MICROSCOPIC COLITIS SUPPORT

Mine gets refilled with a 3 month supply so maybe I'm out of the loop on this issue? I had no problem with my last refill. Sounds like Tex has done the research on this-thanks Tex! I hope everyone is well...like Tex said, I don't check in that often->I probably just sound like a broken record anyway...

Can I ask how much cholestyramine you tried in the past? You may need LOTS more than you think! Ask me how i know .

When I was at my worst I made my own electrolyte solution from a recipe I pulled from this website. I want to say Polly posted it-but I could be wrong. I still have the bottle of potassium chloride powder I bought at a health food store, of course you can order all this from Amazon now adays!!! Laine

If I may jump in here....y'all know what I'm going to say! Ya, ya...bear with me. If you have a decent relationship with that GI doc and the colonoscopy/biopsies don't show much other than what you already know...why not ask to try cholestyramine? Seriously, it's just some sort of flavored resin tha...

I take the digestive enzymes and Betaine HCl with my meals and like I said....I don't drink my cholestyramine for like an hour afterwards. I use the NOW brand Betaine HCl and have used a few brands of digestive enzymes-currently have Klaire Labs. I order this stuff on Amazon because it's just way ea...

Well, I have a Kitchen Aid mixer and have the meat grinder attachment! I'm sure there are easier, cheaper ways to do it...like an old school meat grinder that you just crank!

Laine

I take my magnesium with food and don't do my cholestyramine for at least an hour after that. Mostly I'm eating 2 meals a day so take magnesium 2x/day. Seems to work for me.

Laine

I've always been puzzled by folks posting about "safe" ground turkey!!! Wow, when I was at my lowest point 6 years ago, I was crazy about what I put in my mouth!!! I never did ground turkey because I didn't trust ANY brand...I either just ate "non ground" (breast, thigh, whatever...

Yes, everything (meds, supplements, whatever) either an hour before the cholestyramine or 4 hours after the cholestyramine. That works for me because I don't have to take anything prescription other than the cholestyramine! I'm sure it becomes an issue for others who are trying to juggle meds. I've ...

I take LOTS of cholestyramine!!! Like, I weigh 125# at 5' 6" and I've been taking 8 packets a day for 4 years now. I've actually taken up to 9 packets a day...mostly 8 seems to do it for me though. In addition I take quite a bit of betaine HCl with each meal and a digestive enzyme capsule. Hone...

What exactly is the MAXIMUM dose of that bile acid binder? Max dosage doctor recommended? I have to take HUGE amounts of cholestyramine-way more than was prescribed to me initially.

Laine

Interesting about the blood test Tex. I wonder when it will be available in the US. I currently live with my brother who has diarrhea issues but doesn't really want to try cholestyramine. If and when it gets bad enough, I guess he will do something about it! :mallet: I only wish it was available in ...

I'm off all week and staying inside unless I go out in the pool. And at this point the pool isn't cool, it's just wet! And I'm not sure if the hospital has decided to save money by running warm this summer...but we've all been hot at work, where usually we're freezing in that building during the sum...

I live in Phoenix. I actually spent the weekend in Flagstaff a few weeks ago attending a Blues and Brews Festival. Good time, nice weather and of course some crazy not healthy for you food truck food! Getting up to Flagstaff's altitude and temperature is nice this time of year. I was so bad in 2017 ...

Well, thanks Tex. It's not something I want to be an expert on, but if it helps people then BRING IT ON!! I wish I was one of those people who I've seen post who were like, "I take a half a packet every third day...more than that and I get constipated!" :shock: :roll: . If only that was my...