MICROSCOPIC COLITIS SUPPORT

I was diagnosed with Idiopathic Hypersomnia, which is very similar to narcolepsy. Basically, I sleep very poorly, but I can fall asleep anywhere and anytime. I was diagnosed a few years before my colon symptoms began. Suspected sleep apnea is not the only reason people have sleep studies. I had my f...

Got it - thanks, Tex!!

I really appreciate your help! Unfortunately this page can no longer be found. Would you happen to have a copy?

Thank you so much for the information. I’m thinking I should probably scrap my Phase 1 diet and start over with foods that have a higher probably of being safe. I’m going to need to go through my results and highlight those things that are either high histamine or high tyramine and see if I can come...

Actually I have Mastocytic Enterocolitis, not MC. I don’t know if that makes any difference. I’ve had issues with fruit most of my life and never regularly consumed any fruit. Since the Phase 1 diet is so limited, I decided I should try to eat the allowed fruit. Maybe that’s a bad idea. In any case,...

Thanks for the replies. Before I started Phase 1, my dietician swapped some Phase 1 foods with Phase 2 foods to make things a little easier. I think I was overconfident with moving forward because the majority of the foods I added were originally Phase 1 foods – in fact 2 of the 3 foods under suspic...

It took me a little longer than I had hoped to become stable enough on my Phase 1 diet to begin adding new foods. My bowels are still not quite normal, but I’m down to one loose stool a day with no bloating or cramping. My dietitian thought it was safe for me to begin adding one new food a day 5 day...

Nancy - My previous allergy testing was done by US BioTek Labs. It was an ELISA/IgG/IgE test. I know that testing was for a different mechanism, but I still expected there would be more of an overlap between the two tests. The severity of the reactions didn't correlate as much as I expected either. ...

After all my difficulties getting tested, I finally received my MRT results yesterday. I was pleasantly surprised to see very few reds. I’ve had some allergy testing done in the past, so I wasn’t surprised by some of my reactions. Some will be hard for me to eliminate, but most I won’t miss much. Ye...

I’m sorry your dad is dealing with lupus. My dad was diagnosed with systemic lupus when he was 68. I believe his was caused by chemo treatments for stage 3 colon cancer when he was 61. He was always in excellent health prior to having cancer. The chemo cured the cancer but triggered a steady decline...

I couldn’t get another kit today. There is only one person at my doctor’s office that can prepare a kit and she had a family emergency today. Since the lab never called me back to tell me if they were able to intercept the package, I stopped by to see if it could still be stopped. The lady I talked ...

Good thought, Mary Beth. I called them again and found out they are open. They take the same holidays FedEx takes. I talked with them a little more extensively and now I’m not sure how they are going to run the rest of the panel. It sounds like they don’t have a standard procedure for what to do whe...

This is just unbelievable! I went back yesterday for the second blood draw. Everything seemed to go so smoothly. Different people were there and they didn’t charge me a second draw fee. Since I didn’t need to send in the starter booklet, I decided to have them ship it for me. Once again I thought ev...

They were going to ship it for me, but they had weird rules about sending it to the shipping department. The phlebotomist first tried to fold up the starter booklet to fit it into the box. There is no way that booklet would fit in that little box. When I protested, she told me she had to have everyt...

I’m frustrated and need to vent. I sent my MRT kit to Signet last Tuesday. Getting my blood drawn was not as simple as I had hoped (long story involving a couple of arguments with a receptionist and a phlebotomist both of whom tried to insist on doing things the way they always do things even if it ...