MICROSCOPIC COLITIS SUPPORT

I thought I'd update a little bit: After regular testing to keep an eye on the neutropenia, I got a random call in the middle of the night from a lab technician telling me my PLATELETS were so low that I should head to the nearest hospital. That was the longest emerg stay - three days, two nights. B...

Thanks Kari! My butt hopes for a speedy recovery too, and you've given me faith that it won't take forever!

Just came back from my GI, who told me that what I thought was bad hemorrhoids was actually an anal fissure. Holy crap, these things are painful/uncomfortable/full of misery! I'm using topical diltiazem to try and get some blood flow helping it heal.

Because that's what I have a tendency to do. Especially during the worst flares, where eating anything hurts, trying to digest it hurts more, and then hurting to get it, mostly undigested, out of your system hurts again. I love that everyone cooks from scratch and has recipes, etc. to share, but I w...

Try fennel. In pasta or risotto, roasted or sauteed. I swear, I didn't know it could be so tasty.

I am totally puzzled as to why they would do that if it was just one low WBC incident. I am used to them only doing that when they suspect a serious condition - so that means repeat blood tests over a period of time and ruling out all other causes etc. I can't imagine my Haemo doing it without havi...

They use a local anaesthesia to knock out the tissue and muscle, but they can't get rid of pain in the bone itself. Yay.

To add:

I questioned the hematologist about the potential of it being vitamin deficiency, and he said I was tested for B12 and others and everything came back fine. He said he'd check my folate, but didn't think this was the case. Man, the learning curve I'm having.

Today, I went to see the hematologist and got a couple lovely tests done called a "bone marrow aspiration and biopsy" respectively. God, they're painful. The hematologist seemed to think the low white blood count (1.1) was due to a virus, as my red cells are fine and my platelets are only ...

Hi everyone, I'm home, just about to go to bed, but I thought I'd check in. I'm not on any meds at all - nor was I when I had the blood tests. I'm definitely seeing the hematologist this Wednesday - for sure. That's non-negotiable, I know. As for the other details, I don't know what my WBC level is ...

Hi guys, I've been running the gamut of medical tests and specialists lately, including two blood tests that came back with leukopenia - low white blood count. My GI has booked me with a hematologist for Wednesday (yay for swiftness!) but warned me that any kind of fever and I should take myself str...

I've been going gluten-free for about two weeks now, and while I feel like I have more energy and a bigger appetite, it hasn't affected my digestion at all yet. Still same ol' urgency and non-absorption... Is it early for me to be measuring my reaction to going gluten-free? I've heard it takes month...

Yikes, hi everyone! I haven't checked since my last reply - apologies! Thank you all for the support. natythingycolbery , it's good to know that I'm not the only young'un out there. Linda in BC (yay, another canuck!) I must admit that I'd never taken immodium before my GI suggested/prescribed it a m...

Thanks for the welcome, tex! As for treatment, I'm still in testing, apparently. After my diagnosis in April, I was put on Entocort followed by an 8 week Bismuth run. The steroids helped, but made me wicked moody, so the follow-up treatment was another run of Entocort, dosage lessened. After four we...

Hello all, I'm a brand new member of the forum (just discovered it today). You can call me Farren or Faer for short (easier to spell anyways!). I was diagnosed with Collagenous Colitis back in April this year, and I can't help but be a little relieved. I've had a whole range of gastrologically excit...