I Wonder How Many Of Us Have A Sleep Disorder

Polls relevant to Microscopic Colitis, and related issues, can be posted here, to allow for the collection of data that might help to shed some light on this disease, and it's treatment options.

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Do you have a sleep disorder?

No.
26
31%
Yes, but I had it before my MC symptoms began.
38
45%
Yes, and it seemed to begin after my MC symptoms became noticeable.
19
23%
Yes, but it developed after my MC symptoms were already in remission.
1
1%
 
Total votes: 84

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alclarkson
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Post by alclarkson »

Karin- I did the pepto routine, 1 2x a day. I did it for about 3 weeks, started to get constipated and eventually tappered down to not taking any. I've flared up again, prob. 2 wks after stopping. I'm going to start back up in the next week. I worked really well. I think I might start with 1 2x a day this time.
Diarrhea, nausea, abd. pain 3/31/11. Confirmed gallstone/sludge 4/15/11. Confirmed Lymphocytic Colitis 5/6/11 via colonoscopy. Started Pepto 5/21/11 & stopped 6/21/11. Stopped Cymbalta 6/9/11- D stopped temporarily. 7-19-11- lap chole
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sarkin
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Post by sarkin »

Oh my goodness, Denise, what an unfortunate form of sleep troubles for a teenager!

I don't think I have sleep issues, though I did have mild disruptions back around perimenopause. And I may have sleepwalked once, as a child. I honestly am not sure whether I dreamed that, but it hasn't been a typical thing for me in any case.

Sheila, if I screamed in my sleep or flew out of bed, I would definitely call that a problem - or at least my husband would! Thank goodness you haven't hurt yourself ;)

Sleep tight and sleep safe all,

Sara
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TooManyHats
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Post by TooManyHats »

I did sleep walking as a child and had conversations I didn't remember having. I grew out of it. Now, on occasion, I'll wake up during the night and say something and when my husband tells me about it, I don't remember.

I seem to wake up at night and don't feel tired enough to get to sleep. I've had leg cramps for about 5 years or so. So very painful they wake me up and I have to walk them off.

My husband tells me I snore and stop breathing during the night.

I didn't answer the poll because I haven't been diagnosed with anything.
Arlene

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tex
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Post by tex »

Arlene,

A diagnosis isn't necessary. IMO, a diagnosis doesn't change the symptoms, nor the status of a problem - it merely adds medical acknowledgment, which amounts to a medically-defined collection of symptoms that is assigned an official, (medically-approved), name. Regardless of what they choose to call it, the effects on the patient are the same. :shrug:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
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Post by sarkin »

tex wrote:IMO, a diagnosis doesn't change the symptoms, nor the status of a problem - it merely adds medical acknowledgment, which amounts to a medically-defined collection of symptoms that is assigned an official, (medically-approved), name.
Amen, Tex. When I first got my Enterolab results I wondered whether I 'have celiac disease' or 'am truly celiac' - and then I realized, it's probably the diagnostic criteria that are confused. I know everything I need to know about my genetics & antibodies & empirical response to gluten, and it doesn't matter what I or anyone else want to call it. If endoscopy showed I don't have villous atrophy, I wouldn't eat gluten anyway. If blood tests show I don't have the antibodies - hallelujah, my gut did not sustain enough damage to allow those antibodies to start showing up in blood! Lucky me, I found out in the nick of time.

I am preparing a 'doctor card' - kind of like a chef card, but for the eventuality that someone is trying to talk me into an unnecessary procedure one day. Just a few questions, like: "How will knowing this test result affect my treatment options?" I don't think I'll need to show it to them - just clutching it in my hand should do the trick :grin:

Sara
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sleep disorder

Post by Sheila »

Well, Tex, I've always had nightmares. I no longer sleepwalk and infrequently fly or dive out of bed any more. I do cry out if a dream is especially bad but that doesn't happen too often anymore. I guess I have nightmares a couple of times a month now and wake up terrorized only occasionally now. I once punched my mother when she woke me from a nightmare. She was pretty careful after that!! This is normal for me and I never thought of it as dysfunctional. I did not know that the body isn't supposed to move during REM sleep. So, you might categorize my sleep habits as a disorder but for me it's normal.
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maestraz
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Post by maestraz »

Hello all,
I have had sleep issues all my adult life, though will not do a sleep study b/c I wouldn't sleep with an appliance on my face even if told I needed one.

During my childbearing years, my insomnia very closely mirrored the full moon and my ovulation cycle. I had great trouble falling asleep. I continued to sleep poorly, and when I got to be peri-menopausal, all hell broke loose; I would fall asleep easily, but wake up like clockwork at +\-3AM and very often not get back to sleep. That was accompanied by what I call "the hamster wheel" of rumination that will not stop (needless to say, not a good situation for a teacher to be in the classroom on 3-4 hours of sleep). In the last year, drenching sweats, and I am well past menopause. Wakefulness is accompanied by ruminating. Recently, leg cramps have been a problem.

I have not slept unmedicated in years, but even the meds don't give me consistently good sleep. A lot of my problem is anxiety, and I am currently almost weaned off the SSRI that had been helping, but probably also
contributed to the LC issue.

And, it's no secret the effect that sleeping poorly has on many other aspects of health...
Suze
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tex
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Post by tex »

Suze,

I'm not sure exactly what you mean by "the hamster wheel" of rumination, but if it's what I think it is, I've been stuck in that mode many times, in a seemingly semi-conscious state, during the wee hours of the morning. :sigh: I've never taken an SSRI, or any type of sleep aid.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by maestraz »

Hi Tex,
I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.
Suze
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NJ
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Post by NJ »

Is it possible to have sleep apnea, or something very similar, w/out fitting the traditional stereotype of being overweight with a tendency towards snoring? I ask because I sleep terribly--waking up many times a night--but have never been told I snore and am actually quite underweight. It seems no matter what I do, I sleep terribly and yet I'm convinced my doctors won't take me seriously if I bring up the idea of a sleep study.
"Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game." ~Voltaire
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tex
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Post by tex »

Yes, it's certainly possible to have sleep apnea without snoring, and without being overweight. If you want to show your doctors some proof, here's a discussion on that very topic, on a sleep apnea support forum:

http://www.apneasupport.org/about5355.html

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tex
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Post by tex »

Suze wrote:I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.
Yep, that used to be a common problem for me. Fortunately, it hasn't happened in a long, long time.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Stanz »

maestraz wrote:Hi Tex,
I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.
I love this analogy, Suze, this is truly what I do non-stop for hours. I am usually "at work" and have forgotten something important or have done something wrong and I'm trying to "fix" it - over and over and over again.

I've done a sleep study and the results were that I NEVER was fully asleep. I would approach it and then would fight it and wake myself up. The doctor believes this relates to my PTSD. DH says I snore, and I also have apnea. I could never use a CPAP, although using one has greatly helped my DH. Gave some thought to using a dental device, but never followed up on it. I prop pillows against my back to keep me from rolling over onto my back, as that will always shut off the air and wake me up with a snort.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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tex
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Post by tex »

Connie wrote:I've done a sleep study and the results were that I NEVER was fully asleep.
I've never done a sleep study, but that's the impression I get, also, that I'm not fully asleep, when it happens.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
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Post by sarkin »

Interesting... I read once that in some sleep studies, people with terrible insomnia go to sleep, wake up in the morning and say - "see, I didn't sleep a wink!" But that was a superficial observation, and I bet there was little to no truly restful sleep.

My husband read that some people get up in the morning, and can be up for even a few hours, but an EEG will show that their brains are still asleep. This filled him with compassion and understanding for me...

I have been waking up refreshed and ready to go much more often since I fixed my diet. I am definitely sleeping somewhat less overall, and am less fatigued in the evenings. YAY!

Sara
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