apart from that I could eat everything!!! I told her I was allergic to...

Hello everyone, I have been doing better since I started the Enterocort 2 weeks ago, but today I felt as bad as before the Enterocort. I must have eaten something wrong yesterday because I had a lot of diarrea today and a hell of a lot of pain. I have an appointment at the hospital tomorrow and will...

Hello everyone, I just wanted to let you know how I am getting on. It has been 10 days since i started the Enterocort and I feel an improvement already. However, today I ate out in a restaurant, had fish with cooked vegetables and rice. I suspect the fish must have been cooked with butter, because h...

Gabes, thank you for your mail. Today I only had some glutenfree soup and glutenfree bread and I feel ok, don't have too much pain. I know I have to continue eating, but is frightening at the same time. I write down what I eat and how I react to it. I try to avoid stress as much as possible, I alrea...

thank you all for your precious advice. I will indeed keep it simple and stick to basic foods. I had a very bad weekend, yesterday in particular with a lot of bm and a lot of D and abdominal pain. It is the pain that frightens me, sometimes it is unbearable. I did not eat at all yesterday, I was too...

Thanks for your support, most welcome on this miserable day.
question: can we eat wholemeat products or does that contain too much fiber? what about humus?
thanks,

Annie

Thank you Harma and Tex for your support. Indeed it does not feel like that for me today, hopefully i will get there one day. I am very sick today, with a lot of D and abdominal pain. I had some tofu burgers yesterday and did not realize there was soy in them. I also had wholemeat pasta and that was...

Hello everyone, I have noticed over the last few weeks that I am getting very cranky. As you know the onset of my disease was about 5 weeks ago. I am so tired that I cannot even listen to people talk to me, it wears me out too much. Everything and everyone seems to be getting on my nerves big time, ...

Hello and welcome, I have been having D on and off for the past 25 years after having caught a bacteria called Campylobacter Jejuni in Tunisia. Over those years I had my stools tested, my blood but noone could ever find out what was really wrong with me. A year ago my husband died at the age of 51 a...

Thank you Connie for your mails. I admire you that you were able to work with this disease, it must have been very difficult. It so happens that I just finished a temping job when the disease broke out, I don't have a job anymore. I am 50 years old and it is not easy to find a job at that age in Bel...

Hello everyone, I am just wondering how long you guys were not able to go to work at the onset of this disease. I do some volunteer work, three hours a week. Yesterday after two hours of work I was totally exhausted and fell asleep when I came home. It is clear to me that I am not able to do a prope...

thank you for your replies. Indeed, I can tolerate bananas and I eat one or two a day. Last night I had some chicken with beans and bread and I did not have any D, nor pains. This is the first time in six weeks that I am able to hold some food inside, i am absolutely thrilled!!

Annie

Thank you Joe. It is reassuring to know that other people have been there. I have not eaten anything for six weeks and this evening I had some plain chicken with green cooked beans and GF bread, it tasted like lobster. I hope it will not wake me up during the night with abdominal pain,wait and see. ...

Hi Harma,

Thanks for your reply. My Entocort dosage is 9 mg for a month, then 6 mg for a month, then 3 mg for a month.
It seems to make me more hungry, is this normal?

love,

annie