Just Do It!!!

Updates from members who have been successful in controlling their symptoms.

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Kari
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Just Do It!!!

Post by Kari »

Hi dear friends,

Well, today I could have been a poster child for a Nike commercial and wanted to share the experience with all of you.

As you may know, I'm in the Rockies going on 5 weeks now, and I'm trying my best to regain my strength and stamina, which I lost a lot of this last year when dealing with healing my MC (with diet alone). I reached a low point on December 12, 2010, as I had narrowed my diet down to 4 items in an effort to get rid of the D. When this still did not resolve the D., I knew something had to give. My biggest problem was that I simply could not figure out a single "safe" item, and I later discovered that 3 of the 4 items in my "elimination diet" where reactive.

A couple of days after I felt I hit an all time low (I had lost 25 lbs. in half a year, and was feeling fragile and desperate) I went to see a dietitian and ordered the MRT test. Getting the test results was a real eye opener, since I discovered that I was highly reactive to several items I was ingesting regularly (for instance bananas, coffee, eggs, asparagus, tomatoes). Eliminating all the reactive foods from my diet resulted in an instant improvement in my BM's, and on Christmas day I experienced my first "Norman" in over 10 years. That was an incredible Christmas gift, but it was far from the end of the road in my healing.

Eight months later, I am still in the healing process. I would say that I'm about 75% there, and am hoping that in another year, I will be closer to healed. I'm still eating a very limited diet, but since I'm getting food from so many nutritious sources (veggies, fruits, nuts, chicken, seafood and beans), I feel that I'm eating well (incidentally, I eat almost no "processed" foods, and rarely go out to eat). So, together with my healthy diet and stamina and strength exercises I'm doing here in the mountains, I'm feeling strong again, both mentally and physically.

Back to today and my "Just Do It" commercial :lol: . I woke up this morning feeling strong and healthy and ready for a hike. I knew Bill (my SO) did not want to hike today, as he was heading to the lake where they were having some kind of festivities, but I tried to get him to come along anyway (to no avail). There is this massive mountain called "Buffalo Mountain" featured prominently in this area. I have been looking at it from my little condo terrace since I came up here 5 weeks ago, but didn't think I was strong enough to hike it, as there is a 3,000 foot elevation gain and plenty of rock scrambling.

Anyhow, something got into me this morning, and I decided to give it a try by myself - solo hiking. This is something I rarely do, since I have a lot of respect for the wilderness, and would certainly not like to meet up with a bear or mountain lion when alone. The other factor to consider was the weather - as there was a cloud cover, and the forecast called for afternoon thunder showers. On the other side of the equation was the fact that my dear sister, who is struggling with bone cancer, was having hip replacement surgery today. Also, it is my mom's birthday - she was born 8/19/1908 and would have turned 103 today if she was still alive.

To make a long story shorter, I felt absolutely impelled to do the climb by myself today, and headed for the trails. Something Tex once posted kept running like a tape recorder in my head "once you conquer MC, you will feel like there is nothing you cannot do". Although I don't feel I have completely conquered MC yet, I am absolutely certain that I will get there in due time. So I did the climb (5.5 hours), for my MC victory so far, for my sister, who is struggling so, and for my mother, who I believe would have lived longer had she dropped gluten from her diet (she had all the classic symptoms of gluten intolerance).

I met some young guys from Nebraska on the trails, and they took a picture of me on the summit and emailed it to me - so I attached it below.

Anyhow, my long winded message is to encourage all you fellow MC sufferers that you CAN get your life back!!! Never, never, never give up!!!

Love,
Kari

Image
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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tex
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Post by tex »

Absolutely awesome!

You're an inspiration par excellence!

Love,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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nancyl
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Post by nancyl »

Kari,
Thank you so much for sharing your amazing experience. It does give us hope. You are certainly an inspiration to all of us who are still struggling. What a day to pick to do your hike. I'm sure your Mom was helping you along the way.

You have inspired me to think more about the MRT testing if I am not successful in keeping things under control.

Hugs and congratulation,
Nancy
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Post by Polly »

Wonderful story, Kari! You GO girl!

LOVE the photo.

Love,

Polly
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Post by garina »

Oh, Kari, how wonderful. What courage you have. I don't think I could do all you've done, but just being out in the mountains, hills, and all that fresh air, is incentive for me.

Thanks so much for that.

garina
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LindyLou
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Post by LindyLou »

Kari, what a wonderful post! Thank you so much for sharing your adventure. I've been fighting an awful MC flare since April (actually that was when I was finally diagnosed) and I have lost so much muscle and strength since then - along with 22 pounds. I have made a promise to myself that once the weather cools off, I will be hiking the mountain bike trails. I have found that I don't have any stamina in the heat. I also am trying to do this through diet only. And going gf & df isn't enough. I'm sending for the Enterolab test so hopefully I can figure this out. Was your MRT test covered by your insurance?
jmayk8
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Post by jmayk8 »

Kari that's so great, Congrats!
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mbeezie
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Post by mbeezie »

Kudos Kari! Love the photo - you look very fit and healthy!!

Love,

Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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sarkin
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Post by sarkin »

Kari,

What a joyful and empowering story of resilience and recovery - you look so happy, so strong, and so beautiful!

Thanks for leading the way on a path where I hope to follow. MRT is next for me, this fall. As brutal as the MC road can be, it is sobering to recognize (from your altitude!) how undiagnosed gluten intolerance has left so many behind... My mother, your mother, siblings... so many people of all ages, through the ages. (Actually, our fathers as well - you and I share 'double whammy' genes... I am pondering whether I should inform my autoimmune-afflicted cousins, on both sides, about what's been going on...)

Thanks for sharing this triumphant 'peak' - and I look forward to your next summit ;)

Love,
Sara
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Martha
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Post by Martha »

Dear Kari,

Thanks for that encouraging post. You are an inspiration to us all! Wow--a 5.5 hour hike solo; that's amazing.

Love,
Martha
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Kari
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Post by Kari »

Thank you so much for your nice notes everyone.

LindyLou - I think if you have your PCP or GI endorse, or better yet order the allergy tests for you, most insurance companies would cover them.

During all the years I suffered with WD, the only way I was able to keep my energy level up high enough to function reasonably well, was to engage in some form of fitness program. People were always amazed at my "discipline" when it came to working out, but for me it was actually essential.

Good luck with the testing, as well as your treatment program. You will find out over time what works best for you, as we all seem to have our own individual treatment methods.

Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Gloria
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Post by Gloria »

Very inspirational, Kari! You are right to be proud of your accomplishments, especially climbing that mountain - quite symbolic of climbing the MC mountain.

You've come a long way - congratulations!

Gloria
You never know what you can do until you have to do it.
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MBombardier
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Post by MBombardier »

Thank you, Kari. I needed that today.
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

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Gabes-Apg
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Post by Gabes-Apg »

Kari
what a joy to read your post and be part of your celebration, there is nothing longwinded about a message like that when you are sharing such a magnificent milestone

congratulations and thanks for sharing

:party:
Gabes Ryan

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MaggieRedwings
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Post by MaggieRedwings »

Congratulations Kari,

So well written and I could feel the joy of your post. It has been a very long road for you and others on the board and your message will serve to give others hope. It was timely for me since I was at a bit of low point today and you inspired me to just get the heck out of the doldrums. Thank you.

Love, Maggie
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