Search found 17 matches

by Mendy
Fri Feb 24, 2012 12:54 pm
Forum: Main Message Board
Topic: Update
Replies: 7
Views: 930

Hey Zizzle and Tex. I wondered the same thing, so have no worries about questioning that. I also belong to crohnsforum.com the support group for people with Crohns. Believe it or not, it's one of the first drugs they try most Crohn's patients on. In studies it has been proven to be effective in both...
by Mendy
Thu Feb 23, 2012 3:27 pm
Forum: Main Message Board
Topic: Update
Replies: 7
Views: 930

I have been on the mastocytic enterocolitis protocol for awhile. I take zyrtec and zantac (a class one and class two antihistamine) to control those symptoms.

So hopefully the combination of all the meds will get me somewhere! LOL

Thank you so much for always being so wonderful to reply:)!!!!!
by Mendy
Thu Feb 23, 2012 9:37 am
Forum: Main Message Board
Topic: Update
Replies: 7
Views: 930

Tex, before I even got diagnosed I had a CT scan show inflammation of the colon in general. I have believed all along I had Crohn's and not the other. As far as the serology test, they ran the one specific to tell if it's UC or Crohn's. It is supposed to have over a 95% accuracy. He is aware that it...
by Mendy
Thu Feb 23, 2012 8:27 am
Forum: Main Message Board
Topic: Update
Replies: 7
Views: 930

Update

It's been awhile since I've checked in here, but it's been a very trying year. I was first diagnosed with mastocytic enterocolitis back in June of 2011. Since then I have had a small bowel follow through, upper scope, serology testing and a pill cam...and finally have a changed diagnosis to Crohn's ...
by Mendy
Tue Nov 22, 2011 11:15 pm
Forum: Main Message Board
Topic: Small bowel series
Replies: 4
Views: 528

Well I am hoping to get some energy back. I so miss that!!!:( Thanks so much, you actually have made me feel a bit better about things.
by Mendy
Tue Nov 22, 2011 5:29 pm
Forum: Main Message Board
Topic: Small bowel series
Replies: 4
Views: 528

thank you

My doctor is really thinking Crohns disease. I just want to get a diagnosis so I can get going on medication so I can finally start to feel better:( This has taken its toll on me this year. I appreciate your response as it does make me feel better. They did the first xray at 20 minutes so not sure r...
by Mendy
Tue Nov 22, 2011 4:35 pm
Forum: Main Message Board
Topic: Small bowel series
Replies: 4
Views: 528

Small bowel series

So I had the small bowel series (the follow through) done today. It only took 20 minutes for the barium to go completely through my stomach and small bowel. Otherwise my small bowel looked good. They did write on the report about how fast it went through my system, but didn't find any evidence of an...
by Mendy
Mon Nov 21, 2011 4:46 am
Forum: Polls Related to Microscopic Colitis and Treatment Options
Topic: Do You Believe That Your MC Was Caused By Antibiotics?
Replies: 22
Views: 11847

doxycycline

I actually got sick after a round of doxycycline!!!! I still to this day associate all my health issues with that round of antibiotics!
by Mendy
Mon Nov 21, 2011 2:15 am
Forum: Main Message Board
Topic: Update...and change of diagnosis
Replies: 3
Views: 886

Update...and change of diagnosis

First off let me start by saying 3 years ago I was told by a doctor I had IBS. My bowels settled down so I took it at face value. In February of this year I got so very sick, and really thought I was dying. I lost 35 lbs, and finally had a colonoscopy in June. (On a prior trip to the ER they did see...
by Mendy
Mon Aug 29, 2011 12:33 am
Forum: Main Message Board
Topic: Happy Birthday Lyn (Bifcus16) :happybirthday:
Replies: 16
Views: 2561

Happy Birthday!! Hope it was terrific!!!
by Mendy
Tue Aug 09, 2011 9:53 pm
Forum: Main Message Board
Topic: Another question..sorry..lol
Replies: 9
Views: 1606

I saw an allergist here in our area but unfortunetely he is still learning about it like we all are. All the common food and environment allergies, with the exception of dust, I was negative for. So I'm not real allergic to anything..which is odd. I am going to try and see where the closest speciali...
by Mendy
Tue Aug 09, 2011 7:06 pm
Forum: Main Message Board
Topic: Another question..sorry..lol
Replies: 9
Views: 1606

Thanks for the response guys. I'm so blessed to have found you all. This nightmare seems some better when I can ask questions and get a response! My heart sometimes skips a beat during all this too, and I feel lightheaded...I'm assuming from BP issues. Anyway, MaryBeth, no I was not following the lo...
by Mendy
Tue Aug 09, 2011 4:13 pm
Forum: Main Message Board
Topic: Happy Birthday JoAnn :party:
Replies: 13
Views: 1723

Hope you have a very happy and blessed birthday and many many more to come!!!
by Mendy
Tue Aug 09, 2011 4:05 pm
Forum: Main Message Board
Topic: Another question..sorry..lol
Replies: 9
Views: 1606

Another question..sorry..lol

So since my diagnosis of mastocytic colitis, I have had trouble gaining any weight which I won't complain about. I thought I could go back to my regular and have been doing well for the past couple of months minus the fact I still have extreme fatigue, and muscle and joint pain... I made the mistake...
by Mendy
Wed Jul 27, 2011 11:33 pm
Forum: Main Message Board
Topic: Newly Diagnosed with Mastocytic Entercolitis
Replies: 11
Views: 3512

I am located in Kentucky..in Bowling Green to be exact. Not sure if there are any specialist near me...:( Thank you all for the knowledge. I have already been diagnosed with a vitamin D defeciency, when I was tested my level was 6!!!! I'm quite certain I have some malabsorbtion due to the 30 lb weig...

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