About how often do you have reactions that you are reasonably sure are caused by MC, or at least related to it?
Tex
Approximately How Often Do You Have MC Reactions?
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Approximately How Often Do You Have MC Reactions?
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MaggieRedwings
- King Penguin
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Jill,
That's exactly what we want to find out. There's nothing illlegitimate about using meds. Whatever works is fair game with MC. Your vote is important.
Thanks,
Tex
That's exactly what we want to find out. There's nothing illlegitimate about using meds. Whatever works is fair game with MC. Your vote is important.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kate_ce1995
- Rockhopper Penguin
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- Location: Vermont
Well, I put in several times a month because I believe I do have reactions although I'm on Asacol and they aren't terribly noticeable. Mostly it's consistancy of stool and how "acidic" they seem to me.
When I get adjusted to the Paleo diet, I'm hoping it happens less.
Shirley
When I get adjusted to the Paleo diet, I'm hoping it happens less.
ShirleyWhen the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Katy,
Sure! Let's be realistic. I have a hunch that if I didn't slip up every once in a while, or make myself sick by "trying" something one more time, I probably wouldn't have any episodes at all, or at least they would be rare. The reality of the situation is, though, that I do slip up, and I can't seem to keep from "trying" things, to see if my intolerances have changed any since the last "test", so I might as well admit that I do have reactions--'cause I do.
Shirley,
You made the right selection. We're all different, and the intensity of our reactions varies a great deal sometimes, but a reaction is still a reaction, even if it's a mild one. Thank goodness they're mild, sometimes.
Tex
Sure! Let's be realistic. I have a hunch that if I didn't slip up every once in a while, or make myself sick by "trying" something one more time, I probably wouldn't have any episodes at all, or at least they would be rare. The reality of the situation is, though, that I do slip up, and I can't seem to keep from "trying" things, to see if my intolerances have changed any since the last "test", so I might as well admit that I do have reactions--'cause I do.
Shirley,
You made the right selection. We're all different, and the intensity of our reactions varies a great deal sometimes, but a reaction is still a reaction, even if it's a mild one. Thank goodness they're mild, sometimes.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Very often...
I think you are asking about diarrhea, etc., right ? If so, it is still a constant thing for me, everyday. Several times a day...
Anyhoo, I've been gluten free for a little over a year now, and except for two weeks right after going gluten free, (I was gloriously normal for that two weeks!!), I have had constant diarrhea, back & stomach aches, etc., for about two years now.
Man, that depressed me, just writing that
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Love,
Carla
Anyhoo, I've been gluten free for a little over a year now, and except for two weeks right after going gluten free, (I was gloriously normal for that two weeks!!), I have had constant diarrhea, back & stomach aches, etc., for about two years now.
Man, that depressed me, just writing that
!Love,
Carla
LC - dx'd 2004 - Celiac -biopsy dx'd 2004 - pernicious anemia... ;)
Hi Carrie,
Well, to be honest, it never dawned on me that someone might "never" have another reaction from MC. I started to revise my poll, but then it occurred to me that the jury is still out on all of us. I don't believe that any of us have been totally free of reactions during the past three years. Therefore, if you have had any reactions in the past three years, then the last catagory applies to you.
I'll try to remember to run another poll in about three years, and then I'll add an aditional catagory for that possibility. Forgive me for having what may appear to be a pessimistic attitude, but this is a very persistant disease, and most of us are not capable of perfect behaviour. While it's certainly possible that a span of spontaneous remission might exceed three years, I'm unaware that has been documented, so I will be very interested to see how this plays out.
Love,
Wayne
Well, to be honest, it never dawned on me that someone might "never" have another reaction from MC. I started to revise my poll, but then it occurred to me that the jury is still out on all of us. I don't believe that any of us have been totally free of reactions during the past three years. Therefore, if you have had any reactions in the past three years, then the last catagory applies to you.
I'll try to remember to run another poll in about three years, and then I'll add an aditional catagory for that possibility. Forgive me for having what may appear to be a pessimistic attitude, but this is a very persistant disease, and most of us are not capable of perfect behaviour. While it's certainly possible that a span of spontaneous remission might exceed three years, I'm unaware that has been documented, so I will be very interested to see how this plays out.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hmmm....I have been thinking about this and wondering about the role of stress in all of this. I remember that long before any of this MC stuff was going on with me, whenever I was under a lot of stress, I had attacks of diarrhea. But they were sudden and once I made it to the pot, I was fine. Now either I have had MC a lot longer than I thought or I am one of those people whose stress settles in their gut. Some people get stress headaches. I don't.
So, although I answered the poll with once or twice every few months, I also know that during those times I was under stress. (Or had eaten lettuce.
) I consider that I am in remission, but I don't know if I would have had these reations anyway. What I am saying is that I don't know what is due to MC and what is my body's normal way of dealing with stress.
Anyone care to comment?
Lots of love,
Sally
So, although I answered the poll with once or twice every few months, I also know that during those times I was under stress. (Or had eaten lettuce.
) I consider that I am in remission, but I don't know if I would have had these reations anyway. What I am saying is that I don't know what is due to MC and what is my body's normal way of dealing with stress. Anyone care to comment?
Lots of love,
Sally
Mitakuye oyasin
(Lakota for "We are all related")
(Lakota for "We are all related")
Hi Wayne. I've only had LC since July 2004 (at least that's when it erupted) and I was diagnosed one year ago this week...so only time will tell. I hope that I never, ever, get that sick again. For six months I had totally liquid diarrhea and lost almost 20% of my body weight. Since going into remission this January I have gotten my appetite back and regained all the weight I lost. The only GI signs I can think of since remission are a few gassy rumblings from time to time that don't really bother me, and the fact that my stools never are as firm as before LC. I don't take any meds, only a few vitamins. Believe me, Wayne, you and the group will be the first to know if I get any reactions (let's hope not!).
Sally, funny but I don't get headaches, either. And I think I've always been prone to having my stomach "tied in a knot" when under stress. Perhaps I've always had LC or a variant; or, maybe that's just the way things are. I don't know.
Love,
Carrie
Sally, funny but I don't get headaches, either. And I think I've always been prone to having my stomach "tied in a knot" when under stress. Perhaps I've always had LC or a variant; or, maybe that's just the way things are. I don't know.
Love,
Carrie