MICROSCOPIC COLITIS SUPPORT

Hi Marta, My MC was refractive, it wasn't responding to treatment. I had been on Colestipol for quite a while for BAM, taking it as directed by Drs, 2 with each meal. I found a support group for BAM and it was advised that for Colestipol to be most effective to take at bedtime on and empty stomach a...

Hi Tex, Thanks so much. I'm not inclined to go through an endoscopy so they can test. Wouldn't I have to ingest gluten before the test? It might be too soon after the colonoscopy but today my bm was "normal" and it actually sunk to the bottom of the bowl! That hasn't happened in years. I s...

Hi Tex, Thank you for your explanation. I have found several products marked like that and they are now gone. I also recently changed my toothpaste, my Dr wanted me to use Sensodyne, when I googled it, it's not guaranteed gluten free, so I went back to Colgate sensitive toothpaste. I rarely go out t...

Hi Tex, Sorry, I didn't see that you responded before now. I'm in the process of checking supplements, medications, and personal hygiene for any gluten, soy, egg & casein ingredients. A question, if a food is marked certified gluten free but is processed in a facility that handles soy, milk, whe...

Hi, I continue to be a mess. I continue to be on Entyvio infusions, Colestipol and I just had to start budesonide again, I'm in a flare. I saw the GI PA this week and stool test was done. My pancreatic elastase was 177 ug/g, low, and Calprotectin was 1350 ug/g, high. I was prescribed Creon and will ...

Hi Amy,

Thanks so much for your suggestion. I'm going to look into that. I visited an acupuncturist when I lived in New Jersey who was wonderful. I don't remember exactly why I went to him though. I live in South Carolina now and I'll ask around for a recommendation.

Thanks again,
Susanne

Hi all, Somehow I've managed to have mostly normal stools, for a few weeks, but my belly always feels unsettled and a lot of gas. I stopped the budesonide last week, I was only supposed to take it for the month of November while I was traveling. I'm taking 6 colestipols a day, digestive enzymes with...

Hi all, I finished the Pepto Bismol in mid-August and I was good for about a month, still taking 6 colestipol's a day. Mid-September I felt like things were slowly starting to change. That brings me to now, the stool just isn't right and I have to travel for 10 days to NJ for Thanksgiving, which is ...

Hi Daniel, I'm currently dealing with a colitis flare. I started Pepto Bismol (pink pills) on July 7th, 9 pills a day. I take it with Colestipol, 6 pills a day and I get Entyvio infusions. On about July 17th I started having "normal" bm's. I'm entering week 6 of the 9 Pepto's a day and I a...

Hi, I'm glad your staying cool. I have been staying inside, I can't take the humidity. The feel like here earlier was over 100+, not my favorite. I'm in SC. You don't have the humidity, right? Glad your staying cool. I'm going to hold off on adding anything until this is under control. I was thinkin...

Are you staying cool in AZ? I can't believe how hot it is. I've been staying in the house, it's hot & humid here and I can't take the humidity. I was waiting to post, I've been waiting for the results of my last stool test, I'm going to have to call to bug them. I've been on Pepto & 6 colest...

Hi Laine & Tex, Thanks so much for all the information!! There was so much information, I have to reread it. Here's my update. Per my GI PA, she started me on Pepto Bismol chewable 9 per day which I started yesterday. That being said, I expected to have a more formed BM and lesser time spent on ...

Hi Tex, I only added the tumeric because I was trying a recipe from a leaky gut cookbook. It said it was an anti-inflammatory. I won't use it again, I don't need any more trouble. I'll be curious to see what the PA says, I'm planning to call into the office today. I'll take more of the colestipol, I...

Hi all, I'm in the 9th week of the worst, most bizzare flare I ever had. I ended last week with a lot of wd and started this week with the same. Sunday night my intestines stopped rumbling and I got a good night's sleep. Yesterday my intestines were quiet all day and I had a small bm, #2 on the bris...

Hi Tex,

Thanks. I realized that after I did it, I'm back on track today. Sunday's 4 bm's were #7 on the bristol chart, Monday no BM, today, 1st bm #5, 2nd bm #6. Will see what happens going forward. Keeping my fingers crossed.

Thanks,
Susanne