MICROSCOPIC COLITIS SUPPORT

Just to let you all know, I ended up going to the emergency room very early this morning (4:00 am). The headache was very severe. They checked me out and couldn't find anything wrong. The doctor there said it could very well be a sensitivity to the Entecort. However, he said the only way to truly kn...

Ok, kind of freaking out here a little, and probably not for any good reason. I've been on Prednisone now since September. 10 mg. initially and weaned down to 5. I went back up to 10 several times when I kind of flared up. My problem is this. I have been tapering down, knowing that at the first of t...

Thanks, Tex. I hate prednisone. I've had to use it over the years due to the Lupus. But it's never fun to be on (like any drug is). It frankly kind of scares me thinking of what it's doing to my body. But everything was flaring, not just the LC. My fibro has been super active this summer, I've been ...

Hm...somehow my post didn't get posted. I probably hit the wrong button. Doc says ok to be on prednisone (found this interesting considering the thread talking about adrenals). So for one more week, 10 mg. Prednisone. It stopped the D in it's tracks. Hopefully it will give my gut some much needed ti...

Oh forgot, I also got some DF Acidopholus (sp?). And started that yesterday evening.

I have a doctors appointment tomorrow. I started on the 10 mg. dose of Prednisone I had on hand. I've taken Prednisone for years off and on due to the Lupus, so will be very careful with it. I've had two bm's since I started the Pred, and the second one was near normal. I'm still doing the GF, DF, b...

Ok, I'm so incredibly miserable right now. I started on some low dose prednisone on my own this morning, some I had left over from the last try. I have enough for 13 days and one refill. I'll contact my regular doc this week and see when I can get in. I've got to get some relief. I'm doubled over in...

I give up. I was down to rice, chicken, and chicken broth. I was still taking four to five Immodium a day and feeling absolutely lousy from the Immodium. I've lost 16 pounds in three weeks. I'm exhausted. If I'm going to have the big D, at least I'm going to try to get some nutrients down. I'm glad ...

I can eat pretty simple, I'm just really worried about vitamin and mineral content. I don't think I will be getting what my body needs, and after having had cancer and chemo, and dealing already with lupus and fibro, the vitamin thing really bothers me. I looked and can't take the multi I was taking...

Ok, I thought I had it under control for just a little while yesterday. I've been eating plain rice with a little bit of honey for breakfast. Had some very ripe banana for snack, broiled chicken and canned asparagus, and canned sweet potatoes day before yesterday. Then yesterday I was starving. Had ...

Thanks Granny. I'm at the point where I'm so darned tired anyway from not eating, and from the big D all the time that I'm just about ready to say to heck with it and just EAT everything. I'm so starving.

Pepto Bismol actually made my D worse. So no more of that for me. I've tried it about three times and every time I get extreme gas, and explosive D. I'll ask my regular doc about that article, who at this point I think is more willing to work with me...I think my gastro has kind of written me off be...

I haven't tried anything but Entecort and Lialda. Truly, my gastro told me if neither of these worked, there was very little else he could do for me. He truly told me I would have to just 'live with it' and try to get some help from Immodium. My regular doc prescribed Lomotil for me yesterday after ...

I do have some insurance, I'm on Medicare too, but my Part D will only pay a certain amount of prescriptions and at two months of Entecort, I'm close to the donut hole, as I also have other meds I take. I tried Lialda and it didn't do anything for me. Granted, I didn't give it much time, but it didn...

Thanks Joe. I'm being careful about what I'm eating, it just doesn't seem to do any good. I also can't afford to send off for the testing that everyone gets done, so I'm guessing and just figuring I'm sensitive to gluten, dairy, soy and probably some other stuff too. I'll ask the doc about that othe...